Skip to main content

Responsible Innovation: The Case of Alzheimer Diagnostics

  • Chapter
  • First Online:
Emerging Technologies for Diagnosing Alzheimer's Disease

Part of the book series: Health, Technology and Society ((HTE))

Abstract

Biomedical innovation is often envisioned as a linear process, translating results of lab research into the clinic. The assumption is that deliberation with different concerned parties contributes to responsible innovation. Focusing on the case of Alzheimer diagnostics, Pols and M’charek demonstrate that innovations do not emerge in a linear way. Patient advocacy movements engage with scientific research, and research and clinical practices are highly intertwined. Yet, research and clinical practices may also have very different problem definitions, aims, knowledge, concerns, and pace. Pols and M’charek argue that responsible innovation, rather than privileging a particular type of laboratory research, should start innovations by taking notice of the different manifestations of ‘Alzheimer problems’ and the different science-clinic-representation practices needed to address these problems.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Subscribe and save

Springer+ Basic
EUR 32.99 /Month
  • Get 10 units per month
  • Download Article/Chapter or Ebook
  • 1 Unit = 1 Article or 1 Chapter
  • Cancel anytime
Subscribe now

Buy Now

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 84.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Hardcover Book
USD 109.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Similar content being viewed by others

References

  • Anderson, W. 2008. The Collectors of Lost Souls: Turning Kuru Scientists into Whitemen. Baltimore, MD: Johns Hopkins University Press.

    Google Scholar 

  • Anderson, W. 2013. Objectivity and Its Discontents. Social Studies of Science 43(4): 557–576.

    Article  Google Scholar 

  • ANL. 2015. http://www.alzheimer-nederland.nl/. Accessed 22 Jul 2015.

  • Beard, R.L. 2004. Advocating Voice. Organisational, Historical and Social Milieu of Alzheimer’s Disease Movement. Sociology of Health & illness 26(6): 797–819.

    Article  Google Scholar 

  • Bond, J. 1992. The Medicalization of Dementia. Journal of Aging Studies 6(4): 397–403.

    Article  Google Scholar 

  • Borup, M., N. Brown, K. Konrad, and H. van Lente. 2006. The Sociology of Expectations in Science and Technology. Technology Analysis & Strategic Management 18: 285–298.

    Article  Google Scholar 

  • Brown, N. 2003. Hope Against Hype: Accountability in Biopasts, Presents and Futures. Science Studies 16(2): 3–21.

    Google Scholar 

  • Brown, N., and M. Michael. 2003. A Sociology of Expectations: Retrospecting Prospects and Prospecting Retrospects. Technology Analysis & Strategic Management 15: 3–18.

    Article  Google Scholar 

  • CBO. 2005 Richtlijn Diagnostiek en medicamenteuze behandeling van dementie. Alphen aan de Rijn: Van Zuiden Communications B.V.

    Google Scholar 

  • Dhedhi, S.A., D. Swinglehurst, and J. Russell. 2014. ‘Timely’ Diagnosis of Dementia: What Does It Mean? A Narrative Analysis of GPs’ Accounts. BMJ Open 4(3): e004439.

    Article  Google Scholar 

  • Epstein, S. 1996. Impure Science; AIDS, Activism, and the Politics of Knowledge. Berkeley: University of California Press.

    Google Scholar 

  • Harbers, H. 2005. Epilogue: Political Materials – Material Politics. In Inside the Politics of Technology: Agency and Normativity in the Co-Production of Technology and Society, ed. H. Harbers, 257–272. Amsterdam: Amsterdam University Press.

    Chapter  Google Scholar 

  • Kitwood, T. 1993. Towards a Theory of Dementia Care: The Interpersonal Process. Aging and Society 17(1): 51–67.

    Article  Google Scholar 

  • Leibing, A. 2008. Entangled Matters: Alzheimer’s, Interiority, and the “Unflattening” of the World. Culture, Medicine, and Psychiatry 32(2): 177–193.

    Article  Google Scholar 

  • M’charek, A. 2014. Race, Time and Folded Objects: The HeLa Error. Theory, Culture and Society 31(6): 29–56.

    Article  Google Scholar 

  • Mitchell, A.J., N. Meader, and M. Pentzek. 2011. Clinical Recognition of Dementia and Cognitive Impairment in Primary Care: A Meta-Analysis of Physician Accuracy. Acta Psychiatrica Scandinavica 124(3): 165–183.

    Article  Google Scholar 

  • Mol, A. 2002. The Body Multiple: Ontology in Medical Practice. Durham, NC: Duke University Press.

    Book  Google Scholar 

  • Mol, A. 2006. Proving or Improving: On Health Care Research as a Form of Self-Reflection. Qualitative Health Research 16: 405–414.

    Article  Google Scholar 

  • Moreira, T., O. O’Donovan, and E. Howlett. 2014. Assembling Dementia Care: Patient Organisations and Social Research. BioSocieties 9(2): 173–193.

    Article  Google Scholar 

  • Moser, I. 2010. Perhaps Tears Should Not Be Counted but Wiped Away: On Quality and Improvement in Dementia Care. In Care in Practice: On Tinkering in Clinics, Homes and Farms, eds. A. Mol, I. Moser, and J. Pols, 277–300. Bielefeld: Transcript Verlag.

    Google Scholar 

  • Moser, I. 2011. Dementia and the Limits to Life: Anthropological Sensibilities, STS Interferences, and Possibilities for Action in Care. Science, Technology and Human Values 36(5): 704–722.

    Article  Google Scholar 

  • NHG. 2012. NHG-Standaard dementie. https://www.nhg.org/standaarden/volledig/nhg-standaard-dementie

  • Pols, J. 2014. Knowing patients: turning patient knowledge into science. Science, Technology & Human Values, 39(1): 64–87.

    Google Scholar 

  • Prins, A., F. Hemke, J. Pols, and E. Moll van Charante. (2016). Diagnosing Dementia in Dutch General Practice. British Journal of General Practice. http://bjgp.org/content/66/647/e416

  • Rabeharisoa, V., T. Moreira, and M. Akrich. 2014. Evidence-Based Activism: Patients’, Users’ and Activists’ Groups in Knowledge Society. BioSocieties 9(2): 111–128.

    Article  Google Scholar 

  • Van den Dungen, P., H.W. van Marwijk, H.E. van der Horst, E.P. Moll van Charante, J. MacNeil Vroomen, P.M. Van der Ven, and H.P. van Hout. 2012. The Accuracy of Family Physicians’ Dementia Diagnoses at Different Stages of Dementia: A Systematic Review. International Journal of Geriatric Psychiatry 27(4): 342–354.

    Google Scholar 

  • Whitehouse, P., and D. George. 2008. The Myth of Alzheimer’s: What You Aren’t Being Told About Today’s Most Dreaded Diagnosis. New York: St. Martin’s Press.

    Google Scholar 

Download references

Acknowledgements

We thank the project leader of the medical project used as exemplar here for generously making available their protocol and the researchers involved in the study of GP diagnostic practice for our discussions and their permission to use their texts for this chapter.

Author information

Authors and Affiliations

Authors

Editor information

Editors and Affiliations

Copyright information

© 2016 The Author(s)

About this chapter

Cite this chapter

Pols, J., M’charek, A. (2016). Responsible Innovation: The Case of Alzheimer Diagnostics. In: Boenink, M., van Lente, H., Moors, E. (eds) Emerging Technologies for Diagnosing Alzheimer's Disease. Health, Technology and Society. Palgrave Macmillan, London. https://doi.org/10.1057/978-1-137-54097-3_11

Download citation

  • DOI: https://doi.org/10.1057/978-1-137-54097-3_11

  • Published:

  • Publisher Name: Palgrave Macmillan, London

  • Print ISBN: 978-1-137-54096-6

  • Online ISBN: 978-1-137-54097-3

  • eBook Packages: Social SciencesSocial Sciences (R0)

Publish with us

Policies and ethics