Skip to main content

Advertisement

Log in

Stress in Parents of Children with Autism Spectrum Disorder: An Exploration of Demands and Resources

  • Original Paper
  • Published:
Journal of Autism and Developmental Disorders Aims and scope Submit manuscript

Abstract

We applied the ABCX model of stress and coping to assess the association between child and family demands, school-based resources (i.e., parent–teacher alliance and COMPASS, a consultation intervention), and two measures of parent stress: perceptions of the demands of raising a child (Child domain) and reactions to those demands (Parent domain). Data were analyzed from seventy-nine parents of children ages 3–9 with ASD participating in two randomized controlled trials of COMPASS. Stronger parent–teacher alliance correlated with decreased Parent domain stress and participation in COMPASS correlated with decreased Child domain stress after controlling for baseline stress. The study indicates that school-based resources can help reduce parent stress.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Fig. 1

Similar content being viewed by others

References

  • Abidin, R. R., & Brunner, J. F. (1995). Development of a parenting alliance inventory. Journal of Clinical Child Psychology, 24(1), 31–40. doi:10.1207/s15374424jccp2401_4.

    Article  Google Scholar 

  • Almutairi, M. (2002). Mothers of children with autism: The relationship between knowledge of autism and stress. Dissertation Abstracts International Section A, 63, 1253.

    Google Scholar 

  • Baker-Ericzén, M. J., Brookman-Frazee, L., & Stahmer, A. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research and Practice for Persons with Severe Disabilities, 30(4), 194–204. doi:10.2511/rpsd.30.4.194.

    Article  Google Scholar 

  • Benson, P. R. (2010). Coping, distress, and well-being in mothers of children with autism. Research in Autism Spectrum Disorders, 4(2), 217–228.

    Article  Google Scholar 

  • Benson, P. R., & Karlof, K. L. (2009). Anger, stress proliferation, and depressed mood among parents of children with ASD: A longitudinal replication. Journal of Autism and Developmental Disorders, 39(2), 350–362. doi:10.1007/s10803-008-0632-0.

    Article  PubMed  Google Scholar 

  • Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17(4), 208–215.

    Article  Google Scholar 

  • Bristol, M. M. (1987). Mothers of children with autism and communication disorders: Successful adaptation and the Double ABCX model. Journal of Autism and Developmental Disorders, 17, 469–486.

    Article  PubMed  Google Scholar 

  • Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders social support, mental health status and satisfaction with services. Autism, 8(4), 409–423.

    Article  PubMed  Google Scholar 

  • Carrow-Woolfolk, E. (1996). Oral and written language scales: Written expression scale manual. Circle Pines, MN: American Guidance Service.

    Google Scholar 

  • Cowen, P., & Reed, D. A. (2002). Effects of respite care for children with developmental disabilities: Evaluation of an intervention for at risk families. Public Health Nursing, 19(4), 272–283. doi:10.1046/j.1525-1446.2002.19407.x.

    Article  PubMed  Google Scholar 

  • Dababnah, S., & Parish, S. L. (2015). Feasibility of an empirically based program for parents of preschoolers with autism spectrum disorder. Autism. doi:10.1177/1362361314568900.

    PubMed  Google Scholar 

  • Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38(7), 1278–1291.

    Article  PubMed  Google Scholar 

  • Dykens, E. M., Fisher, M. H., Taylor, J. L., Lambert, W., & Miodrag, N. (2014). Reducing distress in mothers of children with autism and other disabilities: A randomized trial. Pediatrics, 134(2), e454–e463. doi:10.1542/peds.2013-3164.

    Article  PubMed  PubMed Central  Google Scholar 

  • Ekas, N., Lickenbrock, D., & Whitman, T. (2010). Optimism, social support, and well being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40(10), 1274–1284.

    Article  PubMed  Google Scholar 

  • Ekas, N., & Whitman, T. L. (2010). Autism symptom topography and maternal socioemotional functioning. American Journal on Intellectual and Developmental Disabilities, 115(3), 234–249.

    Article  PubMed  Google Scholar 

  • Elliott, C. D. (1990). DAS administration and scoring manual. San Antonio, TX: Psychological Corporation.

    Google Scholar 

  • Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X.-H., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13(4), 375–387.

    Article  PubMed  Google Scholar 

  • Ganz, M. L. (2007). The lifetime distribution of the incremental societal costs of autism. Archives of Pediatrics and Adolescent Medicine, 161(4), 343–349.

    Article  PubMed  Google Scholar 

  • Harper, A., Dyches, T., Harper, J., Roper, S., & South, M. (2013). Respite care, marital quality, and stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(11), 2604–2616. doi:10.1007/s10803-0131812-0.

    Article  PubMed  Google Scholar 

  • Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642.

    Article  PubMed  Google Scholar 

  • Huang, C., Yen, H., Tseng, M., Tung, L., Chen, Y., & Chen, K. (2014). Impacts of autistic behaviors, emotional and behavioral problems on parenting stress in caregivers of children with autism. Journal of Autism and Developmental Disorders, 44(6), 1383–1390. doi:10.1007/s10803-013-2000-y.

    Article  PubMed  Google Scholar 

  • Hudock, R. (2013). Examining parenting stress in parents of children with autism spectrum disorders. Dissertation Abstracts International Section A, 74.

  • Ingersoll, B., & Hambrick, D. Z. (2011). The relationship between the broader autism phenotype, child severity, and stress and depression in parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5(1), 337–344.

    Article  Google Scholar 

  • Koegel, R. L., Bimbela, A., & Schreibman, L. (1996). Collateral effects of parent training on family interactions. Journal of Autism and Developmental Disorders, 26(3), 347–359.

    Article  PubMed  Google Scholar 

  • Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer.

    Google Scholar 

  • Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50(3), 172–183.

    Article  PubMed  Google Scholar 

  • Lord, C., Rutter, M., Goode, S., Heemsbergen, J., Jordan, H., Mawhood, L., & Schopler, E. (1989). Autism diagnostic observation schedule: A standardized observation of communicative and social behavior. Journal of Autism and Developmental Disorders, 19, 185–212.

    Article  PubMed  Google Scholar 

  • Mandell, D. S., & Salzer, M. S. (2007). Who joins support groups among parents of children with autism? Autism, 11(2), 111–122.

    Article  PubMed  PubMed Central  Google Scholar 

  • Manning, M. M. (2008). The Double ABCX model of adaptation in racially diverse families with a school-age child with autism. Dissertation Abstracts International, 69, 3271.

  • Manning, M., Wainwright, L., & Bennett, J. (2011). The double ABCX model of adaptation in racially diverse families with a school-age child with autism. Journal of Autism and Developmental Disorders, 41, 320–331.

    Article  PubMed  Google Scholar 

  • Mather, K. A., Jorm, A. F., Parslow, R. A., & Christensen, H. (2011). Is telomere length a biomarker of aging? A review. The Journals of Gerontology Series A: Biological Sciences and Medical Sciences, 66(2), 202–213.

    Article  Google Scholar 

  • McCubbin, H. I., & Patterson, J. M. (1983). The family stress process: The double ABCX model of adjustment and adaptation. Marriage and Family Review, 6, 7–37.

    Article  Google Scholar 

  • McGrew, J. M., & Keyes, M. L. (2014). Caregiver stress during the first year after diagnosis of an autism spectrum disorder. Research in Autism Spectrum Disorders, 8(10), 1373–1385.

    Article  Google Scholar 

  • McLennan, J. D., Doig, J., Rasmussen, C., Hutcheon, E., & Urichuk, L. (2012). Stress and relief: Parents attending a respite program. Journal of the Canadian Academy of Child and Adolescent Psychiatry, 21(4), 261–269.

    PubMed  PubMed Central  Google Scholar 

  • McStay, R. L., Trembath, D., & Dissanayake, C. (2014). Stress and family quality of life in parents of children with autism spectrum disorder: Parent gender and the double ABCX model. Journal of Autism and Developmental Disorders. doi:10.1007/s10803-014-2178-7.

    PubMed  Google Scholar 

  • Meadan, H., Halle, J. W., & Ebata, A. T. (2010). Families with children who have autism spectrum disorders: Stress and support. Exceptional Children, 77(1), 7–36.

    Google Scholar 

  • Montes, G., & Halterman, J. S. (2011). White-black disparities in family-centered care among children with autism in the United States: Evidence from the NS-CSHCN 2005-2006. Academic Pediatric, 11(4), 297–304. doi:10.1016/j.acap.2011.02.002.

    Article  Google Scholar 

  • Morrison, S. T. (2014). Parents of children with autism spectrum disorders: Accessed and preferred parental supports. Dissertation Abstracts International Section A, 75.

  • Nelson, C. A., Varcin, K. J., Coman, N. K., DeVivo, I., & Tager-Flusberg, H. (2015). Shortened telomeres in families with a propensity to autism. Journal of the American Academy of Child and Adolescent Psychiatry, 54(7), 588–594. doi:10.1016/j.jaac.2015.04.006.

    Article  PubMed  Google Scholar 

  • Ngui, E. M., & Flores, G. (2007). Unmet needs for specialty, dental, mental, and allied health care among children with special health care needs: Are there racial/ethnic disparities? Journal of Health Care for the Poor and Underserved, 18(4), 931–949.

    Article  PubMed  Google Scholar 

  • Pakenham, K. I., Samios, C., & Sofronoff, K. (2005). Adjustment in mothers of children with Asperger syndrome. Autism, 9, 191–212.

    Article  PubMed  Google Scholar 

  • Paynter, J., Riley, E., Beamish, W., Davies, M., & Milford, T. (2013). The Double ABCX model of family adaptation in families of a child with an autism spectrum disorder attending an Australian early intervention service. Research in Autism Spectrum Disorders, 7(10), 1183–1195. doi:10.1016/j.rasd.2013.07.006.

    Article  Google Scholar 

  • Pozo, P. P., Sarriá, E. E., & Brioso, A. A. (2014). Family quality of life and psychological well being in parents of children with autism spectrum disorders: A double ABCX model. Journal of Intellectual Disability Research, 58(5), 442–458. doi:10.1111/jir.12042.

    Article  PubMed  Google Scholar 

  • Rao, P. A., & Beidel, D. C. (2009). The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning. Behavior Modification, 33(4), 437–451. doi:10.1177/0145445509336427.

    Article  PubMed  Google Scholar 

  • Reinke, J. (2013). Families of children with autism spectrum disorder: The role of family Centered care in perceived family challenges. (Doctoral dissertation). Retrieved from ProQuest. (UMI Number 3567468).

  • Reynolds, C. R., & Kamphaus, R. W. (2004). Behavior assessment system for children: Second edition (BASC-2). Circle Pines, MN: American Guidance Service.

    Google Scholar 

  • Reyns, T. (2006). Relationship of differentiation in marital satisfaction and stress among parents raising a child with autism. Dissertation Abstracts International, 66, 3957.

  • Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44(7), 1609–1620. doi:10.1007/s10803-013-2028-z.

    Article  PubMed  Google Scholar 

  • Ruble, L. A., Dalrymple, N. J., & McGrew, J. H. (2010). The effects of consultation on individualized education program outcomes for young children with autism: The collaborative model for promoting competence and success. Journal of Early Intervention, 32(4), 286–301. doi:10.1177/1053815110382973.

    Article  PubMed  PubMed Central  Google Scholar 

  • Ruble, L. A., Dalrymple, N. J., & McGrew, J. H. (2012). (COMPASS) (p. 273, xxvii). New York, NY: Springer Science + Business Media.

  • Ruble, L. A., & McGrew, J. H. (2007). Community services outcomes for families and children with autism spectrum disorders. Research in Autism Spectrum Disorders, 1(4), 360–372. doi:10.1016/j.rasd.2007.01.002.

    Article  Google Scholar 

  • Ruble, L. A., & McGrew, J. H. (2015). COMPASS and implementation science: Improving outcomes of children with ASD. New York: Springer.

    Book  Google Scholar 

  • Ruble, L. A., McGrew, J. H., Toland, M. D., Dalrymple, N. J., & Jung, L. A. (2013). A randomized controlled trial of COMPASS web-based and face-to-face teacher coaching in autism. Journal of Consulting and Clinical Psychology. doi:10.1037/a0032003.

    PubMed  PubMed Central  Google Scholar 

  • Sanders, J. L., & Morgan, S. B. (1997). Family stress and adjustment as perceived by parents of children with autism or down syndrome: Implications for intervention. Child and Family Behavior Therapy, 19(4), 15–32. doi:10.1300/J019v19n04_02.

    Article  Google Scholar 

  • Schopler, E., Reichler, R. J., DeVellis, R. F., & Daly, K. (1980). Toward objective classification of childhood autism: Childhood Autism Rating Scale (CARS). Journal of Autism and Developmental Disorders, 10(1), 91–103.

    Article  PubMed  Google Scholar 

  • Smith, L., Greenberg, J., & Seltzer, M. (2012). Social support and well-being at mid-life among mothers of adolescents and adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 42, 1818–1826.

    Article  PubMed  PubMed Central  Google Scholar 

  • Strunk, J. A. (2010). Respite care for families of special needs children: A systematic review. Journal of Developmental and Physical Disabilities, 22(6), 615–630.

    Article  Google Scholar 

  • Stuart, M., & McGrew, J. H. (2009). Caregiver burden after receiving a diagnosis of an autism spectrum disorder. Research in Autism Spectrum Disorders, 3(1), 86–97. doi:10.1016/j.rasd.2008.04.006.

    Article  Google Scholar 

  • Szatmari, P., Archer, L., Fisman, S., & Streiner, D. L. (1994). Parent and teacher agreement in the assessment of pervasive developmental disorders. Journal of Autism and Developmental Disorders, 24(6), 703–717.

    Article  PubMed  Google Scholar 

  • Thomas, K. C., Morrissey, J. P., & McLaurin, C. (2007). Use of autism-related services by families and children. Journal of Autism and Developmental Disorders, 37(5), 818–829.

    Article  PubMed  Google Scholar 

  • Tomanik, S., Harris, G. E., & Hawkins, J. (2004). The relationship between behaviors exhibited by children with autism and maternal stress. Journal of Intellectual and Developmental Disability, 29(1), 16–26. doi:10.1080/13668250410001662892.

    Article  Google Scholar 

  • Tonge, B., Brereton, A., Kiomall, M., MacKinnon, A., King, N., & Rinehart, N. (2006). Effects on parental mental health of an education and skills training program for parents of young children with autism: A randomized controlled trial. Journal of the American Academy of Child and Adolescent Psychiatry, 45(5), 561–569.

    Article  PubMed  Google Scholar 

  • Turnbull, O. H., Zois, E., Kaplan-Solms, K., & Solms, M. (2006). The developing transference in amnesia: Changes in interpersonal relationship, despite profound episodic-memory loss. Neuropsychoanalysis, 8(2), 199–204.

    Article  Google Scholar 

  • Volker, M. A., Lopata, C., Smerbeck, A. M., Knoll, V. A., Thomeer, M. L., Toomey, J. A., & Rodgers, J. D. (2010). BASC-2 prs profiles for students with high-functioning autism spectrum disorders. Journal of Autism and Developmental Disorders, 40(2), 188–199. doi:10.1007/s10803-009-0849-6.

    Article  PubMed  Google Scholar 

  • Young, A., Ruble, L. A., & McGrew, J. H. (2009). Public vs. private insurance: Cost, use, accessibility, and outcomes of services for children with autism spectrum disorders. Research in Autism Spectrum Disorders, 3(4), 1023–1033. doi:10.1016/j.rasd.2009.06.006.

    Article  Google Scholar 

  • Zablotsky, B., Bradshaw, C. P., & Stuart, E. A. (2013). The association between mental health, stress, and coping supports in mothers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(6), 1380–1393. doi:10.1007/s10803-012-1693-7.

    Article  PubMed  Google Scholar 

Download references

Acknowledgments

This work is based on an earlier study and was supported by Grant Numbers R34MH073071 and 1RC1MH089760 from the National Institute of Mental Health. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institute of Mental Health or the National Institutes of Health. We would like to thank the families and special education teachers who participated in the two RCTs of COMPASS.

Author Contributions

TK helped to conceive of the study, participated in the analysis and interpretation of data and drafted the manuscript; YY performed the statistical analysis and interpretation of the data and helped to draft the manuscript; LR and JM conceived of the study, participated in its design and coordination and helped to draft the manuscript. All authors read and approved the final manuscript.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Teri M. Krakovich.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Krakovich, T.M., McGrew, J.H., Yu, Y. et al. Stress in Parents of Children with Autism Spectrum Disorder: An Exploration of Demands and Resources. J Autism Dev Disord 46, 2042–2053 (2016). https://doi.org/10.1007/s10803-016-2728-2

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s10803-016-2728-2

Keywords

Navigation