Abstract
While informal caregivers play an important role in improving the health of disadvantaged persons living with HIV/AIDS (PLHAs) in the United States, caregiver role overload has the potential for distress. We used latent profile analysis (LPA) to classify caregivers based on their perceived level of support and structural equation modeling (SEM) to examine the relationships among role overload, perceived support, caregiver demographic characteristics, and social network members’ characteristics in a sample of 215 predominantly low-income, African-American informal caregivers. The LPA resulted in two classes of caregivers with higher and lower perceived support. The SEM results indicated that caregiver role overload was associated with being in the less supported class, younger age, and limited physical functioning, while social support class was associated with being female and being HIV seropositive in addition to support network characteristics. Interventions should address the support needs of HIV caregivers to reduce their potential for distress.
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Messeri P, Lee G, Abramson DM, Aidala A, Chiasson MA, Jessop DJ. Antiretrovial therapy and declining AIDS mortality in New York City. Med Care. 2003;41:512–21.
Palella FJ, Delaney KM, Moorman AC, et al. Declining morbidity and mortality among patients with advanced human immunodeficiency virus infection. New Engl J Med. 2007;338:853–60.
Matheny SC, Mehr LM, Brown GM. Caregivers and HIV infection. Services and issues. Prim Care. 1997;24:677–90.
Knowlton A, Arnsten J, Gourevitch M, et al. Social environmental influences on effective HAART use among active injection drug users: the role of informal caregiving and household factors. J Acquir Immune Defic Syndr. 2007;46(suppl 2):S110–9.
Turner HA, Catania JA. Informal caregiving to persons with AIDS in the United States: caregiver burden among central cities residents eighteen to forty-nine years old. Am J Community Psychol. 1997;25:35–59.
Centers for Disease Control and Prevention, Department of Health and Human Services (2008) HIV prevalence estimates—United States, 2006; MMWR 57:1073–6.
Turner H, Catania J, Gagnon J. The prevalence of informal caregiving to persons with AIDS in the U.S. Soc Sci Med. 1994;38:1543–52.
Knowlton AR. Informal HIV caregiving in a vulnerable population: toward a network resource framework. Soc Sci Med. 2003;56:1307–20.
Moody AL, Morgello S, Gerits P, Byrd D. Vulnerabilities and caregiving in an ethnically diverse HIV-infected population. AIDS Behav. 2009;13:337–47.
Prachakul W, Grant JS. Informal caregivers of persons with HIV/AIDS: a review and analysis. J Assoc Nurses AIDS Care. 2003;14:55–71.
Pearlin LI, Aneshensel CS, Leblanc AJ. The forms and mechanisms of stress proliferation: the case of AIDS caregivers. J Health Soc Behav. 1997;38:223–36.
Pearlin LI, Mullan JT, Semple SJ, Skaff MM. Caregiving and the stress process: an overview of concepts and their measures. Gerontologist. 1990;30:583–91.
Wight RG. Precursive depression among HIV infected AIDS caregivers over time. Soc Sci Med. 2000;51:759–70.
Pirraglia PA, Bishop D, Herman D. Caregiver burden and depression among informal caregivers of HIV-infected individuals. J Gen Intern Med. 2004;20:510–4.
Demi A, Bakeman R, Sowell R, Moneyham L, Seals B. Effects of resources and stressors on burden and depression of family members who provide care to an HIV-infected woman. J Fam Psychol. 1997;11:35–48.
Reynolds NR, Alonzo AA. HIV informal caregiving: emergent conflict and growth. Res Nurs Health. 1998;21:251–60.
Stadjduhar KI. Palliative care at home: reflections on HIV/AIDS family caregiving experiences. J Palliat Care. 1998;14:14–22.
Ward D, Brown MA. Labor and cost in AIDS family caregiving. West J Nurs Res. 1994;16:10–22.
Cobb S. Social support as a moderator of life stress. Psychosom Med. 1976;38:300–14.
Pearlin LI, Radabaugh C. Age and stress: perspectives and problems. In: Hess BH, Markson EW, editors. Growing old in America. 3rd ed. New Brunswick, NJ: Transaction Books; 1985.
Thoits PA. Stress, coping and social support processes: where are we? What next? J Health Soc Behav. 1995. Extra Issue:53–79.
Taylor SE, Klein LC, Gruenewalk TL, Gurung RAR, Fernances-Taylor S. Affiliation, social support, and biobehavioral responses to stress. In Suls J, Wallston KA, editors. Social psychological foundations of health and illness. Malden, MA: Blackwell Publishing; 2003.
Pearlin LI, Lieberman MA, Menaghan EG, Mullan JT. The stress process. J Health Soc Behav. 2007;22:337–56.
Wight RG, Aneshensel CS, LeBlanc AJ. Stress buffering effects of family support in AIDS caregiving. AIDS Care. 2003;15:595–613.
Folkman S, Chesney MA, Cooke M, Boccellari A, Colletter L. Caregiver burden in HIV-positive and HIV-negative partners of men with AIDS. J Consult Clin Psychol. 1994;62:746–56.
Pohl JM, Given CW, Collins CE, Given BA. Social vulnerability and reactions to caregiving in daughters and daughters-in-law caring for disabled aging parents. Health Care Women Int. 1994;15:385–95.
LaRocco J, House J, French J. Social support, occupational stress, and health. J Health Soc Behav. 1980;21:202–18.
Heller K, Price RH, Hogg JR. The role of social support in community and clinical interventions. In Sarason BR, Sarason IG, Pierce GR, editors. Social support: an interactional view. New York: Wiley; 1990.
Purcell DW, Latka MH, Metsch LR, et al. Results from a randomized controlled trial of a peer-mentoring intervention to reduce HIV transmission and increase access to care and adherence to HIV medications among HIV-seropositive injection drug users. J Acquir Immune Defic Syndr. 2007;46(Suppl 2):S35–47.
Radloff S. The CES-D scale: a self-report depression scale for research in the general population. Appl Psychol Meas. 1977;1:385–401.
Reisner SL, Mimiaga MJ, Skeer M, Mayer KH. Beyond anal sex: sexual practices associated with HIV risk reduction among men who have sex with men in Boston, Massacusetts. AIDS Patient Care STD. 2009;23:545–50.
Schackman BR, Dastur Z, Quanhong N, Callahan MA, Berger J, Rubin DS. Sexually active HIV-positive patients frequently report never using condoms in audio computer-assisted self-interviews conducted at routine clinical visits. AIDS Patient Care STD. 2008;22:123–9.
Cohen MH, Fabri M, Cai X, et al. Prevalence and predictors of posttraumatic stress disorder and depression in HIV-infected and at-risk Rwandan women. J Womens Health. 2009;18:1783–91.
Lawton MP, Brody EM. Assessment of older people: self-maintaining and instrumental activities of daily living. Gerontologist. 1969;9:179–86.
Muthén LK, Muthén B. Mplus user’s guide. Los Angeles: Muthén & Muthén; 2008.
Hancock GR, Mueller RO. Rethinking construct reliability within latent variable systems. In Cudeck R, du Toit S, Sőrbom D, editors. Structural equation modeling: present and future—Festschrift in honor of Karl Jőreskog. Lincolnwood, IL: Scientific Software International, Incorporated; 2001.
McCutcheon AL. Latent class analysis. Newbury Park, CA: Sage; 1987.
Sclove LS. Applications of model-selection criteria to some problems in multivariate analysis. Psychometricka. 1987;52:333–43.
Lo Y, Mendell NR, Rubin DB. Testing the number of components in a normal mixture. Biometrika. 2001;88:767–78.
Muthen B. Latent variable analysis: growth mixture modeling and related techniques for longitudinal data. In Kaplan D, editor. The sage handbook of quantitative methodology for the social sciences. Thousand Oaks: Sage; 2004. p. 345–368.
Nylund KL, Asparouhov T, Muthen B. Deciding on the number of classes in latent class analysis and growth mixture modeling: a Monte Carlo simulation study. Struct Equ Model. 2007;14:535–69.
Loehlin JC. Latent variable models: an introduction to factor, path, and structural analysis. 3rd ed. Mahwah, NJ: Lawrence Erlbaum Associates, Publishers; 1998.
Tabachnick BG, Fidell LS. Using multivariate statistics. 4th ed. Boston, MA: Allyn and Bacon; 2001. p. 653–771.
Clark SL, Muthén B. Relating latent class analysis results to variables not included in the analysis. http://www.statmodel.com/download/relatinglca.pdf. Accessed 18 Apr 2010.
Wight RG, Beals D, Miller-Martinez D, Murphy DA, Aneshensel CS. HIV-related traumatic stress symptoms in AIDS caregiving family dyads. AIDS Care. 2007;19:901–9.
Flaskerud JH, Tabora B. Health problems of low-income female caregivers of adults with HIV/AIDS. Health Care Women Int. 1998;19:23–6.
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This study was supported by the National Institute of Drug Abuse grant RO1 DA13142-01A1.
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Mitchell, M.M., Knowlton, A. Caregiver Role Overload and Network Support in a Sample of Predominantly Low-Income, African-American Caregivers of Persons Living with HIV/AIDS: A Structural Equation Modeling Analysis. AIDS Behav 16, 278–287 (2012). https://doi.org/10.1007/s10461-011-9886-1
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DOI: https://doi.org/10.1007/s10461-011-9886-1