Abstract
Purpose
National Cancer Control Plans (NCCPs) often describe structural requirements for high quality cancer care. During the fourth European Roundtable Meeting (ERTM) participants shared learnings from their own national setting to formulate best practice in optimizing communication strategies between parties involved in clinical cancer registries, cancer centers and guideline groups.
Results
A decentralized model of data collection close to the patient and caregiver enhances timely completion and the quality of the data captured. Nevertheless, central coordination is necessary to define datasets, indicators, standard settings, education, training and quality control to maintain standards across the network. In particular, interaction of parties in cancer care network has to be established and maintained on a regular basis.
Conclusion
After establishing the structural requirements of cancer care networks, communication between the different components and parties is required to analyze outcome data, provide regular reporting to all and develop strategies for continuous improvement of quality across the network.
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Acknowledgements
List of all participants
Association of European Cancer Leagues: Prof. Dr. Sakari Karjalainen, President of the Association of European Cancer Leagues, Secretary General, Cancer Society Finland, Helsinki, Finland
European Commission: Manola Bettio, Group Leader, Directorate General Joint Research Centre, Ispra, Italy, Dr. Stefan Schreck, Head of the Health Programme and Chronic Diseases’ Unit of the Directorate General for Health and Food Safety (DG-SANTE), Luxembourg
France: Dr. Freddy Bray, Head of Section of Cancer Surveillance, International Agency for Research on Cancer, Lyon
Slovenia: Prof. Dr. Tit Albreht, Head of the Centre for Health Care—National Institute of Public Health, Lubljana
Sweden: Prof. Dr. Ulrik Ringborg, Chairperson of the EUROCAN Platform, Director Cancer Center Karolinska, Stockholm
Switzerland/Global: Dr. Julie Torode, Deputy CEO, Advocacy and Networks Director, Union for International Cancer Control (UICC), Geneva
The Netherlands: Prof. Dr. Jan-Willem Coebergh, former Head of the Department of Public Health, Erasmus MC Rotterdam, Prof. Dr. Sabine Siesling, Dept. of Registration and Research, Comprehensive Cancer Care Centre of the Netherlands, Utrecht
United Kingdom: Prof. Dr. Henrik Møller, Head of Cancer Epidemiology, King’s College, London
Germany: Dr. Johannes Bruns, Secretary-General of the German Cancer Society, Berlin, Dr. Markus Follmann MPH MSc, Section Director Guidelines, German Cancer Society, Germany, Dr. Ulrike Helbig MBA, General Manager Section A, German Cancer Society, Berlin, Prof. Dr. Andreas Hochhaus, Board Member of the German Cancer Society, Director Dept. Haematology and Clinical Oncology, Director of the University Tumor Centre Jena, PD Dr. Monika Klinkhammer-Schalke, Director Tumor Centre Regensburg, Managing Board Member German Tumor Centres Work Group, Berlin, Dr. Christoph Kowalski, Research Coordination Certification, German Cancer Society, Berlin, Prof. Dr. Margarete Landenberger, Institute of Health and Nursing Science, Medical Faculty of Martin-Luther University Halle-Wittenberg, Halle (Saale), Prof. Dr. Florian Lordick, Board Member of the German Cancer Society, Director of the University Cancer Centre Leipzig (UCCL), Prof. Dr. Olaf Ortmann, Vice President of the German Cancer Society, Director Department Gynaecology and Obstetrics, University Medical Center Regensburg, Dr. Simone Wesselmann MBA, Section Director Certification, German Cancer Society, Berlin.
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OO: manuscript writing, editing. UH: manuscript writing, editing. JT: manuscript writing, editing. SS: manuscript writing, editing. SK: manuscript writing, editing. MB: manuscript writing, editing. UR: manuscript writing, editing. MK: manuscript writing, editing. FB: manuscript writing, editing.
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Author U. Helbig M. D. declares that she has no conflict of interest. Author J. Torode declares that she has no conflict of interest. Author O. Ortmann M.D. declares that he has no conflict of interest. Author S. Schreck declares that he has no conflict of interest. Author S. Karjalainen declares that he has no conflict of interest. Author M. Bettio declares that she has no conflict of interest. Author U. Ringborg declares that he has no conflict of interest. Author M. Klinkhammer-Schalke declares that she has no conflict of interest. Author F. Bray declares that he has no conflict of interest. This article does not contain any studies with human participants or animals performed by any of the authors.
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Ortmann, O., Helbig, U., Torode, J. et al. Quality control and improvement of cancer care: what is needed? 4th European Roundtable Meeting (ERTM) May 5th, 2017, Berlin, Germany. J Cancer Res Clin Oncol 144, 1097–1102 (2018). https://doi.org/10.1007/s00432-018-2638-0
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DOI: https://doi.org/10.1007/s00432-018-2638-0