Abstract
This paper shows how the co-creation and telling of narratives helped members of an AIDS support group transform their unique and separate experiences of suffering into shared insights, intense connections and comfort. Examples of narratives are drawn from the author's experience as a co-leader of a support group for gay men living with AIDS. Current literature on group work with persons living with AIDS is embedded in a modernist orientation in which the therapist is the scientist/expert, the client has the problem and the therapist helps the client's through exploring and interpreting the client's story according to a superseding theory (Gergen and Kaye, 1992). This approach emphasizes the need for leaders to maintain objectivity and emotional distance to avoid burnout (Gabriel, 1991; Grossman and Silverstein, 1993; Tunnell, 1991). In contrast, in a post-modern therapeutic approach, there is no privileging of the therapist's narrative and the traditional hierarchical relationship is replaced by a mutual effort as therapist and client together develop stories that translate and transcend experience. Using the AIDS work as illustration, this paper offers a post-modern, narrative approach to group work and shows how persons living with AIDS can use narrative to move beyond finite structures and the limits of life.
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References
AIDS and HIV Fact Sheet (January 1994). Prepared by AIDS Action Committee of Massachusetts, Inc., 131 Clarendon Street; Boston, MA 02116.
Beckett, A. & Rutan, J. S. (1990). Treating persons with ARC and AIDS in group psychotherapy.International Journal of Group Psychotherapy, 40:1, 19–29.
Bornat, J. (Ed.) (1994).Reminiscence reviewed: Perspectives, evaluations, achievements. Bristol, PA: Taylor and Francis.
Burner, E. (1986). Experience and its expressions. In V. W. Turner and E. M. Bruner (Eds.)The anthropology of experience (pp. 139–155). Urbana and Chicago: University of Illinois Press.
Gabriel, M. A. (1991). Group therapists' countertransference reactions to multiple deaths from AIDS.Clinical Social Work Journal, 19:3, 279–292.
Gambe, R. & Getzel, G. S. (1989). Group work with gay men with AIDS.Social Casework: The Journal of Contemporary Social Work, 70, 172–179.
Gergen, K J. & Kaye, J. (1992) Beyond narrative in the negotiation of therapeutic meaning. In S. McNamee & K J. Gergen (Eds.)Therapy as social construction (166–185). Newbury Park, N. J.: Sage Publications, 166–185.
Grossman, A. H. & Silverstein, C. (1993). Facilitating support groups for professionals working with people with AIDS.Social Work, 38:2, 144–151.
Malcolm, J. (1993). The silent woman.The New Yorker, August 23 & 30, 84–159.
Meyerhoff, B. (1986). “Life not death in Venice”: Its second life. In V. W. Turner and E. M. Bruner (Eds.)The anthropology of experience (pp. 261–286). Urbana and Chicago: University of Illinois Press.
Odets, W. (1994) Aids education and harm reduction for gay men: Psychological approaches for the 21st century.AIDS and Public Policy Journal, 9:1.
Paradis, B. A. (1991). Seeking intimacy and integration: Gay men in the era of AIDS,Smith College Studies in Social Work, 61:3, 260–274.
Penn, P. & Frankfurt, M. (1994). Creating a participant text: Writing, multiple voices, narrative multiplicity,Family Process, 33:3, 217–231.
Riessman, C. K. (1993).Narrative Analysis, Newbury Park, CA: Sage Publications.
Riessman, C. K. (1990).Divorce talk: Women and men make sense of personal relationships. New Brunswick and London: Rutgers University Press.
Rosenwald, G. C. & Ochberg, R. L. (1992). (Eds.)Storied lives. New Haven and London: Yale University Press.
Shilts, R. (1988).And the band played on. New York: Penguin Books.
Sluzki, C. E. (1992). Transformations: A blueprint for narrative changes in therapy.Family Process, 217–229.
Spector, I. C. & Conklin, R. C. (1987). Brief reports AIDS group psychotherapy.International Journal of Group Psychotherapy, 37 (3), 433–439.
Tunnell, G. (1991). Complications in group psychotherapy with AIDS patients.International Journal of Group Psychotherapy, 41:4, 481–498.
Walker, G. (1991).In the midst of winter. New York: W. W. Norton & Company.
White, M. (1992). Deconstruction and therapy. In D. Epston & M. White Eds.)Experience, contradiction, narrative and imagination: Selected papers of David Epston & Michael White, (pp. 109–153). South Australia: Dulwich Centre Publications.
White, M. & Epston, D. (1990).Narrative means to therapeutic ends. New York: W. W. Norton and Company.
Zimmerman, J. L. & Dickerson, V. C. (1994). Using a narrative metaphor: Implications for theory and clinical practice.Family Process, 33:3, 233–245.
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The paper is dedicated to the memory of Jack, Paul, Mark, Alex, Richard, Hugh, Stan, Tim, Michael and Bill—all members of the group who have died and to Dean who, though not a member of the group, also died of AIDS and like the others—taught me much about dignity and courage, about being gay and about living with AIDS.
This paper couldn't have been written without the help of the group members and my co-leader Sally Bowie. I want to thank them and other friends and colleagues-particularly the members of my Philosophy Study Group for their suggestions and support.
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Dean, R.G. Stories of AIDS: The use of narrative as an approach to understanding in an AIDS support group. Clin Soc Work J 23, 287–304 (1995). https://doi.org/10.1007/BF02191752
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DOI: https://doi.org/10.1007/BF02191752