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Congenital Heart Disease

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Handbook of Cardiovascular Behavioral Medicine

Abstract

Congenital heart defects are the most common birth defects, with a birth prevalence of approximately 1%. Congenital heart disease (CHD) ranges from simple to moderate to great complexity, with a corresponding increase in morbidity and mortality. As a result of medical advances that have contributed to significantly improved survival rates, there are now more adults than children living with CHD in developed countries; approximately 1.5 million adults in the United States have a congenital heart condition. Survival to adulthood for individuals with CHD of moderate or great complexity is often associated with continued medical complications, potential repeat surgeries, and a shortened life expectancy. In addition, children, youths/adolescents, and adults with CHD face an increased risk of neurodevelopmental deficits and psychological and social difficulties. The transition from adolescence (and pediatric healthcare systems) to young adulthood (and adult healthcare systems) can be a particularly challenging process for many patients and their parents. Although there are currently no published psychosocial interventions for children, adolescents, or adults with CHD, congenital cardiac psychology is an emerging field, and advances in psychosocial interventions for individuals with CHD are needed.

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References

  1. Alderman EM, Lauby JL, Coupey SM (1995) Problem behaviors in inner-city adolescents with chronic illness. J Dev Behav Pediatr 16:339–344

    Article  PubMed  Google Scholar 

  2. American Psychiatric Association (1994) DSM-IV: diagnostic and statistical manual of mental disorders, 4th edn. American Psychiatric Association, Washington, DC

    Google Scholar 

  3. Arnett JJ (1998) Learning to stand alone: the contemporary American transition to adulthood in cultural and historical context. Hum Dev 41:295–315

    Article  Google Scholar 

  4. Arnett JJ (2000) Emerging adulthood: a theory of development from the late teens through the twenties. Am Psychol 55:469–480

    Article  PubMed  Google Scholar 

  5. Bayley N (1993) Bayley scales of infant development manual, 2nd edn. The Psychological Corporation, San Antonio

    Google Scholar 

  6. Brandhagen DJ, Feldt RH, Williams DE (1991) Long-term psychologic implications of congenital heart disease: a 25-year follow-up. Mayo Clin Proc 66:474–479

    Article  PubMed  Google Scholar 

  7. Bromberg JI, Beasley PJ, D'Angelo EJ, Landzberg M, DeMaso DR (2003) Depression and anxiety in adults with congenital heart disease: a pilot study. Heart Lung 32:105–110

    Article  PubMed  Google Scholar 

  8. Cetta F, Warnes CA (1995) Adults with congenital heart disease: patient knowledge of endocarditis prophylaxis. Mayo Clin Proc 70:50–54

    Article  PubMed  Google Scholar 

  9. Child JS, Collins-Nakai RL, Alpert JS, Deanfield JE, Harris L, McLaughlin P et al (2001) Task force 3: workforce description and educational requirements for the care of adults with congenital heart disease. J Am Coll Cardiol 37:1183–1187

    Article  PubMed  Google Scholar 

  10. Claessens P, Moons P, de Casterle BD, Cannaerts N, Budts W, Gewillig M (2005) What does it mean to live with a congenital heart disease? A qualitative study on the lived experiences of adult patients. Eur J Cardiovasc Nurs 4:3–10

    Article  PubMed  Google Scholar 

  11. Connelly M, Webb GD, Somerville J, Warnes CA, Perloff JK, Liberthson RR et al (1998) Recommendations for the management of adults with congenital heart disease: consensus conference on adult congenital heart disease. C J Cardio 14:395–452

    Google Scholar 

  12. Crossland DS, Jackson SP, Lyall R, Burn J, O'Sullivan JJ (2005) Employment and advice regarding careers for adults with congenital heart disease. Cardiol Young 15:391–395

    Article  PubMed  Google Scholar 

  13. Deanfield J, Thaulow E, Warnes C, Webb G, Kolbel F, Hoffman A et al (2003) Management of grown up congenital heart disease. Eur Heart J 24:1035–1084

    Article  PubMed  Google Scholar 

  14. DeMaso DR, Beardslee WR, Silbert AR, Fyler DC (1990) Psychological functioning in children with cyanotic heart defects. J Dev Behav Pediatr 11:289–294

    Article  PubMed  Google Scholar 

  15. Dua JS, Cooper AR, Fox KR, Graham SA (2007) Physical activity levels in adults with congenital heart disease. Eur J Cardiovasc Prev Rehabil 14:287–293

    Article  PubMed  Google Scholar 

  16. Engelfriet P, Boersma E, Oechslin E, Tijssen J, Gatzouliz MA, Thilén U et al (2005) The spectrum of adult congenital heart disease in Europe: morbidity and mortality in a 5 year follow-up period. Eur Heart J 26:2325–2333

    Article  PubMed  Google Scholar 

  17. Fekkes M, Kamphuis RP, Ottenkamp J, Verrips E, Vogels T, Kamphuis M et al (2001) Health-related quality of life in young adults with minor congenital heart disease. Psychol Health 16:239–250

    Article  Google Scholar 

  18. Ferencz C, Wiegmann FL, Dunning RE (1980) Medical knowledge of young persons with heart disease. The Journal of School Health 50:133–136

    Article  PubMed  Google Scholar 

  19. First MB, Spitzer RL, Gibbon M, Williams JBW (2002) Structured clinical interview for DSM-IV-TR Axis I disorders, research version. Non-patient Edition, Biometrics Research, New York

    Google Scholar 

  20. Forbess JM, Visconti KJ, Hancock-Friesen C, Howe RC, Bellinger DC, Jonas RA (2002) Neurodevelopmental outcome after congenital heart surgery: results from an institutional registry. Circulation 106:195–102

    Article  Google Scholar 

  21. Foster E, Graham TP Jr, Driscoll DJ, Reid GJ, Reiss JG, Russell IA et al (2001) Task force 2: special health care needs of adults with congenital heart disease. J Am Coll Cardiol 37:1176–1183

    Article  PubMed  Google Scholar 

  22. Gaynor JW, Wernovsky G, Jarvik GP, Bernbaum J, Gerdes M, Zackai E et al (2007) Patient characteristics are important determinants of neurodevelopmental outcome at one year of age after neonatal and infant cardiac surgery. J Thorac Cardiovasc Surg 133:1344–1353

    Article  PubMed  PubMed Central  Google Scholar 

  23. Geyer S, Norozi K, Buchhorn R, Wessel A (2009) Chances of employment in women and men after surgery of congenital heart disease: comparisons between patients and the general population. Congenit Heart Dis 4:25–33

    Article  PubMed  Google Scholar 

  24. Gupta S, Giuffre RM, Crawford S, Waters J (1998) Covert fears, anxiety and depression in congenital heart disease. Cardiol Young 8:491–499

    Article  PubMed  Google Scholar 

  25. Hart EM, Garson A (1993) Psychosocial concerns of adults with congenital heart disease: employability and insurability. Cardiol Clin 11:711–715

    Article  PubMed  Google Scholar 

  26. Heisler M, Piette JD (2005) “I help you, and you help me”: facilitated telephone peer support among patients with diabetes. Diab Educ 31:869–879

    Article  Google Scholar 

  27. Heisler M, Halasyamani L, Resnicow K, Raes E, De Bleser L, Budts W, De Geest S (2007) “I am not alone”: the feasibility and acceptability of interactive voice response-facilitated telephone peer support among older adults with heart failure. Congest Heart Failure 13:149–157

    Article  Google Scholar 

  28. Higgins SS, Tong E (2003) Transitioning adolescents with congenital heart disease into adult health care. Prog Cardiovasc Nurs 18:93–98

    Article  PubMed  Google Scholar 

  29. Hoey LM, Ieropoli SC, White VM, Jefford M (2008) Systematic review of peer-support programs for people with cancer. Patient Educ Couns 70:315–337

    Article  PubMed  Google Scholar 

  30. Hoffman JI, Kaplan S (2002) The incidence of congenital heart disease. J Am Coll Cardiol 39:1890–1900

    Article  PubMed  Google Scholar 

  31. Horner T, Liberthson R, Jellinek MS (2000) Psychosocial profile of adults with complex congenital heart disease. Mayo Clin Proc 75:31–36

    Article  PubMed  Google Scholar 

  32. Hudsmith LE, Thorne SA (2007) Transition of care from paediatric to adult services in cardiology. Arch Dis Child 92:927–930

    Article  PubMed  PubMed Central  Google Scholar 

  33. Immer FF, Althaus SM, Berdat PA, Saner H, Carrel TP (2005) Quality of life and specific problems after cardiac surgery in adolescents and adults with congenital heart diseases. Eur J Cardiovasc Prev Rehabil 12:138–143

    Article  PubMed  Google Scholar 

  34. Janus M, Goldberg S (1997) Treatment characteristics of congenital heart disease and behavior problems of patients and healthy siblings. J Paediatr Child Health 33:219–225

    Article  PubMed  Google Scholar 

  35. Kamphuis M, Ottenkamp J, Vliegen HW, Vogels T, Zwinderman KH, Kamphuis RP et al (2002a) Health related quality of life and health status in adult survivors with previously operated complex congenital heart disease. Heart 87:356–362

    Article  PubMed  PubMed Central  Google Scholar 

  36. Kamphuis M, Vogels T, Ottenkamp J, Van Der Wall EE, Verloove-Vanhorick SP, Vliegen HW (2002b) Employment in adults with congenital heart disease. Arch Pediatr Adolesc Med 156:1143–1148

    Article  PubMed  Google Scholar 

  37. Kantoch MJ, Collins-Nakai RL, Medwid S, Ungstad E, Taylor DA (1997) Adult patients' knowledge about their congenital heart disease. Can J Cardiol 13:641–645

    PubMed  Google Scholar 

  38. Karsdorp PA, Everaerd W, Kindt M, Mulder BJ (2007) Psychological and cognitive functioning in children and adolescents with congenital heart disease: a meta-analysis. J Pediatr Psychol 32:527–541

    Article  PubMed  Google Scholar 

  39. Kessler RC, Berglund P, Demler O, Jin R, Merikangas KR, Walters EE (2005) Lifetime prevalence and age-of-onset distributions of DSM-IV disorders in the National Comorbidity Survey Replication. Arch Gen Psychiatry 62:593–602

    Article  PubMed  Google Scholar 

  40. Knauth A, Verstappen A, Reiss J, Webb GD (2006) Transition and transfer from pediatric to adult care of the young adult with complex congenital heart disease. Cardiol Clin 24:619–629

    Article  PubMed  Google Scholar 

  41. Kokkonen J, Paavilainen T (1992) Social adaptation of young adults with congenital heart disease. Int J Cardiol 36:23–29

    Article  PubMed  Google Scholar 

  42. Kovacs AH, McCrindle BW (2014) So hard to say goodbye: transition from paediatric to adult cardiology care. Nat Rev Cardiol 11:51–62

    Article  PubMed  Google Scholar 

  43. Kovacs AH, Harrison J, Colman J, Sermer M, Siu S, Silversides C (2006a) Women with congenital heart disease and pregnancy: have we provided adequate education? Can J Cardiol 22:98D

    Google Scholar 

  44. Kovacs AH, Silversides C, Saidi A, Sears SF (2006b) The role of the psychologist in adult congenital heart disease. Cardiol Clin 24:607–618

    Article  PubMed  Google Scholar 

  45. Kovacs AH, Saidi AS, Kuhl EA, Sears SF, Silversides C, Harrison JL et al (2009a) Depression and anxiety in adults with congenital heart disease: prevalence and predictors. Int J Cardiol 37:158–164

    Article  Google Scholar 

  46. Kovacs AH, Bendell KL, Colman J, Harrison JL, Oechslin E, Silversides C (2009b) Adult congenital heart disease: psychosocial needs and treatment preferences. Congenit Heart Dis 4:139–146

    Article  PubMed  Google Scholar 

  47. Kramer HH, Awiszus D, Sterzel U, van Halteren A, Clafen R (1989) Development of personality and intelligence in children with congenital heart disease. J Child Psychol Psychiatry 30:299–308

    Article  PubMed  Google Scholar 

  48. Lane DA, Millane TA, Lip GYH (2013) Psychological interventions for depression in adolescent and adult congenital heart disease. Cochrane Database Syst Rev 10:1–24

    Google Scholar 

  49. Latal B, Helfricht S, Fischer JE, Bauersfeld U, Landolt MA (2009) Psychological adjustment and quality of life in children and adolescents following open-heart surgery for congenital heart disease: a systematic review. BMC Pediatr 9:6

    Article  PubMed  PubMed Central  Google Scholar 

  50. Lock J (1998) Psychosexual development in adolescents with chronic medical illnesses. Psychosomatics 39:340–349

    Article  PubMed  Google Scholar 

  51. Mackie AS, Ionescu-Ittu R, Therrien J, Pilote L, Abrahamowicz M, Marelli AJ (2009) Children and adults with congenital heart disease lost to follow-up: who and when? Circulation 120:302–309

    Article  PubMed  Google Scholar 

  52. Majnemer A, Limperopoulos C, Shevell MI, Rohlicek C, Rosenblatt B, Tchervenko C (2009) A new look at outcomes of infants with congenital heart disease. Pediatr Neurol 40:197–204

    Article  PubMed  Google Scholar 

  53. Marelli AJ, Ionescu-Ittu R, Mackie AS, Guo L, Dendukuri N, Kaouache M (2014) Lifetime prevalence of congenital heart disease in the general population from 2000 to 2010. Circulation 130:749–756

    Article  PubMed  Google Scholar 

  54. Marino BS, Lipkin PH, Newburger JW, Peacock G, Gerdes M, Gaynor JW et al (2012) Neurodevelopmental outcomes in children with congenital heart disease: evaluation and management: a scientific statement from the American Heart Association. Circulation 126:1143–1172

    Article  PubMed  Google Scholar 

  55. Martinez W, Carter JS, Legato LJ (2011) Social competence in children with chronic illness: a meta-analytic review. J Pediatr Psychol 36:878–890

    Article  PubMed  Google Scholar 

  56. McCusker CG, Doherty NN, Molloy B, Casey F, Rooney N, Mulholland C et al (2007) Determinants of neuropsychological and behavioral outcomes in early childhood survivors of congenital heart disease. Arch Dis Child 92:137–141

    Article  PubMed  Google Scholar 

  57. McDonagh JE (2005) Growing up and moving on: transition from pediatric to adult care. Pediatr Transplant 9:364–372

    Article  PubMed  Google Scholar 

  58. McMurray R, Kendall L, Parsons JM, Quirk J, Veldtman GR, Lewin RJP et al (2001) A life less ordinary: growing up and coping with congenital heart disease. Coron Health Care 5:51–57

    Article  Google Scholar 

  59. Miller SP, McQuillen PS, Hamrick S, Xu D, Glidden DV, Charlton N et al (2007) Abnormal brain development in newborns with congenital heart disease. N Engl J Med 357:1928–1938

    Article  PubMed  Google Scholar 

  60. Moons P, De Volder E, Budts W, De Geest S, Elen J, Waeytens K et al (2001) What do adult patients with congenital heart disease know about their disease, treatment, and prevention of complications? A call for structured patient education. Heart 86:74–80

    PubMed  PubMed Central  Google Scholar 

  61. Moons P, De GS, Budts W (2002) Comprehensive care for adults with congenital heart disease: expanding roles for nurses. Eur J Cardiovasc Nurs 1:23–28

    Article  PubMed  Google Scholar 

  62. Moons P, Van DK, Marquet K, Raes E, De BL, Budts W et al (2005) Individual quality of life in adults with congenital heart disease: a paradigm shift. Eur Heart J 26:298–307

    Article  PubMed  Google Scholar 

  63. Moons P, Sluysmans T, De Wolf D, Massin M, Suys B, Benetar A et al (2009) Congenital heart disease in 111 225 births in Belgium: birth prevalence, treatment and survival in the 21st century. Acta Paediatr 98:472–477

    Article  PubMed  Google Scholar 

  64. Oates RK, Turnbull JAB, Simpson JM, Cartmill TB (1994) Parent and teacher perceptions of child behavior following cardiac surgery. Acta Paediatr 83:1303–1307

    Article  PubMed  Google Scholar 

  65. Oechslin EN, Harrison DA, Connelly MS, Webb GD, Siu SC (2000) Mode of death in adults with congenital heart disease. Am J Cardiol 86:1111–1116

    Article  PubMed  Google Scholar 

  66. Pinquart M, Shen Y (2011) Behavior problems in children and adolescents with chronic physical illness: a meta-analysis. J Pediatr Psychol 36:1003–1016

    Article  PubMed  Google Scholar 

  67. Popelova J, Slavik Z, Skovranek J (2001) Are cyanosed adults with congenital cardiac malformations depressed? Cardiol Young 11:379–384

    Article  PubMed  Google Scholar 

  68. Price B (1996) Illness careers: the chronic illness experience. J Adv Nurs 24:275–279

    Article  PubMed  Google Scholar 

  69. Rankin J, Pattenden S, Abramsky L, Boyd P, Jordan H, Stone D et al (2005) Prevalence of congenital anomalies in five British regions, 1991-1999. Arch Dis Child Fetal Neonatal Ed 90:F374–F379

    Article  PubMed  PubMed Central  Google Scholar 

  70. Reid GJ, Irvine MJ, McCrindle BW, Sananes R, Ritvo PG, Siu SC et al (2004) Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects. Pediatrics 113:e197–e205

    Article  PubMed  Google Scholar 

  71. Reid GJ, Webb GD, Barzel M, McCrindle BW, Irvine MJ, Siu SC (2006) Estimates of life expectancy by adolescents and young adults with congenital heart disease. J Am Coll Cardiol 48:349–355

    Article  PubMed  Google Scholar 

  72. Reid GJ, Siu SC, McCrindle BW, Irvine MJ, Webb GD (2008) Sexual behavior and reproductive concerns among adolescents and young adults with congenital heart disease. Int J Cardiol 125:332–338

    Article  PubMed  Google Scholar 

  73. Report of the British Cardiac Society Working Party (2002) Grown-up congenital heart (GUCH) disease: current needs and provision of service for adolescents and adults with congenital heart disease in the UK. Heart 88:11–14

    Google Scholar 

  74. Rietveld S, Mulder BJ, van Beest I, Lubbers W, Prins PJ, Vioen S et al (2002) Negative thoughts in adults with congenital heart disease. Int J Cardiol 86:19–26

    Article  PubMed  Google Scholar 

  75. Rose M, Kohler K, Kohler F, Sawitzky B, Fliege H, Klapp BF (2005) Determinants of the quality of life of patients with congenital heart disease. Qual Life Res 14:35–43

    Article  PubMed  Google Scholar 

  76. Sable C, Foster E, Uzark K, Bjornsen K, Canobbio MM, Connolly HM et al (2011) Best practices in managing transition to adulthood for adolescents with congenital heart disease: the transition process and medical and psychosocial issues: a scientific statement from the American Heart Association. Circulation 123:1454–1485

    Article  PubMed  Google Scholar 

  77. Saidi A, Kovacs AH (2009) Developing a transition program from pediatric to adult-focused cardiology care: practical considerations. Congenit Heart Dis 4:139–146

    Article  Google Scholar 

  78. Saidi AS, Paolillo J, Fricker FJ, Sears SF, Kovacs AH (2007) Biomedical and psychosocial evaluation of “cured” adults with congenital heart disease. Congenit Heart Dis 2:44–54

    Article  PubMed  Google Scholar 

  79. Saliba Z, Butera G, Bonnet D, Bonhoeffer P, Villain E, Kachaner J et al (2001) Quality of life and perceived health status in surviving adults with univentricular heart. Heart 86:69–73

    PubMed  PubMed Central  Google Scholar 

  80. Salzer MU (2005) Highlights of the meeting of the Psychosocial Working Group of the Association for European Paediatric Cardiology, Vienna, March 4–6, 2004. Cardiol Young 15:111–113

    Article  Google Scholar 

  81. Simko LC, McGinnis KA (2003) Quality of life experienced by adults with congenital heart disease. AACN Clin Issues 14:42–53

    Article  PubMed  Google Scholar 

  82. Siu SC, Sermer M, Harrison DA, Grigoriadis E, Liu G, Spears J et al (1997) Risk and predictors for pregnancy-related complications in women with heart disease. Circulation 96:2789–2794

    Article  PubMed  Google Scholar 

  83. Siu SC, Sermer M, Colman JM, Alvarez AN, Mercier LA, Morton BC et al (2001) Prospective multicenter study of pregnancy outcomes in women with heart disease. Circulation 104:515–521

    Article  PubMed  Google Scholar 

  84. Siu SC, Colman JM, Sorensen S, Smallhorn JF, Farine D, Amankwah KS et al (2002) Adverse neonatal and cardiac outcomes are more common in pregnant women with cardiac disease. Circulation 105:2179–2184

    Article  PubMed  Google Scholar 

  85. Society for Adolescent Medicine (1993) Transition from child-centered to adult health care systems for adolescents with chronic conditions: a position paper. J Adolesc Health 14:570–576

    Article  Google Scholar 

  86. Somerville J (1997) Management of adults with congenital heart disease: an increasing problem. Annu Rev Med 48:283–293

    Article  PubMed  Google Scholar 

  87. Spijkerboer AW, Utens EMWJ, Bogers AJJC, Helbing WA, Verhulst FC (2008) A historical comparison of long-term behavioral and emotional outcomes in children and adolescents after invasive treatment for congenital heart disease. J Pediatr Surg 43:534–539

    Article  PubMed  Google Scholar 

  88. Suris JC, Resnick M, Cassuto N, Blum RW (1996) Sexual behavior of adolescents with chronic disease and disability. J Adolesc Health 19:124–131

    Article  PubMed  Google Scholar 

  89. Tagliabue G, Tessandori R, Caramaschi F, Fabiano S, Maghini A, Tittarelli A et al (1999) Descriptive epidemiology of selected birth defects, areas of Lombardy, Italy, 1999. Popul Health Metrics 5:4

    Article  Google Scholar 

  90. Ternestedt BM, Wall K, Oddsson H, Riesenfeld T, Groth I, Schollin J (2001) Quality of life 20 and 30 years after surgery in patients operated on for tetralogy of Fallot and for atrial septal defect. Pediatr Cardiol 22:128–132

    Article  PubMed  Google Scholar 

  91. Tong EM, Sparacino PS, Messias DK, Foote D, Chesla CA, Gilliss CL (1998) Growing up with congenital heart disease: the dilemmas of adolescents and young adults. CardiolYoung 8:303–309

    Google Scholar 

  92. Tyagi M, Austin K, Stygall J, Deanfield J, Cullen S, Newman SP (2014) What do we know about cognitive functioning in adult congenital heart disease? CardiolYoung 24:13–19

    Google Scholar 

  93. Utens EMWJ, Verhulst FC, Meijboom FJ, Duivenvoorden HJ, Erdman RAM, Bos E et al (1993) Behavioral and emotional problems in children and adolescents with congenital heart disease. Psychol Med 23:415–424

    Article  PubMed  Google Scholar 

  94. Utens EMWJ, Verhulst FC, Erdman RAM, Meijboom FJ, Duivenvoorden HJ, Bos E et al (1994) Psychosocial functioning of young adults after surgical correction for congenital heart disease in childhood: a follow-up study. J Psychosom Res 38:745–758

    Article  PubMed  Google Scholar 

  95. Utens EMWJ, Versluis-Den Bieman HJ, Verhulst FC, Meijboom FJ, Erdman RA, Hess J (1998) Psychopathology in young adults with congenital heart disease: follow-up results. Eur Heart J 19:647–651

    Article  PubMed  Google Scholar 

  96. Van Deyk K, Moons P, Gewillig M, Budts W (2004) Educational and behavioral issues in transitioning from pediatric cardiology to adult-centered health care. Nurs Clin N Am 39:755–768

    Article  Google Scholar 

  97. van Rijen EH, Utens EM, Roos-Hesselink JW, Meijboom FJ, van Domburg RT, Roelandt JR et al (2003) Psychosocial functioning of the adult with congenital heart disease: a 20-33 years follow-up. Eur Heart J 24:673–683

    Article  PubMed  Google Scholar 

  98. van Rijen EH, Utens EM, Roos-Hesselink JW, Meijboom FJ, van Domburg RT, Roelandt JR et al (2004) Medical predictors for psychopathology in adults with operated congenital heart disease. Eur Heart J 25:1605–1613

    Article  PubMed  Google Scholar 

  99. Verstappen A, Pearson D, Kovacs AH (2006) Adult congenital heart disease: the patient perspective. Cardiol Clin 24:515–529

    Article  PubMed  Google Scholar 

  100. Vonder Muhll I, Cumming G, Gatzoulis MA (2003) Risky business: insuring adults with congenital heart disease. Eur Heart J 24:1595–1600

    Article  PubMed  Google Scholar 

  101. Wacker A, Kaemmerer H, Hollweck R, Hauser M, Deutsch MA, Brodherr-Heberlein S et al (2005) Outcome of operated and unoperated adults with congenital cardiac disease lost to follow-up for more than five years. Am J Cardiol 95:776–779

    Article  PubMed  Google Scholar 

  102. Wang PS, Lane M, Olfson M, Pincus HA, Wells KB, Kessler RC (2005) Twelve-month use of mental health services in the United States: results from the National Comorbidity Survey Replication. Arch Gen Psychiatry 62:629–640

    Article  PubMed  Google Scholar 

  103. Warnes CA (2005) The adult with congenital heart disease: born to be bad? J Am Coll Cardiol 46:1–8

    Article  PubMed  Google Scholar 

  104. Warnes CA, Williams RG, Bashore TM et al (2008) ACC/AHA 2008 guidelines for the management of adults with congenital heart disease: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines. Circulation 118:e714–e833

    PubMed  Google Scholar 

  105. Wernovsky G (2006) Current insights regarding neurological and developmental abnormalities in children and young adults with complex congenital cardiac disease. Cardiol Young 16(Suppl 1):92–104

    Article  PubMed  Google Scholar 

  106. Wernovsky G (2008) Improving neurologic and quality-of-life outcomes in children with congenital heart disease: past, present, and future. J Thorac Cardiovasc Surg 135:240–242

    Article  PubMed  Google Scholar 

  107. Wernovsky G, Stiles KM, Gauvreau K, Gentles TL, duPlessis AJ, Bellinger DC et al (2000) Cognitive development after the Fontan operation. Circulation 102:883–889

    Article  PubMed  Google Scholar 

  108. Yeung E, Kay J, Roosevelt GE, Brandon M, Yetman AT (2008) Lapse of care as a predictor for morbidity in adults with congenital heart disease. Int J Cardiol 125:62–65

    Article  PubMed  Google Scholar 

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Kovacs, A.H., Reid, G.J. (2022). Congenital Heart Disease. In: Waldstein, S.R., Kop, W.J., Suarez, E.C., Lovallo, W.R., Katzel, L.I. (eds) Handbook of Cardiovascular Behavioral Medicine. Springer, New York, NY. https://doi.org/10.1007/978-0-387-85960-6_51

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