References
de Moor JS, Mariotto AB, Parry C, Alfano CM, Padgett L et al (2013) Cancer survivors in the United States: prevalence across the survivorship trajectory and implications for care. Cancer Epidemiol Biomark Prev 22:561–570
Harrington CB, Hansen JA, Moskowitz M, Todd BL, Feuerstein M (2010) It’s not over when it’s over: long-term symptoms in cancer survivors—a systematic review. Int J Psychiatry Med 40:163–181
Harrison JD, Young JM, Price MA, Butow PN, Solomon MJ (2009) What are the unmet supportive care needs of people with cancer? A systematic review. Support Care Cancer 17(8):1117–1128
Hewitt ME, Ganz P, Institute of Medicine (U.S.) & American Society of Clinical Oncology (2006) From cancer patient to cancer survivor: lost in transition. National Academies Press, Washington, DC
Leach CR, Weaver KE, Aziz NM, Alfano CM, Bellizzi KM et al (2015) The complex health profile of long-term cancer survivors: prevalence and predictors of comorbid conditions. J Cancer Surviv 9:239–251
Schwartz KL, Crossley-May H, Vigneau FD, Brown K, Banerjee M (2003) Race, socioeconomic status and stage at diagnosis for five common malignancies. Cancer Causes Control 14(8):761–766
DeSantis CE, Siegel RL, Sauer AG, Miller KD, Fedewa SA et al (2016) Cancer statistics for African Americans, 2016: progress and opportunities in reducing racial disparities. Cancer statistics for African Americans. CA. Cancer J Clin 66:290–308
Alfano CM, Smith T, de Moor JS, Glasgow RE, Khoury MJ et al (2014) An action plan for translating cancer survivorship research into care. JNCI J Natl Cancer Inst 106 dju287
Ashing-Giwa K, Tapp C, Brown S, Fulcher G, Smith J et al (2013) Are survivorship care plans responsive to African-American breast cancer survivors? J Cancer Surviv 7(3):283–291
Jabson JM, Bowen DJ (2013) Cancer treatment summaries and follow-up care instructions: which cancer survivors receive them? Cancer Causes Control 24(5):861–871
Adler NE, Page A Institute of Medicine (U.S.) and Committee on Psychosocial Services to Cancer Patients/Families in a Community Setting, cancer care for the whole patient: meeting psychosocial health needs. National Academies Press, Washington, DC
Moghaddam N, Coxon H, Nabarro S, Hardy B, Cox K (2016) Unmet care needs in people living with advanced cancer: a systematic review. Support Care Cancer 24(8):3609–3622
Palmer NRA, Weaver KE, Hauser SP, Lawrence JA, Talton J et al (2015) Disparities in barriers to follow-up care between African American and White breast cancer survivors. Support Care Cancer 23(11):3201–3209
Blinder VS, Norris VW, Peacock NW, Griggs JI, Harrington DP et al (2013) Patient perspectives on breast cancer treatment plan and summary documents in community oncology care: a pilot program. Cancer 119:164–172
Howell D, Mayo S, Currie S, Jones G, Boyle M et al (2012) Psychosocial health care needs assessment of adult cancer patients: a consensus-based guideline. Support Care Cancer 20(12):3343–3354
Ligibel JA, Denlinger CS (2013) New NCCN guidelines® for survivorship care. J Natl Compr Cancer Netw 11:640–644
Halpern MT, Viswanathan M, Evans TS, Birken SA, Basch E, Mayer DK (2014) Models of cancer survivorship care: overview and summary of current evidence. J Oncol Pract 11:e19–e27
Heitzmann CA, Merluzzi TV, Jean-Pierre P, Roscoe JA, Kirsh KL, Passik SD (2011) Assessing self-efficacy for coping with cancer: development and psychometric analysis of the brief version of the Cancer Behavior Inventory (CBI-B). Psychooncology 20(3):302–312
Anderson RM (1995) Revisiting the behavioral model and access to medical care: does it matter? J Health Soc Behav 36:1
Sloan JA, Zhao X, Novotny PI, Wampfler J, Garces Y et al (2012) Relationship between deficits in overall quality of life and non-small-cell lung cancer survival. J Clin Oncol 30(13):1498–1504
Riessman CK (2008) Narrative methods for the human sciences. SAGE Publications, Inc., Los Angeles, CA
Muhr T (2013) ATLAS.ti. ATLAS.ti Scientific Software Development GmbH, Berlin, Germany
National Comprehensive Cancer Network (NCCN). NCCN Distress Thermometer. Available at: https://www.nccn.org/patients/resources/life_with_cancer/pdf/nccn_distress_thermometer.pdf
Mollica M, Nemeth L (2013) Spirituality measurement in African American cancer survivors: a critical literature review. J Holist Nurs 31(3):214–225
Gale NK, Heath G, Cameron E, Rashid S, Redwood S (2013) Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Med Res Methodol 13(1):117
Jung M, Ramanadhan S, Viswanath K (2013) Effect of information seeking and avoidance behavior on self-rated health status among cancer survivors. Patient Educ Couns 92(1):100–106
Matsuyama RK, Kuhn LA, Molisani A, Wilson-Genderson MC (2013) Cancer patients’ information needs the first nine months after diagnosis. Patient Educ Couns 90(1):96–102
Beckjord EB, Arora NK, McLaughlin W, Oakley-Girvan I, Hamilton AS, Hesse BW (2008) Health-related information needs in a large and diverse sample of adult cancer survivors: implications for cancer care. J Cancer Surviv 2(3):179–189
Shea-Budgell MA, Kostaras X, Myhill KP, Hagen NA (2014) Information needs and sources of information for patients during cancer follow-up. Curr Oncol 21(4):165–173
Gallicchio L, Calhoun C, Helzlsouer KJ (2014) Association between race and physical functioning limitations among breast cancer survivors. Support Care Cancer 22(4):1081–1088
Schmidt H, Merkel D, Koehler M, Flechtner H, Sigle J et al (2016) PRO-ONKO—selection of patient-reported outcome assessments for the clinical use in cancer patients—a mixed-method multicenter cross-sectional exploratory study. Support Care Cancer 24(6):2503–2512
Barr V, Robinson S, Marin-Link B, Underhill L, Dotts A et al (2003) The expanded chronic care model: an integration of concepts and strategies from population health promotion and the chronic care model. Health Q 7(1):73–82
McCorkle R, Ercolano E, Lazenby M, Schulman-Green D, Schilling LS et al (2011) Self-management: enabling and empowering patients living with cancer as a chronic illness. CA Cancer J Clin 61(1):50–62
Lorig KR, Holman HR (2003) Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med 26(1):1–7
Funk R, Cisneros C, Williams RC, Kendall J, Hamann HA (2016) What happens after distress screening? Patterns of supportive care service utilization among oncology patients identified through a systematic screening protocol. Support Care Cancer 24:2861–2868
Simard S, Thewes B, Humphris G, Dixon M, Hayden C et al (2013) Fear of cancer recurrence in adult cancer survivors: a systematic review of quantitative studies. J Cancer Survivor 7(3):300–322
Lebel S, Maheu C, Lefebvre M, Secord S, Courbasson C et al (2014) Addressing fear of cancer recurrence among women with cancer: a feasibility and preliminary outcome study. J Cancer Surviv 8(3):485–496
Oancea SC, Cheruvu VK (2016) Psychological distress among adult cancer survivors: importance of survivorship care plan. Support Care Cancer epub online ahead of print June 4, 2016
Acknowledgements
This research was supported by grant number P20 CA 144809 and 5U54 CA 163066 from the National Cancer Institute. The authors thank Renee Ashworth, Amaka Okafor, and Kristin Carson for their assistance with this project.
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All procedures performed in this study were in accordance with the ethical standards of the Institutional Review Boards of Meharry Medical Center, Vanderbilt University Medical Center, and Tennessee State University.
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Steven Wolff is deceased
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Selove, R., Foster, M., Wujcik, D. et al. Psychosocial concerns and needs of cancer survivors treated at a comprehensive cancer center and a community safety net hospital. Support Care Cancer 25, 895–904 (2017). https://doi.org/10.1007/s00520-016-3479-5
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DOI: https://doi.org/10.1007/s00520-016-3479-5