Residential Care for Adults With Prader-Willi Syndrome

Abstract

Many people with Prader-Willi syndrome (PWS) will face significant challenges and difficult decisions throughout their entire lives. Deciding on the appropriateness and type of residential supports is one of the most important considerations facing any person with the syndrome and their family. Guidance from family and significant others, research of options available from well-vetted and respected national sources, and seeking answers to probing questions will greatly assist with making the best decision possible. Long-term successful residential programs, equipped with the foundation to manage and support the unique needs of people with Prader-Willi syndrome, have continued to be developed. This chapter reviews each of the critical elements of a successful residential placement so that those seeking placement for their family member can be aware of the best practices and can be equipped to make sound educated choices.