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Resiliency in Pediatric Chronic Illness: Assisting Youth at School and Home

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Resilience Interventions for Youth in Diverse Populations

Part of the book series: The Springer Series on Human Exceptionality ((SSHE))

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Abstract

This chapter is intended to provide the reader with a perceptive of how resiliency plays a role in youth’s adjustment and management of chronic medical conditions. We will draw upon theory and empirical research to build a case for the need for psychological evaluations and interventions to incorporate an individual and family resiliency perspective to aid youth and their families in having more positive outcomes, such as better disease control, healthier interpersonal relationships, and greater self-confidence in their own abilities. Further, youth with chronic illnesses are at particular risk for difficulties in school. Thus, we will also highlight strategies that may work to promote better school functioning. In order to demonstrate these connections, we will draw upon case examples and present data from a study focused on integrating medical, mental health, and school psychological services for adolescents with diabetes.

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References

  • American Cancer Society. (2012). Cancer in children. Retrieved June 8, 2013, from www.cancer.org/acs/groups/cid/documents/webcontent/002287-pdf.pdf

  • Barbarin, O. A. (1994). Risk and resilience in adjustment to sickle cell disease: Integrating focus groups, case reviews, and quantitative methods. Journal of Health & Social Policy, 5, 97–121. doi:10.1300/J045v05n03_07.

    Article  Google Scholar 

  • Bediako, S. M., & Neblett, E. R. (2011). Optimism and perceived stress in sickle-cell disease: The role of an afrocultural social ethos. Journal of Black Psychology, 37, 234–253. doi:10.1177/0095798410385681.

    Article  Google Scholar 

  • Brooks, J. E. (2006). Strengthening resilience in children and youths: Maximizing opportunities through the schools. Children & Schools, 28, 69–76.

    Article  Google Scholar 

  • Celano, M. P., & Geller, R. J. (1993). Learning, school performance, and children with asthma: How much at risk? Journal of Learning Disabilities, 26, 23–32. doi:10.1177/002221949302600103.

    Article  PubMed  Google Scholar 

  • Centers for Disease Control and Prevention. (2011). Sickle cell disease, data, and statistics. Retrieved June 8, 2013, from http://www.cdc.gov/ncbddd/sicklecell/data.html

  • Centers for Disease Control and Prevention. (2012a). Children and diabetes—More information. Retrieved June 15, 2013, from http://www.cdc.gov/diabetes/projects/cda2.htm

  • Centers for Disease Control and Prevention. (2012b). Trends in asthma prevalence, health care use, and mortality in the United States, 2001–2010. Retrieved June 7, 2013, from http://www.cdc.gov/nchs/data/databriefs/db94.htm

  • Compas, B. E., Jaser, S. S., Dunn, M. J., & Rodriguez, E. M. (2012). Coping with chronic illness in childhood and adolescence. Annual Review of Clinical Psychology, 8, 455–480.

    Article  PubMed Central  PubMed  Google Scholar 

  • Conant, K. D., Morgan, A. K., Muzykewicz, D., Clark, D. C., & Thiele, E. A. (2008). A karate program for improving self-concept and quality of life in childhood epilepsy: Results of a pilot study. Epilepsy & Behavior, 12, 61–65. doi:10.1016/j.yebeh.2007.08.011.

    Article  Google Scholar 

  • Doll, B., Zucker, S., & Brehm, K. (2004). Resilient classrooms: Creating healthy environments for learning. New York: Guilford Press.

    Google Scholar 

  • Downey, J. (2008). Recommendations for fostering educational resilience in the classroom. Preventing School Failure, 53, 56–64. http://dx.doi.org/10.3200/PSFL.53.1.56-64.

  • Engelke, M. K., Guttu, M., Warren, M. B., & Swanson, M. (2008). School nurse case management for children with chronic illness: Health, academic, and quality of life outcomes. The Journal of School Nursing, 24, 205–214. doi:10.1177/1059840508319929.

    Article  Google Scholar 

  • Erkolahti, R., & Ilonen, T. (2005). Academic achievement and the self-image of adolescents with diabetes mellitus type-1 and rheumatoid arthritis. Journal of Youth and Adolescence, 34, 199–205. doi:10.1007/s10964-005-4301-8.

    Article  Google Scholar 

  • Ferro, M. A., & Boyle, M. H. (2013). Self-concept among youth with a chronic Illness: A meta-analytic review. Health Psychology, 32, 839–848. doi:10.1037/a0031861.

    Article  PubMed  Google Scholar 

  • Fournier, M., de Ridder, D., & Bensing, J. (2002). Optimism and adaptation to chronic disease: The role of optimism in relation to self-care options of type 1 diabetes mellitus, rheumatoid arthritis and multiple sclerosis. British Journal of Health Psychology, 7, 409–432. doi:10.1348/135910702320645390.

    Article  PubMed  Google Scholar 

  • Gerhardt, C. A., Vannatta, K., McKellop, J., Zeller, M., Taylor, J., Passo, M., et al. (2003). Comparing parental distress, family functioning, and the role of social support for caregivers with and without a child with juvenile rheumatoid arthritis. Journal of Pediatric Psychology, 28, 5–15. doi:10.1093/jpepsy/28.1.5.

    Article  PubMed  Google Scholar 

  • Grabill, K. M., Geffken, G. R., Duke, D., Lewin, A., Williams, L., Storch, E., et al. (2010). Family functioning and adherence in youth with type 1 diabetes: A latent growth model of glycemic control. Children’s Health Care, 39, 279–295.

    Article  Google Scholar 

  • Guo, J., Whittemore, R., & He, G. (2011). The relationship between self-management and metabolic control in youth with type 1 diabetes: An integrative review. Journal of Advanced Nursing, 67, 2294–2310.

    Article  PubMed  Google Scholar 

  • Heiney, S. P., Ruffin, J., Ettinger, R. S., & Ettinger, S. (1988). The effects of group therapy on adolescents with cancer. Journal of Pediatric Oncology Nursing, 5, 20–24.

    Article  Google Scholar 

  • Henning, J., & Fritz, G. K. (1983). School reentry in childhood cancer. Psychosomatics, 24, 261–269.

    Article  PubMed  Google Scholar 

  • Hilliard, M. E., Harris, M. A., & Weissberg-Benchell, J. (2012). Diabetes resilience: A model of risk and protection in type 1 diabetes. Current Diabetes Reports, 12, 739–748.

    Article  PubMed  Google Scholar 

  • Hilliard, M. E., Wu, Y. P., Rausch, J., Dolan, L. M., & Hood, K. K. (2013). Predictors of deteriorations in diabetes management and control in adolescents with type 1 diabetes. Journal of Adolescent Health, 52, 28–34.

    Article  PubMed  Google Scholar 

  • Holm, K. E. (2008). The impact of uncertainty associated with a child’s chronic health condition on parents’ health. Families, Systems & Health, 26, 282.

    Article  Google Scholar 

  • Jaser, S. S., & White, L. E. (2010). Coping and resilience in adolescents with type 1 diabetes. Child: Care, Health and Development, 37, 335–342.

    Google Scholar 

  • Kato, P. M., Cole, S. W., Bradlyn, A. S., & Pollock, B. H. (2008). A video game improves behavioral outcomes in adolescents and young adults with cancer: A randomized trial. Pediatrics, 122, e305–e317.

    Article  PubMed  Google Scholar 

  • Kim, D., & Yoo, I. (2007). Factors associated with depression and resilience in asthmatic children. Journal of Asthma, 44, 423–427. doi:10.1080/02770900701421823.

    Article  PubMed  Google Scholar 

  • Kim, D. H., & Yoo, I. Y. (2010). Factors associated with resilience of school age children with cancer. Journal of Paediatrics and Child Health, 46, 431–436.

    Article  PubMed  Google Scholar 

  • Koinis Mitchell, D., Klein Murdock, K., & McQuaid, E. L. (2004). Risk and resilience in urban children with asthma: A conceptual model and exploratory study. Children’s Health Care, 33, 275–297.

    Article  Google Scholar 

  • Kucera, M., & Sullivan, A. (2011). The educational implications of type I diabetes mellitus: A review of research and recommendations for school psychological practice. Psychology in the Schools, 48, 587–603. doi:10.1002/pits.20573.

    Article  Google Scholar 

  • Lee, S., Kim, S., & Choi, J. W. (2013). Coping and resilience of adolescents with congenital heart disease. Journal of Cardiovascular Nursing (Epub ahead of print).

    Google Scholar 

  • Long, K. A., & Marsland, A. L. (2011). Family adjustment to childhood cancer: A systematic review. Clinical Child and Family Psychology Review, 14, 57–88. doi:10.1007/s10567-010-0082-z.

    Article  PubMed  Google Scholar 

  • Mackey, E. R., Hilliard, M. E., Berger, S. S., Streisand, R., Chen, R., & Holmes, C. (2011). Individual and family strengths: An examination of the relation to disease management and metabolic control in youth with type 1 diabetes. Families, Systems & Health, 29, 314–326.

    Article  Google Scholar 

  • Masten, A. S., Herbers, J. E., Cutuli, J. J., & Lafavor, T. L. (2008). Promoting competence and resilience in the school context. Professional School Counseling, 12, 76–84.

    Article  Google Scholar 

  • Monaghan, M. C., Hilliard, M. E., Cogen, F. R., & Streisand, R. (2009). Nighttime caregiving behaviors among parents of young children with type 1 diabetes: Associations with illness characteristics and parent functioning. Families, Systems & Health, 27, 28–38.

    Article  Google Scholar 

  • Monaghan, M., Horn, I. B., Alvarez, V., Cogen, F. R., & Streisand, R. (2012). Authoritative parenting, parenting stress, and self-care in pre-adolescents with type 1 diabetes. Journal of Clinical Psychology in Medical Settings, 19, 255–261.

    Article  PubMed Central  PubMed  Google Scholar 

  • Mu, P. F. (2005). Paternal reactions to a child with epilepsy: Uncertainty, coping strategies, and depression. Journal of Advanced Nursing, 49, 367–376.

    Article  PubMed  Google Scholar 

  • Mu, P. F. (2008). Transition experience of parents caring of children with epilepsy: A phenomenological study. International Journal of Nursing Studies, 45, 543–551.

    Article  PubMed  Google Scholar 

  • Mu, P., & Chang, K. (2010). The effectiveness of a programme of enhancing resiliency by reducing family boundary ambiguity among children with epilepsy. Journal of Clinical Nursing, 19, 1443–1453. doi:10.1111/j.1365-2702.2009.03075.x.

    Article  PubMed  Google Scholar 

  • Mu, P. F., Kuo, H. C., & Chang, K. P. (2005). Boundary ambiguity, coping patterns and depression in mothers caring for children with epilepsy in Taiwan. International Journal of Nursing Studies, 42, 273–282.

    Article  PubMed  Google Scholar 

  • Naguib, J. M., Kulinskaya, E., Lomax, C. L., & Garralda, M. E. (2009). Neurocognitive performance in children with type 1 diabetes: A meta analysis. Journal of Pediatric Psychology, 34, 271–282. doi:10.1093/jpepsy/jsn074.

    Article  PubMed  Google Scholar 

  • Newacheck, P. W., & Taylor, W. R. (1992). Childhood chronic illness: Prevalence, severity, and impact. American Journal of Public Health, 82, 364–371.

    Article  PubMed Central  PubMed  Google Scholar 

  • Perfect, M. M., & Jaramillo, E. (2012). Relations between resiliency, diabetes-related quality of life, and disease markers to school-related outcomes in adolescents with diabetes. School Psychology Quarterly, 27, 29–40. doi:10.1037/a0027984.

    Article  PubMed  Google Scholar 

  • Perfect, M. M., Levine-Donnerstein, D., Swartz, N. E., Wheeler, L., & Amaya, G. (2011). Parents’ and diabetic adolescents’ perceptions of mental health screening, assessment, and feedback. Administration and Policy in Mental Health and Mental Health Services Research, 38, 181–192. doi:10.1007/s10488-010-0312-1.

    Article  PubMed  Google Scholar 

  • Petteway, R. J., Valerio, M. A., & Patel, M. R. (2011). What about your friends? Exploring asthma-related peer interactions. Journal of Asthma, 48, 393–399. doi:10.3109/02770903.2011.563807.

    Article  PubMed  Google Scholar 

  • Prince-Embury, S. (2007). Resiliency scales for children and adolescents: Profiles of personal strengths. San Antonio, TX: Harcourt Assessments.

    Google Scholar 

  • Prince-Embury, S. (2008). The resiliency scales for children and adolescents, psychological symptoms and clinical status in adolescents. Canadian Journal of School Psychology, 23, 41–56. doi:10.1177/0829573508316592.

    Article  Google Scholar 

  • Rearick, E. M., Sullivan-Bolyai, S., Bova, C., & Knafl, K. A. (2011). Parents of children newly diagnosed with type 1 diabetes: Experiences with social support and family management. The Diabetes Educator, 37, 508–518.

    Article  PubMed  Google Scholar 

  • Richmond, J. B., & Beardslee, W. R. (1988). Resiliency: Research and practical implications for pediatricians. Journal of Developmental and Behavioral Pediatrics, 9, 157–163. doi:10.1097/00004703-198806000-00007.

    Article  PubMed  Google Scholar 

  • Ritz, T., Meuret, A. E., Trueba, A. F., Fritzsche, A., & von Leupoldt, A. (2013). Psychosocial factors and behavioral medicine interventions in asthma. Journal of Consulting and Clinical Psychology, 81, 231–250. doi:10.1037/a0030187.

    Article  PubMed  Google Scholar 

  • Robertson, S. M., Stanley, M. A., Cully, J. A., & Naik, A. D. (2012). Positive emotional health and diabetes care: Concepts, measurement, and clinical implications. Psychosomatics, 53, 1–12.

    Article  PubMed  Google Scholar 

  • Rolland, J. S., & Walsh, F. (2006). Facilitating family resilience with childhood illness and disability. Current Opinion in Pediatrics, 18, 527–538.

    Article  PubMed  Google Scholar 

  • Russ, S. A., Larson, K., & Halfon, N. (2012). A national profile of childhood epilepsy and seizure disorder. Pediatrics, 129, 256–264.

    Article  PubMed  Google Scholar 

  • Sacks, J., Helmick, C., Luo, Y., Ilowite, N., & Bowyer, S. (2007). Prevalence of and annual ambulatory health care visits for pediatric arthritis and other rheumatologic conditions in the United States in 2001–2004. Arthritis & Rheumatism, 57, 1439–1445.

    Article  Google Scholar 

  • Sansom-Daly, U. M., Peate, M., Wakefield, C. E., Bryant, R. A., & Cohn, R. J. (2012). A systematic review of psychological interventions for adolescents and young adults living with chronic illness. Health Psychology, 31(3), 380–393.

    Article  PubMed  Google Scholar 

  • Sanzo, M. (2008). The child with arthritis in the school setting. Journal of School Nursing, 24, 190–196.

    Article  PubMed  Google Scholar 

  • Shaw, S. R., & McCabe, P. C. (2008). Hospital-to-school transition for children with chronic illness: Meeting the new challenges of an evolving health care system. Psychology in the Schools, 45, 74–87.

    Article  Google Scholar 

  • Silverstein, J., Klingensmith, G., Copeland, K., Plotnick, L., Kaufman, F., Laffel, L., et al. (2005). Care of children and adolescents with type 1 diabetes: A statement of the American Diabetes Association. Diabetes Care, 28, 186.

    Article  PubMed  Google Scholar 

  • Smith, B. W., & Zautra, A. J. (2008). Vulnerability and resilience in women with arthritis: Test of a two-factor model. Journal of Consulting and Clinical Psychology, 76, 799–810. doi:10.1037/0022-006X.76.5.799.

    Article  PubMed  Google Scholar 

  • Smorti, M. (2012). Adolescents’ struggle against bone cancer: An explorative study on optimistic expectations of the future, resiliency and coping strategies. European Journal of Cancer Care, 21, 251–258.

    Article  PubMed  Google Scholar 

  • Stinson, J. N., McGrath, P. J., Hodnett, E. D., Feldman, B. M., Duffy, C. M., Huber, A. M., et al. (2010). An internet-based self-management program with telephone support for adolescents with arthritis: A pilot randomized controlled trial. The Journal of Rheumatology, 37, 1944–1952.

    Article  PubMed  Google Scholar 

  • Streisand, R., Swift, E., Wickmark, T., Chen, R. S., & Holmes, C. S. (2005). Pediatric parenting stress among parents of children with type 1 diabetes. Journal of Pediatric Psychology, 30, 513–521.

    Article  PubMed  Google Scholar 

  • Svavarsdottir, E. K., & Rayens, M. K. (2005). Hardiness in families of young children with asthma. Journal of Advanced Nursing, 50, 381–390.

    Article  PubMed  Google Scholar 

  • Thorpe, C. T., Fahey, L. E., Johnson, H., Deshpande, M., Thorpe, J. M., & Fisher, E. B. (2013). Facilitating healthy coping in patients with diabetes: A systematic review. The Diabetes Educator, 39, 33–52.

    Article  PubMed Central  PubMed  Google Scholar 

  • Wallace, M. L., Harcourt, D., Rumsey, N., & Foot, A. (2007). Managing appearance changes resulting from cancer treatment: Resilience in adolescent females. Psycho-Oncology, 16, 1019–1027. doi:10.1002/pon.1176.

    Article  PubMed  Google Scholar 

  • Walsh, F. (2003). Family resilience: A framework for clinical practice. Family Process, 42, 1–18. doi:10.1111/j.1545-5300.2003.00001.x.

    Article  PubMed  Google Scholar 

  • Wideman-Johnston, T. (2011). Resilience and students with chronic illness: A literature review of fostering resilience into the lives of students with chronic illness. Journal of Educational and Developmental Psychology, 1, 127–132.

    Article  Google Scholar 

  • Wills, T. A., & Bantum, E. (2012). Social support, self-regulation, and resilience in two populations: General-population adolescents and adult cancer survivors. Journal of Social and Clinical Psychology, 31, 568–592. doi:10.1521/jscp.2012.31.6.568.

    Article  Google Scholar 

  • Wodrich, D. L., Hasan, K., & Parent, K. B. (2011). Type 1 diabetes mellitus and school: A review. Pediatric Diabetes, 12, 63–70. doi:10.1111/j.1399-5448.2010.00654.x.

    Article  PubMed  Google Scholar 

  • Woods, K., Mayes, S., Bartley, E., Fedele, D., & Ryan, J. (2013). An evaluation of psychosocial outcomes for children and adolescents attending a summer camp for youth with chronic illness. Children’s Health Care, 42, 85–98. doi:10.1080/02739615.2013.753822.

    Article  Google Scholar 

  • Wu, L. M., Sheen, J. M., Shu, H. L., Chang, S. C., & Hsiao, C. C. (2013). Predictors of anxiety and resilience in adolescents undergoing cancer treatment. Journal of Advanced Nursing, 69, 158–166.

    Article  PubMed  Google Scholar 

  • Yi, J. P., Vitaliano, P. P., Smith, R. E., Yi, J. C., & Weinger, K. (2008). The role of resilience on psychological adjustment and physical health in patients with diabetes. British Journal of Health Psychology, 13, 311–325. doi:10.1348/135910707X186994.

    Article  PubMed Central  PubMed  Google Scholar 

  • Yi-Frazier, J. P., Hilliard, M. E., Cochrane, K., & Hood, K. K. (2012). The impact of positive psychology on diabetes outcomes: A review. Psychology, 3, 1116–1124.

    Article  Google Scholar 

  • Ziadni, M. S., Patterson, C. A., Pulgarón, E. R., Robinson, M., & Barakat, L. P. (2011). Health-related quality of life and adaptive behaviors of adolescents with sickle cell disease: Stress processing moderators. Journal of Clinical Psychology in Medical Settings, 18, 335–344. doi:10.1007/s10880-011-9254-3.

    Article  PubMed  Google Scholar 

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Acknowledgements

The data presented in this chapter were derived from funding provided by the Institute for Mental Health Research (#2008PM803) to Michelle M. Perfect, Ph.D.

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Authors and Affiliations

  1. School Psychology Program, Department of Disability and Psychoeducational Studies, University of Arizona, 1430 E. 2nd St., Tucson, AZ, 85719, USA

    Michelle M. Perfect & Sara S. Frye

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  1. Michelle M. Perfect
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  2. Sara S. Frye
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Correspondence to Michelle M. Perfect .

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Editors and Affiliations

  1. Resiliency Institute of Allenhurst, LLC., W. Allenhurst, New Jersey, USA

    Sandra Prince-Embury

  2. Dept. Psychology, Western University, London, Ontario, Canada

    Donald H. Saklofske

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Perfect, M.M., Frye, S.S. (2014). Resiliency in Pediatric Chronic Illness: Assisting Youth at School and Home. In: Prince-Embury, S., Saklofske, D. (eds) Resilience Interventions for Youth in Diverse Populations. The Springer Series on Human Exceptionality. Springer, New York, NY. https://doi.org/10.1007/978-1-4939-0542-3_19

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