Skip to main content

Discerning Biological, Psychological and Social Mechanisms in the Impact of Epilepsy on the Individual: A Framework and Exploration

  • Chapter
New Directions in the Sociology of Chronic and Disabling Conditions

Abstract

There are very few scientists or clinicians who would deny that a proper grasp of the ‘whys’ and ‘hows’ of the insinuation of epilepsy into individuals’ lives calls on contributions from a growing range of disciplines. These range from genetics at what might be regarded as one end of the spectrum to anthropology at the other. In this chapter we refer to biological, psychological and social mechanisms in full realization that this represents a kind of shorthand for the gamut of discipline-based inputs into any comprehensive understanding of epilepsy and its effects. Our purpose is not to review this extensive and fragmented literature (again), but to explore the possibility of moving on conceptually and scientifically and to offer some empirical illustrations.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 109.00
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
Hardcover Book
USD 139.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  • Afentouli, P. (2008) The Impact of Epilepsy: Developing More Robust Models of Causality, unpublished dissertation for the M.Sc. in Clinical Neuroscience, UCL.

    Google Scholar 

  • Aldenkamp, A. and Hendriks, M. (2000) Managing Cognitive and Behavioural Consequences of Epilepsy. In G. Baker and A. Jacoby (eds), Quality of Life in Epilepsy: Beyond Seizure Counts in Assessment and Treatment. Amsterdam: Harwood Academic Publishers.

    Google Scholar 

  • Archer, M. (1995) Realist Social Theory: The Morphogenetic Approach. Cambridge: Cambridge University Press.

    Book  Google Scholar 

  • Archer, M., Bhaskar, R., Collier, A., Lawson, T. and Norrie, A. (eds) (1998) Critical Realism: Essential Readings. London: Routledge.

    Google Scholar 

  • Benbadis, S. (2007) Errors in EEGs and the Misdiagnosis of Epilepsy: Importance, Causes, Consequences and Proposed Remedies. Epilepsy and Behaviour 11: 257–62.

    Article  Google Scholar 

  • Berkovic, S., Harkin, L., Mcmahon, J., Pelekanos, J., Zuberi, S., Wirrell, E., Gill, D., Iona, X., Mulley, J. and Scheffer, I. (2006) De-Novo Mutations of the Sodium Channel Gene Scnia in Alleged Vaccine Encephalography: A Retrospective Study. Lancet Neurology 5: 488–92.

    Article  Google Scholar 

  • Bhaskar, R. (1978) A Realist Theory of Science (2nd ed.). Brighton: Harvester.

    Google Scholar 

  • Bhaskar, R. (1989) The Possibility of Naturalism (2nd ed.). Hemel Hempstead: Harvester Wheatsheaf.

    Google Scholar 

  • Bhaskar, R. (2008) Grounds for Critique. Plenary Lecture. International Association for Critical Realism Annual Conference, King’s College London.

    Google Scholar 

  • Birbeck, G. (2006) Interventions to Reduce Epilepsy-Related Stigma. Psychology, Health and Medicine 11: 364–66.

    Article  Google Scholar 

  • Bourdieu, P. (1977) Outline of a Theory of Practice. Cambridge: Cambridge University Press.

    Book  Google Scholar 

  • Bury, M. (1982) Chronic Illness as Biographical Disruption. Sociology of Health and Illness A 167–82.

    Article  Google Scholar 

  • Bury, M. (1991) The Sociology of Chronic Illness: A Review of Research and Prospects. Sociology of Health and Illness 13: 167–82.

    Article  Google Scholar 

  • Chadwick, D. and Smith, D. (2002) The Misdiagnosis of Epilepsy: The Rate of Misdiagnosis and Wide Treatment Choices Are Arguments for Specialist Care in Epilepsy. British Medical Journal 324: 495–6.

    Article  Google Scholar 

  • Charmaz, K. (1983) Loss of Self: A Fundamental Form of Suffering in the Chronically 111. Sociology of Health and Illness 5: 168–95.

    Article  Google Scholar 

  • Collier, A. (1994) Critical Realism: An Introduction to Roy Bhaskar’s Philosophy. London: Verso.

    Google Scholar 

  • Creaven, S. (2000) Marxism and Realism: A Materialist Application of Realism in the Social Sciences. London: Routledge.

    Google Scholar 

  • Danermark, B., Ekstrom, M., Jakobsen, L. and Karlsson, J. (2002) Explaining Society: Critical Realism in the Social Sciences. London: Routledge.

    Google Scholar 

  • Freidson, E. (1970) Profession of Medicine. New York: Dodds, Mead & Co.

    Google Scholar 

  • Hopkins, A. (1987) The Causes and Precipitation of Seizures. In A. Hopkins (ed.), Epilepsy. London: Chapman Hall.

    Google Scholar 

  • Joseph, J. (2002) Five Ways in Which Critical Realism Can Help Marxism. In A. Brown, S. Fleetwood and J. Roberts (eds), Critical Realism and Marxism. London: Routledge.

    Google Scholar 

  • King, G., Willoughby, C, Specht, J. and Brown, E. (2006) Social Support Processes and the Adaptation of Individuals with Chronic Disabilities. Qualitative Health Research 16: 902–25.

    Article  Google Scholar 

  • Kleinman, A. (1985) Indigenous Systems of Healing: Questions for Professional, Popular and Folk Care. In J. Salmon (ed.), Alternatives Medicines: Popular and Policy Perspectives. London: Tavistock.

    Google Scholar 

  • Lawson, T. (1997) Economics and Reality. London: Routledge.

    Book  Google Scholar 

  • Mulley, J., Scheffer, I., Petrou, S., Dibbens, L., Berkovic, S. and Harkin, L. (2005) Scnia Mutations and Epilepsy. Human Mutations 25: 535–42.

    Article  Google Scholar 

  • Scambler, G. and Hopkins, A. (1986) ‘Being Epileptic’: Coming to Terms with Stigma. Sociology of Health and Illness 8: 26–43.

    Article  Google Scholar 

  • Scambler, G. (1989) Epilepsy. London: Tavistock.

    Google Scholar 

  • Scambler, G. (2004) Re-framing Stigma: Felt and Enacted Stigma and Challenges to the Sociology of Chronic and Disabling Conditions. Social Theory and Health 2: 29–46.

    Article  Google Scholar 

  • Scambler, G. (2007) Social Structure and the Production, Reproduction and Durability of Health Inequalities. Social Theory and Health 5: 297–315.

    Article  Google Scholar 

  • Scambler, G. and Scambler, S. (2003) Realist Agendas on Biology, Health and Medicine. In S. Williams, L. Birke and G. Bendelow (eds), Debating Biology: Sociological Reflections on Health, Medicine and Society. London: Routledge.

    Google Scholar 

  • Scambler, S. (2005) Exposing the Limitations of Disability Theory: The Case of Juvenile Batten Disease. Social Theory and Health 3: 144–64.

    Article  Google Scholar 

  • Shahwan, A., Farrell, M. and Delanty, N. (2005) Progressive Myoclonic Epilepsies: A Review of Genetic and Therapeutic Aspects. Lancet Neurology 4: 239–48.

    Article  Google Scholar 

  • Shostak, S. and Ottman, R. (2006) Ethical, Legal, and Social Determinants of Epilepsy Genetics. Epilepsia 47: 1595–602.

    Article  Google Scholar 

  • Strauss, A. and Corbin, J. (1990) Basics of Qualitative Research: Grounded Theory Procedures and Techniques. Newbury Park, CA: Sage.

    Google Scholar 

  • Tate, S., Depondt, C, Sisodiya, S., Cavalleri, G., Schorge, S., Soranzo, N., Thom, M., Sen, A., Shorvon, S., Sander, J., Wood, N. and Goldstein, D. (2005) Genetic Predictors of the Maximum Doses Receive during Clinical Use of the Anti-Epileptic Drugs Carbamazepine and Phenytoin. Proceedings of The National Academy of Sciences USA 12: 5507–12.

    Google Scholar 

  • Tate, S., Singh, R., Hung, C, Tai, J., Depondt, C, Cavalleri, G., Sisodiya, S., Goldstein, D. and Liou, H. (2006) A Common Polymorphism in the Scnia Gene Associates with Phenytoin Serum Levels at Maintenance Doses. Pharmacogenetic Genomics 16: 721–6.

    Article  Google Scholar 

  • Temkin, O. (1945) The Falling Sickness. Baltimore, MD: Johns Hopkins University Press.

    Google Scholar 

  • Thomas, C. (2007) Sociologies of Disability and Illness: Contested Ideas in Disability and Medical Sociology. London: Palgrave.

    Google Scholar 

  • Williams, G. (1984) The Genesis of Chronic Illness: Narrative Reconstruction. Sociology of Health and Illness 6: 174–200.

    Google Scholar 

  • Williams, S. (1999) Is Anybody There? Critical Realism, Chronic Illness and the Disability Debate. Sociology of Health and Illness 21: 797–819.

    Article  Google Scholar 

  • Winawer, M. and Shinnar, S. (2005) Genetic Epidemiology of Epilepsy or What Do We Tell Families? Epilepsia 46, Supplement 10: 24–30.

    Article  Google Scholar 

Download references

Authors

Editor information

Editors and Affiliations

Copyright information

© 2010 Graham Scambler, Panagiota Afentouli and Caroline Selai

About this chapter

Cite this chapter

Scambler, G., Afentouli, P., Selai, C. (2010). Discerning Biological, Psychological and Social Mechanisms in the Impact of Epilepsy on the Individual: A Framework and Exploration. In: Scambler, G., Scambler, S. (eds) New Directions in the Sociology of Chronic and Disabling Conditions. Palgrave Macmillan, London. https://doi.org/10.1057/9780230297432_6

Download citation

Publish with us

Policies and ethics