Abstract
Purpose
This study sought to examine trends in non-help-seeking for mental disorders among persons with a prevalent mental disorder (12-month prevalence) in Germany between 1997–1999 and 2009–2012.
Methods
We examined data from 1909 persons aged 18–65 years who participated in two independent, repeated cross-sectional surveys (German National Interview and Examination Study 1997–1999, German Health Interview and Examination Survey for Adults 2009–2012) conducted 12 years apart. Prevalent mental disorders (12-month prevalence) were determined using the Composite International Diagnostic Interview, which included information on lifetime help-seeking for mental health problems. Correlates of self-reported help-seeking were analyzed according to Andersen’s Behavioral Model. Multivariable Poisson regression models were used to assess time trends in the directly standardized and model-adjusted prevalence of non-help-seeking across strata of socio-economic and clinical variables.
Results
The proportion of people with a prevalent mental disorder who have never sought help in their lifetime decreased significantly from 62% (95% CI 58.7–64.7) to 57% (95% CI 52.2–60.9) between 1997–1999 and 2009–2012 in adults aged 18–65 years in Germany. Downward trends in non-help-seeking occurred in all investigated strata and reached statistical significance in women, in people who were living alone, people with medium educational level, people living in middle-sized communities, people with non-statutory health insurance, smokers, and people with co-existing somatic conditions.
Conclusion
Despite a downward trend over the course of 12 years, a large proportion of people suffering from mental disorders are still not seeking treatment in Germany. Further efforts to increase uptake of help-seeking for mental disorders in hard-to-reach groups are warranted to continue this trend.
Similar content being viewed by others
References
Alonso J, Codony M, Kovess V, Angermeyer MC, Katz SJ, Haro JM et al (2007) Population level of unmet need for mental healthcare in Europe. Br J Psychiatry 190:299–306
Wittchen HU, Jacobi F, Rehm J, Gustavsson A, Svensson M, Jonsson B et al (2011) The size and burden of mental disorders and other disorders of the brain in Europe 2010. Eur Neuropsychopharmacol 21:655–679
OECD (2014). Making mental health count. The social and economic costs of neglecting mental health care. doi:10.1787/9789264208445-en
Mack S, Jacobi F, Gerschler A, Strehle J, Hofler M, Busch MA et al (2014) Self-reported utilization of mental health services in the adult German population—evidence for unmet needs? Results of the DEGS1-Mental Health Module (DEGS1-MH). Int J Methods Psychiatr Res 23:289–303
de Graaf R, ten Have M, van Gool C, van Dorsselaer S (2012) Prevalence of mental disorders and trends from 1996 to 2009. Results from the Netherlands Mental Health Survey and Incidence Study-2. Soc Psychiatry Psychiatr Epidemiol 47:203–213
Bunting B, Murphy S, O’Neill S, Ferry F (2013) Prevalence and treatment of 12-month DSM-IV disorders in the Northern Ireland study of health and stress. Soc Psychiatry Psychiatr Epidemiol 48:81–93
de Girolamo G, Dagani J, Purcell R, Cocchi A, McGorry PD (2012) Age of onset of mental disorders and use of mental health services: needs, opportunities and obstacles. Epidemiol Psychiatr Sci 21:47–57
Andrade LH, Alonso J, Mneimneh Z, Wells JE, Al-Hamzawi A, Borges G et al (2014) Barriers to mental health treatment: results from the WHO World Mental Health surveys. Psychol Med 44:1303–1317
Harris MG, Baxter AJ, Reavley N, Diminic S, Pirkis J, Whiteford HA (2016) Gender-related patterns and determinants of recent help-seeking for past-year affective, anxiety and substance use disorders: findings from a national epidemiological survey. Epidemiol Psychiatr Sci 25:548–561
ten Have M, de Graaf R, Ormel J, Vilagut G, Kovess V, Alonso J (2010) Are attitudes towards mental health help-seeking associated with service use? Results from the European Study of Epidemiology of Mental Disorders. Soc Psychiatry Psychiatr Epidemiol 45:153–163
Jorm AF, Korten AE, Jacomb PA, Christensen H, Rodgers B, Pollitt P (1997) “Mental health literacy”: a survey of the public’s ability to recognise mental disorders and their beliefs about the effectiveness of treatment. Med J Aust 166:182–186
Codony M, Alonso J, Almansa J, Bernert S, de Girolamo G, de Graaf R et al (2009) Perceived need for mental health care and service use among adults in Western Europe: results of the ESEMeD project. Psychiatr Serv 60:1051–1058
Schomerus G, Auer C, Rhode D, Luppa M, Freyberger HJ, Schmidt S (2012) Personal stigma, problem appraisal and perceived need for professional help in currently untreated depressed persons. J Affect Disord 139:94–97
Alonso J, Angermeyer MC, Bernert S, Bruffaerts R, Brugha TS, Bryson H et al (2004) Prevalence of mental disorders in Europe: results from the European Study of the Epidemiology of Mental Disorders (ESEMeD) project. Acta Psychiatr Scand 109:21–27
ten Have M, de Graaf R, van Dorsselaer S, Beekman A (2013) Lifetime treatment contact and delay in treatment seeking after first onset of a mental disorder. Psychiatr Serv 64:981–989
Salize HJ, Rossler W, Becker T (2007) Mental health care in Germany: current state and trends. Eur Arch Psychiatry Clin Neurosci 257:92–103
Busse R, Blümel M (2014) Germany: health system review. Health Syst Transit 16:1–296
Thom J, Bretschneider J, Müllender S, Becker M, Jacobi F (2015) Regional variations in outpatient primary and specialist health care for mental disorders. Regional need differences or inequity in health care? Die Psychiatrie 12:247–254
“Nationale Gesundheitsziele”. http://www.gesundheitsziele.de. Accessed 16 Dec 2016
“Aktionsbündnis Seelische Gesundheit”. http://www.seelischegesundheit.net. Accessed 16 Dec 2016
Naslund JA, Aschbrenner KA, Marsch LA, Bartels SJ (2016) The future of mental health care: peer-to-peer support and social media. Epidemiol Psychiatr Sci 25:113–122
Andersen R, Davidson B, Baumeister S (2014) Access to care. In: Kominski G (ed) Changing the US health care system. Jossey Bass, San Francisco, pp 33–70
Scheidt-Nave C, Kamtsiuris P, Gosswald A, Holling H, Lange M, Busch MA et al (2012) German health interview and examination survey for adults (DEGS)—design, objectives and implementation of the first data collection wave. BMC Public Health 12:730
Jacobi F, Mack S, Gerschler A, Scholl L, Hofler M, Siegert J et al (2013) The design and methods of the mental health module in the German Health Interview and Examination Survey for Adults (DEGS1-MH). Int J Methods Psychiatr Res 22:83–99
Jacobi F, Wittchen HU, Holting C, Sommer S, Lieb R, Hofler M et al (2002) Estimating the prevalence of mental and somatic disorders in the community: aims and methods of the German National Health Interview and Examination Survey. Int J Methods Psychiatr Res 11:1–18
Seaman SR, White IR (2013) Review of inverse probability weighting for dealing with missing data. Stat Methods Med Res 22:278–295
Korn EL, Graubard BI (1999) Analysis of health surveys. Wiley, New York
Wittchen HU, Höfler M, Gander F, Pfister H, Storz S, Üstün T et al (1999) Screening for mental disorders: performance of the Composite International Diagnostic-Screener (CID-S). Int J Methods Psychiatr Res 8:59–70
Lachner G, Wittchen HU, Perkonigg A, Holly A, Schuster P, Wunderlich U et al (1998) Structure, content and reliability of the Munich-Composite International Diagnostic Interview (M-CIDI) substance use sections. Eur Addict Res 4:28–41
Jacobi F, Hofler M, Siegert J, Mack S, Gerschler A, Scholl L et al (2014) Twelve-month prevalence, comorbidity and correlates of mental disorders in Germany: the Mental Health Module of the German Health Interview and Examination Survey for Adults (DEGS1-MH). Int J Methods Psychiatr Res 23:304–319
Babitsch B, Gohl D, von Lengerke T (2012) Re-revisiting Andersen’s behavioral model of health services use: a systematic review of studies from 1998–2011. Psychosoc Med 9:Doc11
Aparasu RR, Mort JR, Brandt H (2003) Psychotropic prescription use by community-dwelling elderly in the United States. J Am Geriatr Soc 51:671–677
Schomerus G, Appel K, Meffert PJ, Luppa M, Andersen RM, Grabe HJ et al (2013) Personality-related factors as predictors of help-seeking for depression: a population-based study applying the Behavioral Model of Health Services Use. Soc Psychiatry Psychiatr Epidemiol 48:1809–1817
Rhoades H, Wenzel SL, Golinelli D, Tucker JS, Kennedy DP, Ewing B (2014) Predisposing, enabling and need correlates of mental health treatment utilization among homeless men. Community Ment Health J 50:943–952
OECD (2008) Growing unequal? Income distribution and poverty in OECD countries. doi:10.1787/9789264044197-en
Morfeld M, Kirchberger I, Bullinger M (2011) SF-36 Fragebogen zum Gesundheitszustand. Deutsche Version des Short Form-36 Health Survey 2, ergänzte und überarbeitete Version. Manual (SF-36–German version of the Short Form-36 Health Survey 2, revised version. Manual), Hogrefe Verlag, Göttingen
Ware JE Jr (2000) SF-36 health survey update. Spine (Phila Pa 1976) 25:3130–3139
Maske UE, Buttery AK, Beesdo-Baum K, Riedel-Heller S, Hapke U, Busch MA (2016) Prevalence and correlates of DSM-IV-TR major depressive disorder, self-reported diagnosed depression and current depressive symptoms among adults in Germany. J Affect Disord 190:167–177
Haftenberger M, Heuer T, Heidemann C, Kube F, Krems C, Mensink GB (2010) Relative validation of a food frequency questionnaire for national health and nutrition monitoring. Nutr J 9:36
Zou G (2004) A modified poisson regression approach to prospective studies with binary data. Am J Epidemiol 159:702–706
Kowitz S, Zielasek J, Gaebel W (2014) Mental healthcare in Germany—current situation and perspectives. Dtsch Med Wochenschr 139:1249–1252
Svensson E, Nygard JF, Sorensen T, Sandanger I (2009) Changes in formal help seeking for psychological distress: the OsLof study. Nord J Psychiatry 63:260–266
Reavley NJ, Jorm AF (2014) Willingness to disclose a mental disorder and knowledge of disorders in others: changes in Australia over 16 years. Aust N Z J Psychiatry 48:162–168
Marcus SC, Olfson M (2010) National trends in the treatment for depression from 1998 to 2007. Arch Gen Psychiatry 67:1265–1273
Olfson M, Blanco C, Marcus SC (2016) Treatment of adult depression in the United States. JAMA Intern Med 176:1482–1491
Kovess-Masfety V, Boyd A, van de Velde S, de Graaf R, Vilagut G, Haro JM et al (2014) Are there gender differences in service use for mental disorders across countries in the European Union? Results from the EU-World Mental Health survey. J Epidemiol Community Health 68:649–656
Mills V, Van Hooff M, Baur J, McFarlane AC (2012) Predictors of mental health service utilisation in a non-treatment seeking epidemiological sample of Australian adults. Community Ment Health J 48:511–521
Twomey CD, Baldwin DS, Hopfe M, Cieza A (2015) A systematic review of the predictors of health service utilisation by adults with mental disorders in the UK. BMJ Open 5:e007575
Harris MG, Diminic S, Reavley N, Baxter A, Pirkis J, Whiteford HA (2015) Males’ mental health disadvantage: an estimation of gender-specific changes in service utilisation for mental and substance use disorders in Australia. Aust N Z J Psychiatry 49:821–832
Stegbauer C, Szecsenyi J, Bramesfeld A (2017) Studies to evaluate outpatient mental health services: are patients’ priorities considered? Psychiatr Prax 44:13–20
Acknowledgements
This study was conducted in collaboration with the Robert Koch Institute, Berlin as a part of projects evaluating the DEGS1-MH survey. It was funded by the German Federal Ministry of Health (Chapter 1501, title 544 01; 1368-1124). GHS-MHS was supported by Grant 01EH970/8 (German Federal Ministry of Research, Education and Science; BMBF). DEGS1 and DEGS1-MH are projects by the Robert Koch Institute (Berlin, Germany) funded primarily by the German Ministry of Health (BMG). Supplementary funding was provided by the Technische Universität Dresden, and by the Stiftung Seelische Gesundheit inaugurated by the German Association for Psychiatry and Psychotherapy (DGPPN). The contributions to data collection made by field workers, technicians, interviewers, and computer assistants are gratefully acknowledged. Above all, the authors wish to thank all the GHS-MHS and DEGS1-MH study participants.
Author information
Authors and Affiliations
Corresponding author
Ethics declarations
Ethical statement
All participants gave informed consent prior to their inclusion in the studies. GHS-MHS: The study was approved by the responsible Institutional Review Board and Ethics Committee. DEGS1 and DEGS1-MH: the study was approved by the Medical Ethics Review Committees responsible for DEGS1 (Charité, Berlin) and for DEGS1-MH by the Ethics Board of the Technische Universität Dresden, respectively.
Conflict of interest
The authors declare that they have no conflict of interest.
Rights and permissions
About this article
Cite this article
Brandstetter, S., Dodoo-Schittko, F., Speerforck, S. et al. Trends in non-help-seeking for mental disorders in Germany between 1997–1999 and 2009–2012: a repeated cross-sectional study. Soc Psychiatry Psychiatr Epidemiol 52, 1005–1013 (2017). https://doi.org/10.1007/s00127-017-1384-y
Received:
Accepted:
Published:
Issue Date:
DOI: https://doi.org/10.1007/s00127-017-1384-y