Abstract
Purpose
The aim of the German Network for Congenital Uro-REctal Malformations (CURE-Net) is to collect data of affected patients with anorectal malformation (ARM) to investigate molecular causes, clinical implications and psychosocial outcome. The current issue was to examine sexual function and to explore psychosocial adaptation in adults with ARM.
Methods
This qualitative study using narrative inquiry is part of a larger multi-center study of clinical queries and quality of life in patients with ARM. The guided interview focused on analysis of sexual function.
Results
55 adult patients with ARM (23 females, 32 males, median age 23 years, range from 18 to 56 years) were investigated via standardized case-report forms comprising interview, analysis of medical data and personal questionnaires. In the female patients, 8 (35 %) of them lived alone and 15 (65 %) had sexual intercourse. In the male patients, the majority of 20 (69 %) patients lived alone and 13 (45 %) had sexual intercourse. 6 of the females got pregnant, 5 got 2 or more children. 3 of the men induced 2 or more pregnancies and fathered children.
Conclusion
Besides reconstructing the ARM, another main goal is the preservation of sexual function. According to our data, there seems to be a close relationship between psychosocial development and sexual activity.
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References
Rintala R, Mildh L, Lindahl H (1994) Fecal continence and quality of life for adult patients with an operated high or intermediate anorectal malformation. J Ped Surg 29(No 6):777–780
Konuma K, Ikawa H, Kohno M, Okamoto S, Masuyama H, Fukumoto H (2006) Sexual problems in male patients older than 20 years with anorectal malformations. J Ped Surg 41:306–309
Teitler J (2002) Trends in youth sexual initiation and fertility in developed countries: 1960–1995. Ann AAPSS 580:134–152
Glass C, Soni B (1999) Sexual problems of disabled patients. Br Med J 318:518–521
LeVay S, Valents SH (2003) Human Sexuality, Chapter 12. Sinauer Associates, Sunderland
Pruzinsky T, Cash TF (1990) Integrative themes in body-image development, deviance, and change. In: Cash TF, Pruzinsky T (eds) Body images: development, deviance, and change. Guilford Press, New York, pp 337–349
Wiederman MW, Pryor T (1997) Body dissatisfaction and sexuality among women with bulimia nervosa. Int J Eat Disord 21:361–365
Warne SA, Wilcox DT, Creighton S et al (2003) Long-term gynecological outcome of patients with persistent cloaca. J Urol 170:1493–1496
Bong GW, Rover ES (2007) Sexual health in adult men with spina bifida the scientific world journal: TSW. Urology 7:1466–1469. doi:10.1100/tsw.2007.191
Schneider W (1987) Psychosoziale Entwicklungsbedingungen von Kindern und Jugendlichen mit einer organisch bedingten analen Inkontinenz. Praxis Kinderpsychologie und Kinderpsychiatrie 36:56–62
Noeker M (2010) Adaptation und Lebensqualität bei Anorektalen Malformationen: Empirische Befunde, theoretisches Modell, psychodiagnostische Erfassung und verhaltensmedizinische Intervention. Prax Kinderpsychol Kinderpsychiatr 1:52–70
Winter S, Märzheuser S, Schmidt D, Jelen-Mauboussin A, Lenz K, Noeker M (2012) Anwendung der Operationalisierten Psychodynamischen Diagnostik im Kindes- und Jugendalter bei somatischer Krankheit. Eine Pilotstudie bei Patienzten mit Anorektaler malformation. Psychother Psych Med 62:1–7. doi:10.1055/s-0032-1314784
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D. Schmidt and S. Winter contributed equally to this work.
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Schmidt, D., Winter, S., Jenetzky, E. et al. Sexual function in adults with anorectal malformation: psychosocial adaptation. German Network for Congenital Uro-REctal Malformations (CURE-Net). Pediatr Surg Int 28, 789–792 (2012). https://doi.org/10.1007/s00383-012-3119-1
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DOI: https://doi.org/10.1007/s00383-012-3119-1