Abstract
Aim
Little is known about the duration of untreated illness (DUI) in anorexia nervosa (AN) and the factors which predict a later initiation of treatment. Practitioners emphasize the importance of a lack of insight into the disorder as well as treatment motivation; however, this has not yet been empirically investigated. This study aimed to quantify the mean DUI in AN and to identify predictors of late treatment initiation.
Subject and methods
Female patients with AN completed a survey and a semi-structured interview. Data about eating pathology (SCID- eating disorder section), sociodemographic variables (e.g. level of education, health insurance status) and personality styles (PSSI-K) were examined. A multivariate Poisson regression was used to identify predictors of late treatment initiation.
Results
The sample consisted of 58 female AN patients (mean age = 22.3 years, SD = 7.8). The results revealed a mean DUI of 31.8 months (SD = 71.4) and the strongest predictors of late treatment initiation were a statutory health insurance, health-care-system-related factors (e.g. waiting periods) as well as a lack of insight into the disorder and treatment motivation.
Conclusion
A substantial time passes between the onset of the disorder and the beginning of recommended treatment in AN patients due to external (e.g. health insurance status) and internal (lack of insight into the disorder) reasons. Public health interventions are needed and should be optimised to be specific to target groups (e.g. according to age, parents and/or peers) to improve awareness of AN, facilitate insight into the disorder, increase knowledge about treatment options and the motivation to initiate treatment as well as to optimize patient flow into specialist care.
Similar content being viewed by others
Abbreviations
- AN:
-
Anorexia nervosa
- DUI:
-
Duration of untreated illness
- IDD:
-
Insight into the disorder
References
American Psychiatric Association (2013) Diagnostic and statistical manual of mental disorders, fifth edition (DSM-5). American Psychiatric Association, Arlington, VA
Arnett JJ (2000) Emerging adulthood: a theory of development from the late teens through the twenties. Am Psychol 55(5):469–480
Berkman ND, Lohr KN, Bulik CM (2007) Outcomes of eating disorders: a systematic review of the literature. Int J Eat Disord 40(4):293–309
Brannan AM, Heflinger CA (2006) Caregiver, child, family and service system contributors to caregiver strain in two child mental health service systems. J Behav Health Serv Res 33(4):408–422
Bussolotti D, Fernandez-Aranda F, Solano R, Jimenez-Murcia S, Turon V, Vallejo J (2002) Marital status and eating disorders: an analysis of its relevance. J Psychosom Res 53(6):1139–1145
Cassin SE, von Ranson KM (2005) Personality and eating disorders: a decade in review. Clin Psychol Rev 25(7):895–916
Ciarapica D, Mauro B, Zaccaria M, Cannella C, Polito A (2010) Validity of self-reported body weight and height among women including patients with eating disorders. Eat Weight Disord 15(1–2):74–80
Clinton D (2001) Expectations and experiences of treatment in eating disorders. Eat Disord 9(4):361–371
Dilling H, Mombour W, Schmidt MH (eds) (2005) Internationale Klassifikation psychischer Störungen. ICD-10 Kapitel V (F). Klinisch-diagnostische Leitlinien, 9th edn. Huber, Bern, Switzerland
Geenfeld DG, Anyan WR, Hobart M, Quinlan DM, Plantes M (1991) Insight into illness and outcome in anorexia nervosa. Int J Eat Disord 10(1):101–109
Gruber S, Kiesel M (2010) Inequality in health care utilization in Germany? Theoretical and empirical evidence for specialist consultation. J Public Health 18(4):351–365
Guarda AS (2008) Treatment of anorexia nervosa: insights and obstacles. Physiol Behav 94(1):113–120
Hach I, Ruhl UE, Rentsch A, Becker ES, Türke V, Margraf J, Kirch W (2005) Recognition and therapy of eating disorders in young women in primary care. J Public Health 13(3):160–165
Härter M, Kentgens M, Brandes A, Bock T, Dirmaier J, Erzberger M, Furstenberg W, Hillebrandt B, Karow A, von dem Knesebeck O, Konig HH, Löwe B, Meyer HJ, Romer G, Rouhiainen T, Scherer M, Thomasius R, Watzke B, Wegscheider K, Lambert M (2012) Rationale and content of psychenet: the Hamburg Network for Mental Health. Eur Arch Psychiatry Clin 262(2):57–63
Herpertz S, Herpertz-Dahlmann B, Fichter M, Tuschen-Caffier B, Zeeck A (eds) (2011) S3 guideline: the diagnosis and treatment of eating disorders. Springer, Heidelberg, Germany
Herzog DB, Greenwood DN, Dorer DJ, Flores AT, Ekeblad ER, Richards A, Blais MA, Keller MB (2000) Mortality in eating disorders: a descriptive study. Int J Eat Disord 28(1):20–26
Hubert T, Pioggiosi P, Huas C, Wallier J, Maria AS, Apfel A, Curt F, Falissard B, Godard N (2013) Drop-out from adolescent and young adult inpatient treatment for anorexia nervosa. Psychiatry Res 209(3):632–637
Issakidis C, Andrews G (2004) Pretreatment attrition and dropout in an outpatient clinic for anxiety disorders. Acta Psychiatr Scand 109:426–433
Keel PK, Dorer DJ, Eddy KT, Franko D, Charatan DL, Herzog DB (2003) Predictors of mortality in eating disorders. JAMA Psychiatry 60(2):179–183
Keller A, Baune BT (2005) Impact of social factors on health status and help seeking behavior among migrants and Germans. J Public Health 13(1):22–29
Kuhl J, Kazén M (2009) Persönlichkeitsstil und -störungs-Inventar (PSSI). Manual. Hogrefe, Göttingen, Germany
Lindert J, Schouler-Ocak M, Heinz A, Priebe S (2008) Mental health, health care utilisation of migrants in Europe. Eur Psychiatry 1:14–20
Löwe B, Zipfel S, Buchholz C, Dupont Y, Reas DL, Herzog W (2001) Long-term outcome of anorexia nervosa in a prospective 21-year follow-up study. Psychol Med 31(5):881–890
Lungen M, Stollenwerk B, Lauterbach KW, Gerber A (2008) Waiting times for elective treatments according to insurance status: a randomized empirically study in Germany. Int J Equity Health 7:1–7
Perez-Rodriguez MM, Baca-Garcia E, Quintero-Gutierrez FJ, Gonzalez G, Saiz-Gonzalez D, Botillo C, Basurte-Villamor I, Sevilla J, Gonzalez de Rivera JL (2006) Demand for psychiatric emergency services and immigration: findings in a Spanish hospital during the year 2003. Eur J Public Health 16(4):383–387
Reibling N, Wendt C (2010) Access to health care by level of education: a comparative analysis of access regulation and utilisation of specialist healthcare in Europe. Gesundheitswesen 72(8–9):447–454
Saccomani L, Savoini M, Cirrincione M, Vercellino F, Ravera G (1998) Long-term outcome of children and adolescents with anorexia nervosa: study of comorbidity. J Psychosom Res 44(5):565–571
Saß H, Wittchen HU, Zaudig M (2003) Diagnostisches und statistisches Manual psychischer Störungen - DSM-IV-TR. Text Revision Hogrefe, Göttingen, Germany
Schoemaker C (1997) Does early intervention improve the prognosis in anorexia nervosa? A systematic review of the treatment-outcome literature. Int J Eat Disord 21(1):1–15
Steinhausen HC (2002) The outcome of anorexia nervosa in the 20th century. Am J Psychiatry 159(8):1284–1293
Tasca GA, Keating L, Maxwell H, Hares S, Trinneer A, Barber AM, Bradwejn J, Bissada H (2012) Predictors of treatment acceptance and of participation in a randomized controlled trial among women with anorexia nervosa. Eur Eat Disord Rev 20(2):155–161
Tierney S, Fox JR (2009) Chronic anorexia nervosa: a Delphi study to explore practitioners’ views. Int J Eat Disord 42(1):62–67
Trusler K, Doherty C, Mullin T, Gant S, McBride J (2006) Waiting times for primary care, psychological therapy and counselling services. Couns Psychother Res J 6(1):23–32
Vandereycken W (2006) Denial of illness in anorexia nervosa: a conceptual review—part 1, diagnostic significance and assessment. Eur Eat Disord Rev 14:341–351
Vandereycken W, Van Humbeeck I (2008) Denial and concealment of eating disorders: a retrospective survey. Eur Eat Disord Rev 16(2):109–114
Vitousek KB, Daly J, Heiser C (1991) Reconstructing the internal world of the eating-disordered individual: overcoming denial and distortion in self-report. Int J Eat Disord 10(6):647–666
Walendzik A, Rabe-Menssen C, Lux G, Wasem J, Jahn R (2013) The health-care situation in outpatient psychiatry: results of a survey among members of the Germany Association Pf psychotherapists (DPtV). Gesundheitswesen 76(3):135–146
Willi J, Limacher B, Helbling P, Nussbaum P (1989) 10-Jahres-Katamnese der 1973–1975 im Kanton Zürich erstmals hospitalisierten Anorexie-Fälle. Schweiz Med Wochenschr 119:147–155
Wittchen HU, Zaudig M, Fydrich T (1997) Strukturiertes klinisches Interview für DSM-IV. Hogrefe, Göttingen, Germany
Zipfel S, Löwe B, Reas DL, Deter HC, Herzog W (2000) Long-term prognosis in anorexia nervosa: lessons from a 21-year follow-up study. Lancet 355(9205):721–722
Zipfel S, Seibel MJ, Löwe B, Beumont PJ, Kasperk C, Herzog W (2001) Osteoporosis in eating disorders: a follow-up study of patients with anorexia and bulimia nervosa. J Clin Endocrinol Metab 86(11):5227–5233
Acknowledgements
The authors have no competing interests to report. The study is part of a health service research project in the Hamburg Metropolitan Area (psychenet) which is funded by the German Federal Ministry of Education and Research (ISRCT N44979231; subproject Anorexia and Bulimia Nervosa; Principal Investigator: Bernd Löwe). We would like to thank Alexandra Murray for her comments on the manuscript.
Author information
Authors and Affiliations
Corresponding author
Rights and permissions
About this article
Cite this article
Weigel, A., Rossi, M., Wendt, H. et al. Duration of untreated illness and predictors of late treatment initiation in anorexia nervosa. J Public Health 22, 519–527 (2014). https://doi.org/10.1007/s10389-014-0642-7
Received:
Accepted:
Published:
Issue Date:
DOI: https://doi.org/10.1007/s10389-014-0642-7