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Toward a Family-Sensitive Practice in Dementia

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Neuropsychiatric Symptoms of Cognitive Impairment and Dementia

Part of the book series: Neuropsychiatric Symptoms of Neurological Disease ((NSND))

Abstract

Families are often capable of managing a substantial proportion of the challenges related to the behavioral and psychological symptoms of dementia (BPSD). However, in most circumstances, persons with dementia and their family members need tailored help, including some kind of family intervention. Support and information are needed in general terms. Structured psychoeducation and systemic family therapy both respond to specific indications and require specialized training in order to be delivered appropriately. After setting the scene by guiding the reader through major references in the literature, this chapter discusses hints for addressing the family in routine clinical practice. A golden rule is that family issues must be assessed at some stage, in order to judge their importance in the BPSD context. This assessment is a necessary step toward whatever intervention is both indicated and possible, but besides this, assessments sometimes lead to changes in the family regardless of further intervention.

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Acknowledgments

I want to thank my son Francisco Pereira for his assistance with the artwork.

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Authors and Affiliations

  1. CEDOC, Chronic Diseases Research Center, Nova Medical School, Faculdade de Ciências Médicas, Universidade Nova de Lisboa, Campo Mártires da Pátria 130, 1169-056, Lisboa, Portugal

    Manuel Gonçalves-Pereira

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  1. Manuel Gonçalves-Pereira
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Correspondence to Manuel Gonçalves-Pereira .

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Editors and Affiliations

  1. Department of Neurosciences and Mental Health, Centro Hospitalar Lisboa Norte-Hospital de Santa Maria, Instituto de Medicina Molecular (IMM) and Instituto de Saúde Ambiental (ISAMB), Faculdade de Medicina, Universidade de Lisboa, Lisboa, Portugal

    Ana Verdelho

  2. CEDOC, Chronic Diseases Research Center, Nova Medical School, Faculdade de Ciências Médicas, Universidade Nova de Lisboa, Lisboa, Portugal

    Manuel Gonçalves-Pereira

Selected Readings

Selected Readings

In the recently updated International Psychogeriatric Association (IPA) Complete Guides to BPSD (2015), there is a very informative overview of family interventions in BPSD:

  • Brodaty, H., & Burns, K. (2015). Role of family caregivers. In B. Draper, H. Brodaty, & S. Finkel (Eds.), The IPA Complete Guides to Behavioral and Psychological Symptoms of Dementia (pp. 4.1–4.30). The International Psychogeriatrics Association, IPA.

For broader discussions of the topic in old age and dementia, other sources are recommended (together with Susan Benbow’s writings, as quoted in the text):

  • Qualls, S. H. (2014). Family therapy with ageing families. In N. A. Pachana & K. Laidlaw (Eds.), The Oxford Handbook of Clinical Geropsychology (pp. 710–732). Oxford: Oxford University Press.

  • Roper-Hall, A. (2008). Systemic interventions and older people. In Robert Woods & Linda Clare (Eds.), Handbook of the Clinical Psychology of Ageing (2nd ed., p. 489–504). Wiley Blackwell.

  • Zarit, S. H., & Zarit, J. M. (2007). Mental disorders in older adults: Fundamentals of assessment and treatment (2nd ed.). The Guilford Press.

Portuguese readers may also be interested in:

  • Gonçalves-Pereira, M., & Sampaio, D. (2011). Trabalho com famílias em psiquiatria geriátrica [Family work in geriatric psychiatry]. Acta Médica Portuguesa, 24 Suppl 4, 819–26.

  • Gonçalves-Pereira, M., & Sampaio, D. (2011). Psicoeducação familiar na demência: da clínica à saúde pública [Family psychoeducation in dementia: From clinical practice to public health]. Revista Portuguesa de Saúde Pública, 29, 3–10.

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Gonçalves-Pereira, M. (2017). Toward a Family-Sensitive Practice in Dementia. In: Verdelho, A., Gonçalves-Pereira, M. (eds) Neuropsychiatric Symptoms of Cognitive Impairment and Dementia. Neuropsychiatric Symptoms of Neurological Disease. Springer, Cham. https://doi.org/10.1007/978-3-319-39138-0_16

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