Abstract
We need more patient-and-family engagement like this throughout the health system for children with medical complexity to ideally position all of the on-going improvement initiatives for optimal effectiveness. Partnering closely with patients and families throughout that process—not just through a single, isolated meeting—is the way to go.
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Schrooten, A.F., Markovitz, B.P. (2021). When a Patient and Family Forever Change Your World. In: Shared Struggles. Copernicus, Cham. https://doi.org/10.1007/978-3-030-68020-6_34
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DOI: https://doi.org/10.1007/978-3-030-68020-6_34
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Publisher Name: Copernicus, Cham
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