Abstract
This study investigated the impact of a parent-coaching intervention based on the Early Start Denver Model (P-ESDM) on parenting-related stress and sense of competence. This was part of a multisite, randomized trial comparing P-ESDM (n = 49) with community intervention (n = 49) for children aged 12 and 24 months. The P-ESDM group reported no increase in parenting stress, whereas the Community group experienced an increase over the same 3-month period. Parental sense of competence did not differ. Number of negative life events was a significant predictor of parenting stress and sense of competence across both groups. This suggests that a parent-coaching intervention may help maintain parental adjustment directly after a child is diagnosed with ASD.
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Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Orsmond, G., & Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with autism, Down syndrome, or fragile × syndrome. American Journal of Mental Retardation, 109(3), 237–254.
Baker-Ericzen, M. J., Brookman-Frazee, L., & Stahmer, A. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research and Practice for Persons with Severe Disabilities, 30(4), 194–204.
Barker, E. T., Hartley, S. L., Selzer, M. M., Floyd, F. J., Greenberg, J. S., & Orsmond, G. I. (2011). Trajectories of emotional well-being in mothers of adolescents and adults with autism. Developmental Psychology, 47(2), 551–561.
Bishop, S. L., Guthrie, W., Coffing, M., & Lord, C. (2011). Convergent validity of the Mullen Scales of Early Learning and the Differential Ability Scales in children with autism spectrum disorders. American Journal on Intellectual and Developmental Disabilities, 116, 331–343.
Blacher, J., & McIntyre, L. L. (2006). Syndrome specificity and behavioral disorders in young adults with intellectual disability: Cultural differences in family impact. Journal of Intellectual Disability Research, 50(Pt 3), 184–198.
Brookman-Frazee, L. (2004). Using parent/clinician partnerships in parent education programs for children with autism. Journal of Positive Behavior Interventions, 6(4), 195–213.
Carter, A. S., Messinger, D. S., Stone, W. L., Celimli, S., Nahmias, A. S., & Yoder, P. (2011). A randomized controlled trial of Hanen’s “More Than Words” in toddlers with early autism symptoms. Journal of Child Psychology and Psychiatry, 52(7), 741–752.
Dawson, G., Rogers, S. J., Smith, M., Munson, J., Winter, J., Greenson, J., et al. (2010). Randomized controlled trial of the Early Start Denver Model. Pediatrics, 125, 1–7.
Drew, A., Baird, G., Baron-Cohen, S., Cox, A., Slonims, V., Wheelwright, S., et al. (2002). A pilot randomised control trial of a parent training intervention for pre-school children with autism. European Child and Adolescent Psychiatry, 11, 266–272.
Dumas, J. E., Wolf, L. C., Fisman, S. N., & Culligan, A. (1991). Parenting stress, child behavior problems, and dysphoria in parents of children with autism, Down syndrome, behavior disorders, and normal development. Exceptionality, 2(2), 97–110.
Eisenhower, A. S., Baker, B. L., & Blacher, J. (2005). Preschool children with intellectual disability: Syndrome specificity, behavior problems, and maternal well-being. Journal of Intellectual Disability Research, 49(Pt 9), 657–671.
Elliott, C. D. (1990). Differential Ability Scales. San Antonio, TX: Psychological Corporation.
Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X. H., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13(4), 375–387.
Estes, A., Olson, E., Sullivan, K., Greenson, J., Winter, J., Dawson, G., et al. (2012). Parenting-related stress and psychological distress in mothers of toddlers with autism spectrum disorders. Brain & Development, 35, 133–138. doi:10.1016/j.braindev.2012.10.004.
Feldman, F. A., & Wener, S. E. (2002). Collateral effects of behavioral parent training on families of children with developmental disabilities and behavior disorders. Behavioral Interventions, 17(2), 75–83.
Gallagher, J. J., & Bristol, M. (1989). Families of young handicapped children. In M. C. R. M. C. Wang & H. J. Walberg (Eds.), Handbook of special education: Research and practice (3rd ed., Vol. 3, pp. 295–317). New York: Pergamon.
Gray, D. E. (2003). Gender and coping: The parents of children with high functioning autism. Social Science and Medicine, 56(3), 631–642.
Green, J., Charman, T., McConachie, H., Aldred, C., Slonims, V., Howlin, P., et al. (2010). Parent-mediated communication-focused treatment in children with autism (PACT): A randomised controlled trial. The Lancet, 375, 2152–2160.
Greenberg, J. S., Seltzer, M., Krauss, M., Chou, R. J., & Hong, J. (2004). The effect of quality of the relationship between mothers and adult children with schizophrenia, autism, or Down syndrome on maternal well-being: The mediating role of optimism. American Journal of Orthopsychiatry, 74(1), 14–25.
Hanft, B. E., Rush, D. D., & Shelden, M. L. (2004). Coaching families and colleagues in early childhood. Baltimore, MD: Paul H. Brookes Publishing Co.
Harris, S. L., Wolchik, S. A., & Milch, R. E. (1982). Changing the speech of autistic children and their parents. Child and Family Behavior Therapy, 4, 151–173.
Hastings, R. P., & Brown, T. (2002). Behavior problems of children with autism, parental self-efficacy, and mental health. American Journal of Mental Retardation, 107(3), 222–232.
Hastings, R. P., & Johnson, E. (2001). Stress in UK families conducting intensive home-based behavioral intervention for their young child with autism. Journal of Autism and Developmental Disorders, 31(3), 327–336.
Hertz-Picciotto, I., Croen, L. A., Hansen, R., Jones, C. R., van de Water, J., & Pessah, I. N. (2006). The CHARGE study: an epidemiologic investigation of genetic and environmental factors contributing to autism. Environmental Health Perspectives, 114(7), 1119–1125.
Higgins, D. J., Bailey, S. R., & Pearce, J. C. (2005). Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. Autism, 9(2), 125–137.
Johnston, C., & Mash, E. J. (1989). A measure of parenting satisfaction and efficacy. Journal of Clinical Child Psychology, 18(2), 167–175.
Kasari, C., & Sigman, M. (1997). Linking parental perceptions to interactions in young children with autism. Journal of Autism and Developmental Disorders, 27(1), 39–57.
Koegel, R. L., Bimbela, A., & Schreibman, L. (1996). Collateral effects of parent training on family interactions. Journal of Autism and Developmental Disorders, 26(3), 347–359.
Koegel, R. L., Schreibman, L., Britten, K. R., Burke, J. C., & O’Neill, R. E. (1982). A comparison of parent training to direct child treatment. In R. L. Koegel, A. Rincover, & A. L. Egel (Eds.), Educating and understanding autistic children. San Diego, CA: College-Hill Press.
Konstantareas, M. M., & Homatidis, S. (1989). Assessing child symptom severity and stress in parents of autistic children. Journal of Child Psychology and Psychiatry, 30(3), 459–470.
Konstantareas, M. M., Homatidis, S., & Plowright, C. M. (1992). Assessing resources and stress in parents of severely dysfunctional children through the Clarke modification of Holroyd’s questionnaire on resources and stress. Journal of Autism and Developmental Disorders, 22(2), 217–234.
Kuhn, J. C., & Carter, A. S. (2006). Maternal self-efficacy and associated parenting cognitions among mothers of children with autism. American Journal of Orthopsychiatry, 76(4), 564–575.
Laski, K. E., Charlop, M. H., & Schreibman, L. (1988). Training parents to use the natural language paradigm to increase their autistic children’s speech. Journal of Applied Behavior Analysis, 21, 391–400.
Luyster, R., Gotham, K., Guthrie, W., Coffing, M., Petrak, R., Pierce, K., et al. (2009). The Autism Diagnostic Observation Schedule-Toddler Module: A new module of a standardized diagnostic measure for autism spectrum disorders. Journal of Autism and Developmental Disorders, 39, 1305–1320.
Mak, W. S., Ho, A. H. Y., & Law, R. W. (2007). Sense of coherence, parenting attitudes and stress among mothers of children with autism in Hong Kong. Journal of Applied Research in Intellectual Disabilities, 20(2), 157–167.
McConachie, H., & Diggle, T. (2007). Parent implemented early intervention for young children with autism spectrum disorder: A systematic review. Journal of Evaluation in Clinical Practice, 13, 120–129.
Mullen, E. M. (1997). Mullen scales of early learning. Los Angeles, CA: Western Psychological Services.
Oosterling, I., Visser, J., Swinkels, S., Rommelse, N., Donders, R., Woudenberg, T., et al. (2010). Randomized controlled trial of the focus parent training for toddlers with autism: 1-Year outcome. Journal of Autism and Developmental Disorders, 40, 1447–1458.
Orsmond, G. I., Lin, L., & Selzer, M. M. (2007). Mothers of adolescents and adults with ASD: Parenting multiple children with disabilities. Intellectual and Developmental Disabilities, 45(4), 257–270.
Osborne, L. A., McHugh, L., Saunders, J., & Reed, P. (2008). A possible contra-indication for early diagnosis of Autism Spectrum Conditions: Impact on parenting stress. Research in Autism Spectrum Disorders, 2(4), 707–715.
Rodrigue, J. R., Morgan, S. B., & Geffken, G. (1990). Families of autistic children: Psychological functioning of mothers. Journal of Clinical Child Psychology, 19(4), 371–379.
Rogers, S. J., & Dawson, G. (2010). The Early Start Denver model for young children with autism: Promoting language, learning, and engagement. New York, NY: Guilford Press, 2010.
Rogers, S. J., Dawson, G., Vismara, L. (2012). Unpublished manual, P-ESDM Fidelity Tool.
Rogers, S. J., Estes, A., Lord, C., Vismara, L., Winter, J., Fitzpatrick, A., et al. (2012b). Effects of a brief Early Start Denver Model (ESDM)-based parenting intervention on toddlers at risk for autism spectrum disorders: A randomized controlled trial. Journal of the American Academy of Child and Adolescent Psychiatry, 51(10), 1052–1065.
Rogers, H., & Matthews, J. (2004). The parenting sense of competence scale: Investigation of the factor structure, reliability, and validity for an Australian sample. Australian Psychologist, 39, 88–96.
Salt, J., Shemilt, J. C., Sellars, V., Boyd, S., Coulsdon, T., & McCool, S. (2002). The Scottish Centre for Autism Preschool Treatment Programme II: The results of a controlled treatment outcome study. Autism, 6, 33–46.
Sarason, I., Johnson, J., & Siegal, J. (1978). Assessing the impact of life changes: Development of the live experiences survey. Journal of Consulting and Clinical Psychology, 46, 932–946.
Schreibman, L., Kaneko, W. M., & Koegel, R. L. (1991). Positive affect of parents of parents of autistic children—A comparison across 2 teaching techniques. Behavior Therapy, 22(4), 479–490. doi:10.1016/S0005-7894(05)80340-5.
Schwichtenberg, A., & Poehlmann, J. (2007). Applied behavior analysis: Does intervention intensity relate to family stressors and maternal well-being? Journal of Intellectual Disability Research, 51(8), 598–605.
Shields, J. (2001). The NAS earlybird programme: Partnership with parents in early intervention. Autism, 5, 49–56.
Smith, T., Groen, A., & Wynn, J. W. (2000). Randomized trial of intensive early intervention for children with pervasive developmental disorder. American Journal on Mental Retardation, 104, 269–285.
Smith, L. E., Mailick Seltzer, M., Tager-Flusberg, H., Greenberg, J. S., & Carter, A. S. (2008). A comparative analysis of well-being and coping among mothers of toddlers and mothers of adolescents with ASD. Journal of Autism and Developmental Disorders, 38, 876–889.
Stahmer, A. C., & Gist, K. (2001). The effects of an accelerated parent education program on technique mastery and child outcome. Journal of Positive Behavior Interventions, 3, 75–82.
Tonge, B., Brereton, A., Kiomall, M., Mackinnon, A., King, N., & Rinehart, N. (2006). Effects on parental mental health of an education and skills training program for parents of young children with autism: A randomized controlled trial. Journal of the American Academy of Child and Adolescent Psychiatry, 45(5), 561–569.
VanBelle, H., Fischer, L., Heagerty, P. J., & Lumley, T. (2004). Biostatistics: A methodology for the health sciences (2nd ed., p. 465). New York: Wiley Interscience.
White, N., & Hastings, R. P. (2004). Social and professional support for parents of adolescents with severe intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 17(3), 181–190.
Wong, J. D., Selzer, M., Greenberg, J., et al. (2012). Stressful life events and daily stressors affect awakening cortisol level in midlife mothers of individuals with autism spectrum disorders. Aging and Mental Health, 16(8), 939.
Acknowledgments
We wish to thank the parents, caregivers, and children who participated in this study. This research was supported by Grants from the National Institute of Health (MH81757) and Autism Speaks (1720).
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Estes, A., Vismara, L., Mercado, C. et al. The Impact of Parent-Delivered Intervention on Parents of Very Young Children with Autism. J Autism Dev Disord 44, 353–365 (2014). https://doi.org/10.1007/s10803-013-1874-z
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DOI: https://doi.org/10.1007/s10803-013-1874-z