Skip to main content

Social Aspects of Biobanking: Beyond the Public/Private Distinction and Inside the Relationship Between the Body and Identity

  • Chapter
  • First Online:
Biobanks and Tissue Research

Part of the book series: The International Library of Ethics, Law and Technology ((ELTE,volume 8))

Abstract

Genetic biobanks are generally seen as structures of scientific research and therefore they are just considered a matter for scientists; following this common point of view, we have, on the one hand, science, and on the other hand, society. On the contrary, it will be shown that biobanks could be considered an example of the mutual constitution of the scientific and the social. After a theoretical re-framing of the relationship between science and society in the light of the Science and Technologies Studies perspective, it will be clarified how biobanks perfectly embody this mixture of science and society: they collect, purify and conserve organic material which is seemingly from an environment external to that of science, but to make it available for scientific research, they reorganize the environment according to its needs.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 84.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 109.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 109.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Notes

  1. 1.

    See for example Haddow et al. (2007).

  2. 2.

    For a discussion of the limits and difficulties of the deCode project see, among others, Palsson and Rabinow (1999, 2001), Sigurdsson (2001).

References

  • Bauman, Z. 1995. Life in Fragments: Essays in Postmodern Morality. Oxford: Blackwell.

    Google Scholar 

  • Beck, U. 1992. Risk Society: Toward a New Modernity. London: Sage.

    Google Scholar 

  • Brown, N. 2005. “Shifting Tenses: Reconnecting Regimes of Truth and Hope.” Configurations 13: 331–55.

    Article  Google Scholar 

  • Busby, H. 2006. “Biobanks, Bioethics and Concepts of Donated Blood in the UK.” Sociology of Health & Illness 28 (6): 850–65.

    Article  Google Scholar 

  • Featherstone, M., M. Hepworth, and B. Turner. 1991. The Body: Social Process and Cultural Theory. London: Sage.

    Book  Google Scholar 

  • Fujimura, J. 2003. “Future Imaginaries: Genome Scientists as Sociocultural Entrepreneurs.” In Genetica Nature/Culture: Anthropology and Science Beyond the Two-Culture Divide, edited by A. Goodman et al. Berkeley: University of California Press.

    Google Scholar 

  • Giddens, A. 1990. The Consequences of Modernity. Cambridge: Polity Press.

    Google Scholar 

  • Giddens, A. 1991. Modernity and Self-Identity. Stanford: Stanford University Press.

    Google Scholar 

  • Haddow, G., L. Graeme, S. Cunningham-Burley et al. 2007. “Tackling Community Concerns About Commercialisation and Genetic Research: A Modest Interdisciplinary Proposal.” Social Science & Medicine 64: 272–82.

    Article  Google Scholar 

  • Hogle, L.. 2008. “Emerging Medical Technologies.” In Handbook of Science and Technology Studies, edited by E. Hackett et al. Boston: MIT Press.

    Google Scholar 

  • Jasanoff S. (Ed.). 2004. States of Knowledge: The Co-production on Science and Social Order. London: Routledge.

    Google Scholar 

  • Keating, P., and A. Cambrosio. 2003. Medical Platform: Realigning the Normal and the Pathological in Late-Twentieth-Century Medicine. Boston: MIT Press.

    Book  Google Scholar 

  • Knorr-Cetina, K. 1981. The Manufacture of Knowledge: An Essay on the Constructivist and Contextual Nature of Science. Oxford: Pergamon.

    Google Scholar 

  • Lash, C. 1979. The Culture of Narcissism. New York: Norton & Co.

    Google Scholar 

  • Latour, B. 1984. Les microbes: guerre et paix, suivi de Irreductions. Paris: Metailie.

    Google Scholar 

  • Latour, B. 1987. Science in Action: How to Follow Scientists and Engineers Through Society. Harvard: Harvard University Press.

    Google Scholar 

  • Latour, B. 2005. Reassembling the Social: An Introduction to Actor-Network-Theory. Oxford: Clarendon.

    Google Scholar 

  • Latour, B., and S. Woolgar. 1979. Laboratory Life. Princeton: Princeton University Press.

    Google Scholar 

  • Mauss, M. 1923–1924. “Essai sur le don. Forme et raison de l’échange dans les sociétés archaïques”. Année Sociologique (Seconde série).

    Google Scholar 

  • Melucci, A. 1996. The Playing Self: Person and Meaning in the Planetary Society. Cambridge: Cambridge University Press.

    Book  Google Scholar 

  • Melucci, A. 1997. “The Social Production of Nature.” In Gene Technology and the Public, edited by S. Lundin and M. Ideland, 58–70. Lund: Nordic Academic Press.

    Google Scholar 

  • Mitchell, R., and C. Waldby. 2009. “National Biobanks: Clinical Labour, Risk Production, and the Creation of Biovalue.” Science, Technology and Human Values. doi: 10.1177/0162243909340267.

    Google Scholar 

  • Mulkay, M. 1979. Science and the Sociology of Knowledge. London & Boston: Allen & Unwin.

    Google Scholar 

  • Nelkin, D., and S. Lindee. 1995. The DNA Mystique: The Gene as a Cultural Icon. New York: Freeman.

    Google Scholar 

  • Palsson, G., and P. Rabinow. 1999. “Iceland: The Case of a National Human Genome Project.” Anthropology Today 15 (5): 14–18.

    Article  CAS  Google Scholar 

  • Palsson, G., and P. Rabinow. 2001. “The Icelandic Genome Debates.” Trends in Biotechnology 19 (5): 166–71.

    Article  CAS  Google Scholar 

  • Shilling, C. 1993. The Body and the Social Theory. London: Sage.

    Google Scholar 

  • Sigurdsson, S. 2001. “Yin-Yang Genetics, or the HSD Decode Controversy.” New Genetics and Society 20 (2): 103–17.

    Article  CAS  Google Scholar 

  • Testa, G. 2006. “Che cos’è un clone? Pratiche e significato delle biotecnologie rosse in un mondo globale.” In Cellule e cittadini, edited by M. Bucchi and F. Neresini. Milano: Sironi.

    Google Scholar 

  • Thompson, C. 2005. Making Parents: The Ontological Choreography of Reproductive Technologies. Cambridge: MIT Press.

    Google Scholar 

  • Tutton, R. 2004. “Person, Property and Gift: Exploring Languages of Tissue Donation to Biomedical Research.” In Genetic Databases: Socio-Ethical Issues in the Collection and Use of DNA, edited by R. Tutton and O. Corrigan. London: Routledge.

    Google Scholar 

  • van Dijck, J. 1998. ImagEnation: Popular Images of Genetics. New York: New York University Press.

    Book  Google Scholar 

  • Waldby, C. 2002. “Stem Cells, Tissue Cultures and the Production of Biovalue Health.” An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 6 (3): 305–23.

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Federico Neresini .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2011 Springer Science+Business Media B.V.

About this chapter

Cite this chapter

Neresini, F. (2011). Social Aspects of Biobanking: Beyond the Public/Private Distinction and Inside the Relationship Between the Body and Identity. In: Lenk, C., Sándor, J., Gordijn, B. (eds) Biobanks and Tissue Research. The International Library of Ethics, Law and Technology, vol 8. Springer, Dordrecht. https://doi.org/10.1007/978-94-007-1673-5_5

Download citation

  • DOI: https://doi.org/10.1007/978-94-007-1673-5_5

  • Published:

  • Publisher Name: Springer, Dordrecht

  • Print ISBN: 978-94-007-1672-8

  • Online ISBN: 978-94-007-1673-5

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics