Auszug
„Ich schaffe das alles nur, weil ich Ihre Telefonnummer habe.“ (Mutter eines Kindes mit lebenslimitierender Erkrankung zu einem Mitglied des pädiatrischen Palliativteams)
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Literatur
AKIK-Bundesverband (2002) Erläuterungen zur Charta für Kinder im Krankenhaus „EACH-Charta“. AKIK-Aspekte 5: 1–20
Association for Children with Life-Threatening or Terminal Conditions and their Families (ACT) (1997) A guide to the development of children’s palliative care services. Statement of the Joint Working Party ACT/RCPCH Association for Children with Life-threatening or Terminal Conditions and their Families. Royal College of Paediatrics and Child Health, London, UK
Association for Children with Life-Threatening or Terminal Conditions and their Families (ACT) and the Royal College of Paediatrics and Child Heath (RCPCH) (2003) A guide to the development of children’s palliative care services. Update of a report by the Association for Children with Life-Threatening or Terminal Conditions and their Families (ACT) and the Royal College of Paediatrics and Child Health (RCPCH), Bristol, UK
Chambers EJ, Oakhill A (1995) Models of care for children dying of malignant disease. Palliat Med 9: 181–185
Craig F, Abu-Saad Huijer H, Benini F et al. (2007) Standards for paediatric palliative care in Europe — IMPaCCT. International Meeting on Palliative Care for Children, Trento. Eur J Pall Care 14: 109–114
Department of Health and Children (2005) A palliative care needs assessment for Children. Stationery Office, Dublin, Irland
Deutsche Gesellschaft für Palliativmedizin (DGP) (2003) Definitionen der Deutschen Gesellschaft für Palliativmedizin. http://www.dgpalliativmedizin.de. Gesehen 09 Jul 2007
Field MJ, Cassel CK (eds) (1997) Approaching death: improving care at the end of life. (IOM Report). National Academy Press, Washington DC
Friedrichsdorf S, Brun S, Menke A et al. (2006) Paediatric palliative care provided by nurse-led home care services in Germany. Eur J Palliat Care 12: 79–83
Feudtner C, Connor SR (2004) Epidemiology and health care services research. In: Carter BS, Levetown M (eds) Palliative care for infants, children and adolescents. Johns Hopkins University Press, Baltimore, MD
Feudtner C, Hays RM, Haynes G et al. (2001) Deaths attributed to pediatric complex chronic conditions: national trends and implications for supportive care services. Pediatrics 107: E99
Feudtner C, Silveira MJ, Christakis DA (2002) Where do children with complex chronic conditions die? Patterns in Washington State, 1980–1998. Pediatrics 109: 656–660
Field M, Cassel CK (1997) Approaching death: improving care at the end of life. National Academy Press, Washington, DC
Frackenpohl E, Krötz V, Schweinitz B von, Vogt M (2005) Sozialrechtliche Informationen für Familien mit einem krebskranken Kind, 17. Aufl. Deutsche Leukämie-Forschungshilfe — Aktion für krebskranke Kinder e.V. — Dachverband, Bonn
Friedrichsdorf S, Brun S, Menke A et al. (2006) Pediatric palliative care provided by nurse-led home care services in Germany. Eur J Pall Care 12: 79–83
Goldman A (1996) Home care of the dying child. J Palliat Care 12: 16–19
Goldman A, Beardsmore S, Hunt J (1990) Terminal care for children with cancer — home, hospital or hospice? Arch Dis Child 65: 641–643
Henkel W, Zernikow B (2004) Curriculum „Zusatzweiterbildung Palliativversorgung von Kindern und Jugendlichen für Gesundheits-und Kinderkrankenpfleger/innen, Kinderärztinnen und-ärzte und psychosoziale Mitarbeiter. Hrsg: Institut für Kinderschmerztherapie und Pädiatrische Palliativmedizin, Vestische Kinder-und Jugendklinik Datteln und ALPHA — Ansprechstelle im Land Nordrhein-Westfalen zur Pflege Sterbender, Hospizarbeit und Angehörigenbegleitung — Landesteil Westfalen, Datteln
Higginson IJ, Thompson M (2003) Children and young people who die from cancer: epidemiology and place of death in England (1995–9). BMJ 327: 478–479
Kreicbergs U, Valdimarsdottir U, Steineck G, Henter JI (2004) A population-based nationwide study of parents’ perceptions of a questionnaire on their child’s death due to cancer. Lancet 364: 787–789
Kreicbergs U, Valdimarsdottir U, Onelov E et al. (2005) Carerelated distress: a nationwide study of parents who lost their child to cancer. J Clin Oncol 23: 9162–9171
Lenton S, Goldman A, Southall D (2006) Development and epidemiology. In: Goldmann A, Hain R, Liben S (eds) Oxford textbook of palliative care in children. Oxford University Press, Oxford, UK, pp 3–13
Liben S, Goldman A (1998) Home care for children with lifethreatening illness. J Palliat Care 14: 33–38
Mack JW, Hilden JM, Watterson J et al. (2005) Parent and physician perspectives on quality of care at the end of life in children with cancer. J Clin Oncol 23: 9155–9161
McCallum DE, Byrne P, Bruera E (2000) How children die in hospital. J Pain Symptom Manage 20: 417–423
Schwerdt M (1999) Wohngruppenkonzept für langzeitbeatmete Kinder und Jugendliche. Med Klin 94[Suppl 1]: 77–80
Schwerdt M (2001) Fragebogensituation zur Situation langzeitbeatmeter Kinder und Jugendlicher in Deutschland. In: Versorgung langzeitbeatmeter Kinder und Jugendlicher — Dialogtagung betroffener Eltern, GKind, Datteln
Sirkiä K, Saarinen UM, Ahlgren B, Hovi L (1997) Terminal care of the child with cancer at home. Acta Paediatr 86: 1125–1130
Vickers JL, Carlise C (2000) Choices and control: parental experiences in pediatric terminal home care. J Pediatr Oncol Nurs 17: 12–21
Wal ME van der, Renfurm LN, Vught AJ van, Gemke RJ (1999) Circumstances of dying in hospitalized children. Eur J Pediatr 158: 560–565
Wood I (2006) School. In: Goldmann A, Hain R, Liben S (eds) Oxford textbook of palliative care in children. Oxford University Press, Oxford, UK, pp 129–142
Wolfe J, Grier HE, Klar N et al. (2000) Symptoms and suffering at the end of life in children with cancer. N Engl J Med 342: 326–333
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Zernikow, B., Michel, E. (2008). Strukturelle Grundlagen. In: Zernikow, B. (eds) Palliativversorgung von Kindern, Jugendlichen und jungen Erwachsenen. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-540-48876-7_1
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