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Making Space for the Embodied Participation of Young Disabled Children in a Children’s Centre in England

  • Heloise Maconochie
Chapter

Abstract

  • This chapter (re)-presents three stories and reflections on the perspectives of one young disabled child’s experiences of participation in the context of a children’s centre in England.

  • Young disabled children are often excluded from participatory processes and are amongst the least listened to people in society.

  • This chapter shows how to reflexively ‘read’ children’s multimodal communicative practices and pay attention to the often taken-for-granted objects, routines and interactions of their everyday lives.

  • To make space for a more inclusive theory of participation that embraces young, non-verbal disabled children, participation needs to be framed to incorporate embodied performances (including bodily gestures, acts of resistance, emotional tone), as well as voice.

References

  1. Alderson, P. (2001). Young Children’s Health Care Rights and Consent. In B. Franklin (Ed.), New Handbook of Children’s Rights: Comparative Policy and Practice (pp. 155–167). London: Routledge.Google Scholar
  2. Alderson, P. (2008). Young Children’s Rights: Exploring Beliefs, Principles and Practice (2nd ed.). London: Jessica Kingsley Publishers.Google Scholar
  3. Alderson, P., Hawthorne, J., & Killen, M. (2005). The Participation Rights of Premature Babies. International Journal of Children’s Rights, 13(1), 31–50.CrossRefGoogle Scholar
  4. Boyden, J., & Ennew, J. (1997). Children in Focus: A Manual for Participatory Research with Children. Stockholm: Rädda Barnen.Google Scholar
  5. Brewer, J. D. (2000). Ethnography. Buckingham: Open University Press.Google Scholar
  6. Cavet, J., & Sloper, P. (2004). Participation of Disabled Children in Individual Decisions About Their Lives and in Public Decisions About Service Development. Children and Society, 18(4), 278–290.CrossRefGoogle Scholar
  7. Clark, A., McQuail, S., & Moss, P. (2003). Exploring the Field of Listening to and Consulting with Young Children. Nottingham: DES Publications.Google Scholar
  8. Cockburn, T. (1998). Children and Citizenship in Britain: A Case for a Socially Interdependent Model of Citizenship. Childhood, 5(1), 99–117.CrossRefGoogle Scholar
  9. Cocks, A. (2006). The Ethical Maze: Finding an Inclusive Path Towards Gaining Children’s Agreement to Research Participation. Childhood, 13(2), 247–266.CrossRefGoogle Scholar
  10. Corker, M., & Davis, J. M. (2000). Disabled Children—(Still) Invisible Under the Law. In J. Cooper & S. Vernon (Eds.), The Law, Rights and Disability (pp. 217–237). London: Jessica Kingsley.Google Scholar
  11. Dahlberg, G., & Moss, P. (2005). Ethics and Politics in Early Childhood Education. London: Routledge Falmer.CrossRefGoogle Scholar
  12. Davis, J. M., & Watson, N. (2000). Disabled Children’s Rights in Every Day Life: Problematising Notions of Competency and Promoting Self-Empowerment. International Journal of Children’s Rights, 8(3), 211–228.Google Scholar
  13. Davis, J. M., & Watson, N. (2001). Where Are the Children’s Experiences? Analysing Social and Cultural Exclusion in ‘Special’ and ‘Mainstream’ Schools. Disability and Society, 16(5), 671–687.CrossRefGoogle Scholar
  14. Davis, J. M., & Watson, N. (2006). Countering Stereotypes of Disability: Disabled Children and Resistance. In M. Corker & T. Shakespeare (Eds.), Disability/Postmodernity: Embodying Disability Theory (pp. 159–174). London: Continuum.Google Scholar
  15. Department for Education (DfE). (2009–2015). Evaluation of Children’s Centres in England (ECCE) [online]. https://www.gov.uk/government/collections/evaluation-of-childrens-centres-in-england-ecce. Accessed 20 May 2016.
  16. Flewitt, R. (2005). Is Every Child’s Voice Heard? Researching the Different Ways 3-Year-Old Children Communicate and Make Meaning at Home and in a Preschool Playgroup. Early Years, 25(3), 207–222.CrossRefGoogle Scholar
  17. Flewitt, R. (2006). Using Video to Investigate Preschool Classroom Interaction: Education Research Assumptions and Methodological Practices. Visual Communication, 5(1), 25–50.CrossRefGoogle Scholar
  18. Foucault, M. (1977). Discipline and Punish: The Birth of a Prison. London: Penguin.Google Scholar
  19. Franklin, A., & Sloper, P. (2009). Supporting the Participation of Disabled Children and Young People in Decision-Making. Children and Society, 23(1), 3–15.CrossRefGoogle Scholar
  20. Fraser, N. (1999). Social Justice in the Age of Identity Politics: Redistribution, Recognition and Participation. In L. Ray & A. Sayer (Eds.), Culture and Economy After the Cultural Turn (pp. 25–52). London: Sage.CrossRefGoogle Scholar
  21. Hart, R. (1992). Children’s Participation: From Tokenism to Citizenship. Florence: UNICEF.Google Scholar
  22. James, A., & Prout, A. (Eds.). (1997). Constructing and Reconstructing Childhood (2nd ed.). London: Falmer.Google Scholar
  23. Komulainen, S. (2007). The Ambiguity of the Child’s “Voice” in Social Research. Childhood, 14, 11–28.CrossRefGoogle Scholar
  24. Latour, B. (2002). Morality and Technology: The End of Means. Theory, Culture and Society, 19(5/6), 247–260.CrossRefGoogle Scholar
  25. Maconochie, H. (2013). Young Children’s Participation in a Sure Start Children’s Centre (Unpublished PhD Thesis) [online]. http://shura.shu.ac.uk/7437/. Accessed 20 May 2015.
  26. Malaguzzi, L. (1993). For an Education Based on Relationships. Young Children, 49(1), 9–17.Google Scholar
  27. Moosa-Mitha, M. (2005). A Difference-Centred Alternative to Theorization of Children’s Citizenship Rights. Citizenship Studies, 9(4), 369–388.CrossRefGoogle Scholar
  28. Pascal, C., & Bertram, T. (2009). Listening to Young Citizens: The Struggle to Make Real a Participatory Paradigm in Research with Young Children. European Early Childhood Education Research Journal, 17(2), 249–262.CrossRefGoogle Scholar
  29. Roche, J. (1999). Children, Rights, Participation and Citizenship. Childhood, 6(4), 475–493.CrossRefGoogle Scholar
  30. Tisdall, E. K. M. (2012). The Challenge and Challenging of Childhood Studies? Learning from Disability Studies and Research with Disabled Children. Children and Society, 26(3), 181–191.CrossRefGoogle Scholar
  31. Tudge, J., & Hogan, D. (2005). An Ecological Approach to Observations of Children’s Everyday Lives. In S. Greene & D. Hogan (Eds.), Researching Children’s Experiences (pp. 102–122). London: Sage.Google Scholar
  32. UNCRC (United Nations Committee on the Rights of the Child). (2006). The Rights of Children with Disabilities, General Comment 9. Geneva: OHCHR CRC/C/GC/9. 27 February 2007 [online]. http://www.childrensrights.ie/files/CRC-GC9_Disability06.pdf. Accessed 22 Sept 2009
  33. United Nations. (1989). Convention on the Rights of the Child. Geneva: United Nations.Google Scholar
  34. Warming, H. (2005). Participant Observation: A Way to Learn About Children’s Perspectives. In A. Clark, A. T. Kjørholt, & P. Moss (Eds.), Beyond Listening: Children’s Perspectives on Early Childhood Services (pp. 51–70). Bristol: The Policy Press.CrossRefGoogle Scholar
  35. Young, I. M. (2000). Inclusion and Democracy. New York: Oxford University Press.Google Scholar

Copyright information

© The Author(s) 2018

Authors and Affiliations

  • Heloise Maconochie
    • 1
  1. 1.Indiana University Purdue University Fort WayneFort WayneUSA

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