Disabled Children in Out-of-Home Care: Issues and Challenges for Practice

  • Berni Kelly
  • Sandra Dowling
  • Karen Winter


Despite consistent evidence of great risk of abuse or neglect for disabled children and their over-representation in the public care system, there has been a notable gap in research into the experiences of disabled children in contact with child protection services or placed in out-of-home care (Dowling, Kelly & Winter, 2013). This chapter discusses findings from a qualitative study that sought to address this gap in knowledge by investigating the experiences of disabled children living in out-of-home care. The chapter will explore the complexities of family support permanence, participation and access to specialist services, drawing on the views of disabled children and young people, their birth parents/carers and social workers. Finally, we will explore the implications of the study findings in relation to theorising disabled childhoods and informing critical approaches to working with disabled children in out-of-home care.  


Out-of-home care Safeguarding Permanence and participation 


  1. Akrami, N., Ekehammar, B., Claesson, M., & Sonnander, K. (2006). Classical and Modern Prejudice: Attitudes Towards People with Intellectual Disabilities. Research in Developmental Disabilities, 27, 605617.CrossRefGoogle Scholar
  2. Baker, C. (2007). Disabled Children’s Experience of Permanency in the Looked After System. British Journal of Social Work, 37, 1173–1188.CrossRefGoogle Scholar
  3. Burrell, B., & Trip, H. (2011). Reform and Community Care: Has De-institutionalisation Delivered for People with Intellectual Disability? Nursing Inquiry, 18(2), 174–183.CrossRefGoogle Scholar
  4. Cantwell, N., Davidson, J., Elsley, S., Milligan, I., & Quinn, N. (2013). Moving Forward: Implementing the United Nations Guidelines for the Alternative Care of Children. Glasgow: Centre for Excellence for Looked After Children in Scotland.Google Scholar
  5. Cousins, J. (2006). Every Child Is Special: Placing Disabled Children for Permanence. London: British Association for Adoption and Fostering.Google Scholar
  6. Dowling, S., Kelly, B., & Winter, K. (2013). Disabled Children and Young People Who Are Looked After: A Literature Review. Belfast: OFMDFM and Queen’s University Belfast.Google Scholar
  7. Emerson, E. (2010). Deprivation, Ethnicity and the Prevalence of Intellectual and Developmental Disabilities. Journal of Epidemiology and Community Health, 68, 218–224.Google Scholar
  8. Franklin, A., Raws, P., & Smeaton, E. (2015). Under Protected, Over Protected: Meeting the Needs of Young People with Learning Disabilities Who Experience, or Are at Risk of, Sexual Exploitation. London: Barnardo’s.Google Scholar
  9. Hill, L., Baker, C., Kelly, B., & Dowling, S. (2015). Being Counted? Examining the Prevalence of Looked-After Disabled Children and Young People Across the UK. Child and Family Social Work. doi: 10.1111/cfs.12239.
  10. Jones, L., Bellis, M. B., Wood, S., Hughes, K., McCoy, E., Eckley, L., Bates, G., Christopher, M., Shakespeare, T., & Officer, A. (2012). Prevalence and Risk of Violence Against Children with Disabilities: A Systematic Review and Meta-analysis of Observational Studies. The Lancet, 380(9845), 899–907.CrossRefGoogle Scholar
  11. Kelly, B., & Dowling, S. (2015). Safeguarding Disabled Children and Young People: A Scoping Exercise of Statutory Child Protection Services for Disabled Children and Young People in Northern Ireland. Belfast: Safeguarding Board NI.Google Scholar
  12. Kelly, B., Dowling, S., & Winter, K. (2014). A Review of the Legislative and Policy Context in Relation to Looked After Disabled Children and Young People in Northern Ireland. Belfast: OFMDFM/Queen’s University Belfast.Google Scholar
  13. Kelly, B., Dowling, S., & Winter, K. (2015). Profiling the Population of Disabled Looked After Children and Young People in Northern Ireland. Belfast: Queen’s University Belfast/OFMDFM.Google Scholar
  14. Kelly, B., Dowling, S., & Winter, K. (2016). Addressing the Needs and Experiences of Disabled Children and Young People in Out-of-Home Care. Belfast: Queen’s University Belfast/OFMDFM.Google Scholar
  15. Lightfoot, E., Hill, K., & LaLiberte, T. (2011). Prevalence of Children with Disabilities in the Child Welfare System and Out of Home Placement: An Examination of Administrative Records. Children and Youth Services Review, 33, 2069–2075.CrossRefGoogle Scholar
  16. McConkey, R., Nixon, T., Donaghy, E., & Mulhern, D. (2004). The Characteristics of Children with a Disability Looked After Away From Home and Their Future Service Needs. British Journal of Social Work, 34(4), 561–576.CrossRefGoogle Scholar
  17. Morris, J. (1999). Disabled Children, Child Protection Systems and the Children Act 1989. Child Abuse Review, 8, 91–108.CrossRefGoogle Scholar
  18. Murray, M., & Osborne, C. (2009). Safeguarding Disabled Children: Practice Guidance. Nottingham: DCSF.Google Scholar
  19. Oswin, M. (1978). Children Living in Long-Stay Hospitals. London: Spastics International Medical Publications.Google Scholar
  20. Philips, R. (1998). Disabled Children in Permanent Substitute Families. In C. Robinson & K. Stalker (Eds.), Growing Up with Disability. London/Philadelphia: Jessica Kingsley Publishers.Google Scholar
  21. Schmidt, V., & Bailey, J. D. (2014). Institutionalization of Children in the Czech Republic: A Case of Path Dependency. Journal of Sociology and Social Welfare, 41, 53.Google Scholar
  22. Stalker, K., & McArthur, K. (2012). Child Abuse, Child Protection and Disabled Children: A Review of Recent Research. Child Abuse Review, 21(1), 24–40.CrossRefGoogle Scholar
  23. Sullivan, P. M., & Knutson, J. (2000). The Association Between Child Maltreatment and Disabilities in a Hospital-Based Epidemiological Study. Child Abuse & Neglect, 22, 271–288.CrossRefGoogle Scholar
  24. Taylor, J., Cameron, A., Jones, C., Franklin, A., Stalker, K., & Fry, D. (2015). Deaf and Disabled Children Talking About Child Protection. Edinburgh: University of Edinburgh & NSPCC.Google Scholar
  25. Westcott, H. L., & Jones, D. (1999). Annotation: The Abuse of Children. Journal of Child Psychology and Psychiatry, 40, 497–506.CrossRefGoogle Scholar

Copyright information

© The Author(s) 2018

Authors and Affiliations

  • Berni Kelly
    • 1
  • Sandra Dowling
    • 2
  • Karen Winter
    • 1
  1. 1.Queen’s University BelfastBelfastUK
  2. 2.The University of BristolBristolUK

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