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Unification of Hematopoietic Stem Cell Transplantation Registries in Japan and Establishment of the TRUMP System

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Abstract

There are 4 registries of hematopoietic cell transplantation in Japan; the Japan Society for Hematopoietic Cell Transplantation (JSHCT), Japanese Society of Pediatric Hematology, Japan Marrow Donor Program, and Japan Cord Blood Bank Network; each play an important role in society by reporting the number and outcomes of transplantations and contributing new findings obtained from studies on individual topics. However, there have been a number of issues with the difficulty of analyzing data in overlapping registries and multiple databases at centers affiliated with each of the 4 registry organizations. JSHCT was pivotal in orchestrating the computerization and unification of hematopoietic stem cell transplantation registries for the purpose of resolving these issues and providing a more accurate awareness of hematopoietic stem cell transplantations being performed in Japan. JSHCT played a central role in developing the “Transplant Registry Unified Management Program (TRUMP)” to enable transplantation institutes to manage patient information with emphases on convenience to institutes, safety of patient information, and quality of data management. While enhancing domestic registries, the program seeks to coordinate with other hematopoietic cell transplantation registries around the world to contribute to the development of registries throughout Asia.

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Authors and Affiliations

  1. Department of HSCT Data Management, Nagoya University, School of Medicine, 1-1-20 Daiko-Minami, Higashi-ku, 461-0047, Nagoyashi, Japan

    Yoshiko Atsuta, Ritsuro Suzuki & Ayami Yoshimi

  2. Japan Society for Hematopoietic Cell Transplantation, Adult Data Management Committee, Nagoya, Japan

    Hisashi Gondo, Junji Tanaka & Akira Hiraoka

  3. Japanese Society of Pediatric Hematology, Hematopoietic Stem Cell Transplantation Committee, Tokyo, Japan

    Koji Kato, Ken Tabuchi & Masahiro Tsuchida

  4. Japan Marrow Donor Program, Marrow Transplant Promotion Foundation Data and Sample Management Committee, Tokyo, Japan

    Yasuo Morishima, Makoto Mitamura & Keisei Kawa

  5. Japan Cord Blood Bank Network, Transplantation Data Management Subcommittee, Tokyo, Japan

    Shunichi Kato, Tokiko Nagamura & Minoko Takanashi

  6. President, Japan Society for Hematopoietic Cell Transplantation, Nagoya, Japan

    Yoshihisa Kodera

Authors
  1. Yoshiko Atsuta
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  2. Ritsuro Suzuki
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  3. Ayami Yoshimi
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  4. Hisashi Gondo
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  5. Junji Tanaka
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  6. Akira Hiraoka
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  7. Koji Kato
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  8. Ken Tabuchi
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  9. Masahiro Tsuchida
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  10. Yasuo Morishima
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  11. Makoto Mitamura
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  12. Keisei Kawa
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  13. Shunichi Kato
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  14. Tokiko Nagamura
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  15. Minoko Takanashi
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  16. Yoshihisa Kodera
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Corresponding author

Correspondence to Ritsuro Suzuki.

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Atsuta, Y., Suzuki, R., Yoshimi, A. et al. Unification of Hematopoietic Stem Cell Transplantation Registries in Japan and Establishment of the TRUMP System. Int J Hematol 86, 269–274 (2007). https://doi.org/10.1532/IJH97.06239

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  • DOI: https://doi.org/10.1532/IJH97.06239

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