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Use of Disease Registers

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Handbook of Epidemiology

Abstract

Routine data are data collected continuously or at least repeatedly with some time intervals. They could be collected in various ways, e.g. registration by the health services or by interviews with patients or population groups. For epidemiological purposes, it is necessary that the disease cases collected can be related to a specified population base, thus providing the ability to calculate different epidemiological measures as incidence, prevalence etc. The data could then be stored and administered in registers. Health data or disease registers are restricted to persons with diseases or health-related events. The coverage can vary from a total registration to a sample of the population and from national to regional coverage. Data can be routinely collected for various reasons, from economic and administrative purposes to more strict epidemiological purposes.

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Author information

Authors and Affiliations

  1. Centre for Epidemiology, The National Board of Health and Welfare, 106 30, Stockholm, Sweden

    Måns Rosén

  2. Institute for Statistical and Epidemiological Cancer Research, Finnish Cancer Registry, Liisankatu 21B, 00170, Helsinki, Finland

    Timo Hakulinen

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  1. Måns Rosén
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  2. Timo Hakulinen
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Editors and Affiliations

  1. Division of Epidemiological Methods and Ethiologic Research, Bremen Institute for Prevention Research and Social Medicine (BIPS), Linzer Str. 10, 28359, Bremen, Germany

    Wolfgang Ahrens  & Iris Pigeot  & 

  2. Division of Biometrie and Data Management, Bremen Institute for Prevention Research and Social Medicine (BIPS), Linzer Str. 10, 28359, Bremen, Germany

    Wolfgang Ahrens  & Iris Pigeot  & 

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Rosén, M., Hakulinen, T. (2005). Use of Disease Registers. In: Ahrens, W., Pigeot, I. (eds) Handbook of Epidemiology. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-540-26577-1_5

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