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Responsible Innovation: The Case of Alzheimer Diagnostics

  • Jeannette Pols
  • Amade M’charek
Chapter
Part of the Health, Technology and Society book series (HTE)

Abstract

Biomedical innovation is often envisioned as a linear process, translating results of lab research into the clinic. The assumption is that deliberation with different concerned parties contributes to responsible innovation. Focusing on the case of Alzheimer diagnostics, Pols and M’charek demonstrate that innovations do not emerge in a linear way. Patient advocacy movements engage with scientific research, and research and clinical practices are highly intertwined. Yet, research and clinical practices may also have very different problem definitions, aims, knowledge, concerns, and pace. Pols and M’charek argue that responsible innovation, rather than privileging a particular type of laboratory research, should start innovations by taking notice of the different manifestations of ‘Alzheimer problems’ and the different science-clinic-representation practices needed to address these problems.

Keywords

Research Practice Research Proposal Patient Organization Memory Clinic Responsible Innovation 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

Notes

Acknowledgements

We thank the project leader of the medical project used as exemplar here for generously making available their protocol and the researchers involved in the study of GP diagnostic practice for our discussions and their permission to use their texts for this chapter.

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Copyright information

© The Author(s) 2016

Authors and Affiliations

  • Jeannette Pols
    • 1
  • Amade M’charek
    • 2
  1. 1.Section of Medical Ethics, Department of General Practice, Academic Medical CentreAmsterdamThe Netherlands
  2. 2.Department of AnthropologyUniversity of AmsterdamAmsterdamThe Netherlands

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