Introduction

  • Alexandra L. Adame
  • Matthew Morsey
  • Ronald Bassman
  • Kristina Yates
Chapter

Abstract

The coauthors summarize the circumstances that brought them together to write a book about psychiatric survivors who are also mental health professionals. Outlining the distinction between expertise by training and expertise by experience, this chapter presents goals for dialogue, shared understanding, and the development of therapeutic ways of working with others based on the authors’ own experiences as patients and clients. This introductory chapter centers on the authors’ dual identities as mental health professionals who have also been on the receiving end of services, and discusses the ways in which they understand the intersection of those experiences on their lives and work.

References

  1. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: American Psychiatric Association.Google Scholar
  2. Beresford, P. (2007). The role of service user research in generating knowledge-based health and social care: From conflict to contribution. Evidence & Policy, 3, 329–341.CrossRefGoogle Scholar
  3. Beresford, P., & Wilson, A. (2010). Genes spell danger: Mental health service users/survivors, bioethics and control. Disability & Society, 17(5), 541–553.CrossRefGoogle Scholar
  4. Bezo, B., & Maggi, S. (2015). Living in “survival mode”: Intergenerational transmission of trauma from the Holodomor genocide of 1932–1933 in Ukraine. Social Science & Medicine, 134, 87–94.CrossRefGoogle Scholar
  5. Boyd, J. E., Zeiss, A., Reddy, S., & Skinner, S. (2016). Accomplishments of 77 VA mental health professionals with a lived experience of mental illness. American Journal of Orthopsychiatry, 86(6), 610–619.CrossRefPubMedGoogle Scholar
  6. Canning, C. (2006). Psychiatric survivor testimonials and embodiment: Emotional challenges to medical knowledge. Radical Psychology: A Journal of Psychology, Politics, and Radicalism, 5, 1–19.Google Scholar
  7. Chamberlin, J. (1994). A psychiatric survivor speaks out. Feminism & Psychology, 4, 284–287.CrossRefGoogle Scholar
  8. Clews, J. (2014). Could experts by experience gain positions of real power? Mental Health Today, 24–27.Google Scholar
  9. Cohen, M. B. (2004). Voices from an invisible movement: Mental health consumer/survivor/ex-patient activism. Reflections: Narratives of Professional Helping, 10(4), 50–61.Google Scholar
  10. Cresswell, M. (2005). Psychiatric “survivors” and testimonies of self-harm. Social Science and Medicine, 61, 1668–1677.CrossRefPubMedGoogle Scholar
  11. Cresswell, M., & Spandler, H. (2013). The engaged academic: Academic intellectuals and the psychiatric survivor movement. Social Movement Studies, 12(2), 138–154.CrossRefGoogle Scholar
  12. Filson, B. (2016). The haunting can end: Trauma-informed approaches in healing from abuse and adversity. In J. Russo & A. Sweeney (Eds.), Searching for a rose garden: Challenging psychiatry, fostering mad studies (pp. 20–24). Monmouth, UK: PCCS Books Ltd.Google Scholar
  13. Fook, J., & Askeland, G. A. (2007). Challenges of critical reflection: ‘Nothing ventured, nothing gained’. Social Work Education, 26(5), 520–533.CrossRefGoogle Scholar
  14. Hall, A., McKenna, B., Dearie, V., Maguire, T., Charleston, R., & Furness, T. (2016). Educating emergency department nurses about trauma informed care for people presenting with mental health crisis: A pilot study. BMC Nursing, 15, 1–8.CrossRefGoogle Scholar
  15. Harding, C. M., Brooks, G. W., Ashikaga, T., Strauss, J. S., & Breier, A. (1987a). The Vermont longitudinal study of persons with severe mental illness I: Methodology, study sample, and overall status 32 years later. American Journal of Psychiatry, 144, 718–726.CrossRefPubMedGoogle Scholar
  16. Harding, C. M., Brooks, G. W., Ashikaga, T., Strauss, J. S., & Breier, A. (1987b). The Vermont longitudinal study of persons with severe mental illness II: Long-term outcome of subjects who retrospectively met DSM-III criteria for schizophrenia. American Journal of Psychiatry, 144, 727–735.CrossRefPubMedGoogle Scholar
  17. Harper, D., & Speed, E. (2012). Uncovering recovery: The resistible rise of recovery and resilience. Studies in Social Justice, 6(1), 9–25.CrossRefGoogle Scholar
  18. Jones, N., & Brown, R. (2013). The absence of psychiatric c/s/x perspectives in academic discourse: Consequences and implications. Disability Studies Quarterly, 33. Retrieved from http://dsq-sds.org/article/view/3433/3198
  19. Klengel, T., & Binder, E. B. (2015). Epigenetics of stress-related psychiatric disorders and gene × environment interactions. Neuron, 86(6), 1343–1357.CrossRefPubMedGoogle Scholar
  20. Leblanc, S., & Kinsella, E. A. (2016). Toward epistemic justice: A critically reflexive examination of ‘sanism’ and implications for knowledge generation. Studies in Social Justice, 10(1), 59–78.CrossRefGoogle Scholar
  21. Lincoln, Y. S. (1997). Self, subject, audience, text: Living at the edge, writing in the margins. In W. G. Tierney & Y. S. Lincoln (Eds.), Representation and the text: Reframing the narrative voice (pp. 37–56). Albany, NY: State University of New York Press.Google Scholar
  22. MacGillivary, H., & Nelson, G. (1998). Partnership in mental health: What it is and how to do it. Canadian Journal of Rehabilitation, 12(2), 71–83.Google Scholar
  23. MacNeil, C., & Mead, S. (2005). A narrative approach to developing standards for trauma informed peer support. American Journal of Education, 26, 231–244.Google Scholar
  24. McLaughlin, H. (2009). What’s in a name: ‘Client’, ‘patient’, ‘customer’, ‘consumer’, ‘expert by experience’, ‘service user’—What’s next? British Journal of Social Work, 39, 1101–1117.CrossRefGoogle Scholar
  25. Morrison, L. J. (2005). Talking back to psychiatry: The psychiatric consumer/survivor/ex-patient movement. New York: Routledge.Google Scholar
  26. Olesen, V. (2005). Early millennial feminist qualitative research: Challenges and contours. In N. K. Denzin & Y. S. Lincoln (Eds.), The Sage handbook of qualitative research (3rd ed., pp. 235–278). Thousand Oaks, CA: Sage.Google Scholar
  27. Perkins, R., Rinaldi, M., & Hardisty, J. (2010). Harnessing the expertise of experience: Increasing access to employment within mental health services for people who have themselves experienced mental health problems. Diversity in Health Care, 7, 13–21.Google Scholar
  28. Ramo-Fernández, L., Schneider, A., Wilker, S., & Kolassa, I. (2015). Epigenetic alterations associated with war trauma and childhood maltreatment. Behavioral Sciences & the Law, 33(5), 701–721.CrossRefGoogle Scholar
  29. Russo, J. (2012). Survivor-controlled research: A new foundation for thinking about psychiatry and mental health. Forum Qualitative Social Research, 13(1), art 8. http://nbn-resolving.de/urn:nbn:de:0114-fgs120187
  30. Russo, J., & Beresford, P. (2015). Between exclusion and colonization: Seeking a place for mad people’s knowledge in academia. Disability & Society, 30(1), 153–157.CrossRefGoogle Scholar
  31. Sayce, L. (2000). From psychiatric patient to citizen: Overcoming discrimination and social exclusion. Basingstoke, UK: Macmillan Press Ltd.CrossRefGoogle Scholar
  32. Toikko, T. (2016). Becoming an expert by experience: An analysis of service users’ learning process. Social Work in Mental Health, 14(3), 292–312.CrossRefGoogle Scholar
  33. Vickers, M. H. (2002). Researchers as storytellers: Writing on the edge: And without a safety net. Qualitative Inquiry, 8, 608–621.CrossRefGoogle Scholar
  34. Walker, C., Hanna, P., & Hart, A. (2015). Psychology without psy professionals: Exploring an unemployed centre families project as a mental health resource. Journal of Community & Applied Social Psychology, 25, 502–514.CrossRefGoogle Scholar

Copyright information

© The Author(s) 2017

Authors and Affiliations

  • Alexandra L. Adame
    • 1
  • Matthew Morsey
    • 2
  • Ronald Bassman
    • 3
  • Kristina Yates
    • 4
  1. 1.Seattle UniversitySeattleUSA
  2. 2.Private PracticeSan FranciscoUSA
  3. 3.Private PracticeBoulderUSA
  4. 4.RetiredOaklandUSA

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