Skip to main content

Cancer Advocacy

  • Chapter
Cancer Survivorship

Abstract

Thousands of individual citations using the expression cancer advocacy can be found in contemporary medical and scientific literature as well as in the popular press and on Internet websites. For purposes of this chapter, the term cancer advocacy is used to describe a skill set that has been documented in previously published work by Clark and Stovall.1 This chapter also includes specific examples of how self-described advocacy organizations are involved with research organizations and how they influence cancer research and related health policy.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 79.99
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 99.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  1. Clark EJ, Stovall E. Advocacy: the cornerstone of cancer survivorship. Cancer Pract 1996;5:239–244.

    Google Scholar 

  2. National Coalition for Cancer Survivorship. Charter. Silver Spring, MD: National Coalition for Cancer Survivorship, 1986.

    Google Scholar 

  3. American Cancer Society. Cancer Facts and Figures: 1994–2003. Atlanta, GA: The American Cancer Society, 2003.

    Google Scholar 

  4. Mullan F, Hoffman B (eds). Charting the Journey: An Almanac of Practical Resources for Cancer Survivors. Mount Vernon, NY: Consumers Union, 1990.

    Google Scholar 

  5. Carter B. Going through: a critical theme in surviving breast cancer. Innov Oncol Nurs 1989;5:2–4.

    Google Scholar 

  6. Leigh S. Myths, monsters, and magic: personal perspectives and professional challenges of survival. Oncol Nurs Forum 1992;19:1475–1480.

    PubMed  CAS  Google Scholar 

  7. Loescher L, Clark L, Atwood J, Leigh S, Lawl G. The impact of the cancer experience on long-term survivors. Oncol Nurs Forum 1990;17:223–229.

    PubMed  CAS  Google Scholar 

  8. Rowland JH. Intrapersonal resources: coping. In: Holland JC, Rowland JH (eds). Handbook of Psychooncology. New York: Oxford University Press, 1990:44–57

    Google Scholar 

  9. Seeman J. Toward a model of positive health. Am Psychologist 1989;44:1099–1109.

    Article  CAS  Google Scholar 

  10. Maher EL. Anomic aspects of recovery from cancer. Soc Sci Med 1982;16:907–912.

    Article  PubMed  CAS  Google Scholar 

  11. Clark EJ. Social assessment of cancer patients. Proceedings of the National Conference on Practice, Education, and Research in Oncology Social Work—1984. Philadelphia: American Cancer Society, 1984.

    Google Scholar 

  12. McFall R, Dodge K. Self-management and interpersonal skills learning. In: Karoly P, Kanfer F (eds). Self-Management and Behavior Change. New York: Pergamon Press, 1982:353–392.

    Google Scholar 

  13. McFall R. A review and reformulation of the concept of social skills. Behav Assess 1082;4:1–33.

    Google Scholar 

  14. Tabak ER. Encouraging patient question-asking: a clinical trial. Patient Educ Counsel 1988;12:37–49.

    Article  CAS  Google Scholar 

  15. Blanchard CG, Labrecque MS, Ruckdeschel JC, Blanchard EB. Information and decision-making preferences of hospitalized adult cancer patients. Soc Sci Med 1988;27:1139–1145.

    Article  PubMed  CAS  Google Scholar 

  16. Messerli M, Garamendi C, Romano J. Breast cancer information as a technique of crisis intervention. Am J Orthopsychiatry 1980;50:728–731

    Article  PubMed  CAS  Google Scholar 

  17. Mullan F, Hoffman B (eds). Charting the Journey: An Almanac of Practical Resources for Cancer Survivors. Mount Vernon, NY: Consumers Union, 1990.

    Google Scholar 

  18. Sharf B. Teaching patients to speak up: past and future trends. Patient Educ Counsel 1988;11:95–108.

    Article  CAS  Google Scholar 

  19. Knapp ML, Miller GR. Handbook of Interpersonal Communication. Newbury Park, CA: Sage Publications, 1994.

    Google Scholar 

  20. Moore LG. Teamwork: The Cancer Patient’s Guide To Talking With Your Doctor (booklet). Silver Spring, MD: National Coalition for Cancer Survivorship, 1991.

    Google Scholar 

  21. Telch C, Telch M. Group coping skills instruction and supportive group therapy for cancer patients: a comparison of strategies. J Consult Clin Psychol 1986;54:802–808.

    Article  PubMed  CAS  Google Scholar 

  22. Mullan F, Hoffman B (eds). Charting the Journey: An Almanac of Practical Resources for Cancer Survivors. Mount Vernon, NY: Consumers Union, 1990.

    Google Scholar 

  23. Gray RE, Doan B, Church K. Empowerment issues in cancer. Health Values 1991;15:22–28.

    Google Scholar 

  24. Tabak ER. Encouraging patient question-asking: a clinical trial. Patient Educ Counsel 1988;12:37–49.

    Article  CAS  Google Scholar 

  25. Hoffman B. Employment discrimination: another hurdle for cancer survivors. Cancer Invest 1991;9:589–595.

    PubMed  CAS  Google Scholar 

  26. Fawzy F, Cousins N, Fawzy N, Kemeny M, Elashoff R, Morton D. A structured psychiatric intervention for cancer patients: changes over time in methods of coping and affective disturbance. Arch Gen Psychiatry 1990;47:720–725.

    PubMed  CAS  Google Scholar 

  27. Roter D. An exploration of health education responsibility for a partnership model of client-provider relations. Patient Educ Counsel 1987;9:25–31.

    Article  CAS  Google Scholar 

  28. Welch-McCaffrey D, Hoffman B, Leigh S, Loescher L, Meyskans F. Surviving adult cancers. Part 2: psychosocial implications. Ann Intern Med 1989;111:517–524.

    PubMed  CAS  Google Scholar 

  29. Kauffman DB. Surviving Cancer. Washington, DC: Acropolis, 1989.

    Google Scholar 

  30. Rowland JH. Intrapersonal resources: coping. In: Holland JC, Rowland JH (eds). Handbook of Psychooncology. New York: Oxford University Press, 1990:44–57.

    Google Scholar 

  31. Callan DB. Hope as a clinical issue in oncology social work. J Psychosoc Oncol 1989;7:31–46.

    Article  Google Scholar 

  32. http://www.ihealthcoalition.org/.

    Google Scholar 

  33. Thoits P. Stressors and problem-solving: the individual as social activist. J Health Soc Behav 1994;35:293–304.

    Article  Google Scholar 

  34. Anderson L, DeVellis B, DeVellis F. Effects of modeling on patient communication, satisfaction, and knowledge. Med Care 1987;25:1044–1056.

    Article  PubMed  CAS  Google Scholar 

  35. Hoffman B. Working It Out: Your Employment Rights As A Cancer Survivor (booklet). Silver Spring, MD: National Coalition for Cancer Survivorship, 2002.

    Google Scholar 

  36. Calder K, Pollitz K. What Cancer Survivors Need To Know About Health Insurance (booklet). Silver Spring, MD: National Coalition for Cancer Survivorship, 2002.

    Google Scholar 

  37. Volpe M, Maida P. Sociologists and the processing of conflicts. Sociol Pract 1992;10:13–25.

    Google Scholar 

  38. Clark EJ. You Have The Right To Be Hopeful (booklet). Silver Spring, MD: National Coalition for Cancer Survivorship, 1995.

    Google Scholar 

  39. Farran CJ, Herth KA, Popovich JM. Hope and Hopelessness: Critical Clinical Constructs. Thousand Oaks, CA: Sage, 1995.

    Google Scholar 

  40. Ferrell BR, Dow KH. Portraits of cancer survivorship: a glimpse through the lens of survivors’ eyes. Cancer Pract 1996;4:76–80.

    PubMed  CAS  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2007 Springer Science+Business Media, LLC

About this chapter

Cite this chapter

Stovall, E.L. (2007). Cancer Advocacy. In: Ganz, P.A. (eds) Cancer Survivorship. Springer, New York, NY. https://doi.org/10.1007/978-0-387-68265-5_21

Download citation

  • DOI: https://doi.org/10.1007/978-0-387-68265-5_21

  • Publisher Name: Springer, New York, NY

  • Print ISBN: 978-0-387-34349-5

  • Online ISBN: 978-0-387-68265-5

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics