Abstract
Genetic testing as a preliminary to adoption has been discussed in the literature [BAAF/BSHG Statement on the use of DNA testing to determine racial background], together with the medical benefits derived from such testing ASHG/ACMG Statement [Am J Hum Genetics, 66: 761–767, 2000]. But specific cases that reach court are rare. Such a case was recently discussed on national radio [http://www.bbc.co.uk/radio4/science/ethicscommittee_s4_tr3.shtml], disclosing sufficient facts to allow analysis of the ethical and legal issues encountered. Furthermore, the outcome of the case, a court order to test the child in infancy, can be reviewed in the light of the current law, together with the geneticist’s response to this order.
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References
Marx SJ (2001) MEN type 1. In: Scriver CS et al (eds) Metabolic basis of inherited disease, 8th edn. McGraw Hill, NY, pp 943–966
Morris M, Tyler A, Harper P (1988) Adoption and genetic prediction for Huntington’s disease. Lancet 332:1069–1070
Harper P, Clarke A (1990) Should we test children for ‘adult’ genetic disease? Lancet 335:1205–1207
Adoption and Children Act 2002 s1 (2)
Howe R (1983) Adoption practice, issues, and laws Family. Law Q 2:173–197
Greely H (1999) Ethical and legal issues associated with genetic testing. J Am Coll Surg 188:86–89
Freundlich M (1998) The case against preadoption genetic testing. Child Welfare 7(6):663–679
ASHG/ACMG Statement (2000) Genetic testing in adoption. Am J Hum Genetics 66:761–767
Adoption and Children Act 2002, s1 (4)
Re J (1992) 4 All England Reports 615(CA). (A Minor; Wardship: Medical Treatment)
BAAF/BSHG Statement on the use of DNA testing to determine racial background
http://www.bbc.co.uk/radio4/science/ethicscommittee_s4_tr3.shtml
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Wheeler, R. Predictive testing for pre-malignancy as a prelude to adoption? An English case. Familial Cancer 9, 71–74 (2010). https://doi.org/10.1007/s10689-009-9261-9
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DOI: https://doi.org/10.1007/s10689-009-9261-9