Spirituality, Chronic Illness, and Healing: Unique Challenges and Opportunities
Abstract
Understandings of health, well-being, disease, and illness have changed drastically over the past century, as life expectancy has increased and as treatments for diseases once considered fatal have created an experience we call chronic illness. Prior to the twentieth century, diseases either were resolved or resulted in death, and access to medical treatment was not available to most people. In developed nations today, there has been an epidemiological shift from shorter life expectancy and high death rates from acute, infectious, parasitic diseases to longer life expectancy and ongoing, chronic illness (Lynn & Adamson, 2003). According to Lynn and Adamson (2003), most Americans live their last days in institutional settings rather than at home, and most will spend the final two years of their life coping with chronic illness or disability. Adding to that group younger people with chronic illness, the aging baby-boomer generation which has yet to develop chronic illness, and those who encounter people with chronic illness at work, school, or in social settings, makes the potential range and impact of chronic illness seem overwhelming. In addition, societal changes have occurred that have altered the way people cope with chronic illness and disability. Today’s global society and highly transient lifestyle means that many people who live with chronic illness are not in situations in which they can be cared for, assisted by, or supported by nearby family members.
Keywords
Multiple Sclerosis Chronic Illness Spiritual Practice Spiritual Healing Pastoral TheologyPreview
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References
- Arora, K. (2009). “Models of understanding chronic illness: Implications for pastoral theology and care.” The Journal of Pastoral Theology, 19(1), 22–37.CrossRefGoogle Scholar
- Barnes, L. & Sered, S. (2005). Religion and healing in America. Oxford: Oxford University Press.Google Scholar
- Bishop, M. (2005). “Quality of life and psychological adaptation to chronic illness and disability: Preliminary analysis of a conceptual and theoretical synthesis.” Rehabilitation Counseling Bulletin, 48, 219–231.CrossRefGoogle Scholar
- Bouma, G. (2000). “Spirituality and religion,” in M. Poole & R. Jureidini (eds). Sociology: Australian connections. Sydney: Allen and Unwin.Google Scholar
- Centers for Disease Control and Prevention. (2009). Chronic diseases at a glance: The power to prevent, the call to control. Retrieved from http://www.cdc.gov/nccdphp/publications/AAG/pdf/chronic.pdf.Google Scholar
- Charmaz, K. (1983). Loss of self: A fundamental form of suffering in the chronically ill. Sociology of Health and Illness 5(2), 168–195.CrossRefGoogle Scholar
- Charmaz, K. (1991). Good days, bad days: The self in chronic illness and in time. NewBrunswick, NJ: Rutgers University Press.Google Scholar
- Charmaz, K. (1995). “The body, identity, and self: Adapting to impairment.” The Sociological Quarterly, 36, 657–680.CrossRefGoogle Scholar
- Cook, C. C. H. (2004). “Addiction and spirituality.” Addiction, 99, 539–551.CrossRefGoogle Scholar
- Eastland, L. S., Herndon, S. L. & Barr, J. (eds). (1999). Communication in recovery: Perspectives on twelve-step groups. Cresskill, NJ: Hampton Press, Inc.Google Scholar
- Fasching, D. & Dechant, D. (eds). (2001). Comparative religious ethics: A narrative approach. Maiden, MA: Blackwell Publishing.Google Scholar
- Frank. A. (1991). At the will of the body: Reflections on illness. Boston: Houghton Mifflin.Google Scholar
- Frank. A. (1995). The wounded story teller: Body, illness and ethics. Chicago: University of Chicago Press.CrossRefGoogle Scholar
- Frankl, V. (1984). Man’s search for meaning. New York: NY: Simon & Schuster.Google Scholar
- Garland-Thompson, R. (1994). “Redrawing the boundaries of feminist disability studies.” Feminist Studies, 20, 586.Google Scholar
- Garrett, C. (2001). “Sources of hope in chronic illness.” Health Sociology Review, 10(2): 99–108.CrossRefGoogle Scholar
- Garrett, C. (2002). “Spirituality and healing in the sociology of chronic illness.” Health Sociology Review, 11(1–2), 61–69.CrossRefGoogle Scholar
- Gockel, A. (2009). “Spirituality and the process of healing: A narrative study.” The International Journal for the Psychology of Religion, 19, 217–230.CrossRefGoogle Scholar
- Green, R. (2012). African American parents’ experiences in their children’s health care encounters (Doctoral dissertation). Retrieved from Kennesaw State University DigitalCommons: http://digitalcommons.kennesaw.edu/etd/498.Google Scholar
- Hagerty, B. & Patusky, K. (2003). “Reconceptualizing the nurse-patient relationship.” Journal of Nursing Scholarship, 35(2), 145–150.CrossRefGoogle Scholar
- Hawkins, H. (1993). Reconstructing illness: Studies in pathography. West Lafayette, Indiana: Purdue University Press.Google Scholar
- Kabat-Zinn, J. (2009). Full catastrophe living: Using the wisdom of the body and mind to facestress, pain and illness. New York: NY: Bantam Dell.Google Scholar
- Kaye, J. & Raghavan, S. K. (2002). “Spirituality in disability and illness.” Journal of Religion and Health, 47(3): 231–242.CrossRefGoogle Scholar
- Kleinman, A. (2006). What really matters: Living a moral life amidst uncertainty and danger. Oxford: Oxford University Press.Google Scholar
- Kleinman, A. (1988). The illness narratives. New York: Basic Books.Google Scholar
- Koenig, H., King, D. & Carson, V. (eds). (2012). Handbook of religion and health: Second edition. New York: Oxford University Press.Google Scholar
- Koenig, H. (2005). Afterword: A physician’s reflections. In L. Barnes & S. Sered (Eds). Religion and Healing in American. Oxford: Oxford University Press, 505–507.Google Scholar
- Koenig, H. G. (2000). “Religion, spirituality and medicine: Application to clinical practice.” Journal of the American Medical Association, 284, 1708–1731.CrossRefGoogle Scholar
- Kohn, L. (2007). “Daoyin: Chinese healing exercises.” Asian Medicine, 3, 103–129.CrossRefGoogle Scholar
- Kralik, D., Koch, T., Price, K. & Howard, N. (2004). “Chronic illness self-management: Taking action to create order.” Journal of Clinical Nursing, 13, 259–267.CrossRefGoogle Scholar
- Krok, D. (2008). “The role of spirituality in coping: Examining the relationships between spiritualdimensions and coping styles.” Mental Health, Religion & Culture, 11(7), 643–653.CrossRefGoogle Scholar
- Livneh, H. & Antonak, R. F. (2005). “Psychosocial adaptation to chronic illness disability: Aprimer for counselors.” Journal of Counseling & Development, 83, 12–20.CrossRefGoogle Scholar
- Longmore, P. & Umansky, L. (eds). (2001). The new disability history: Americanperspectives. New York and London: New York University Press.Google Scholar
- Lynn, J. & Adamson, D. (2003). Living well at the end of life: adapting health care to seriouschronic illness in old age [White Paper]. Retrieved from The Washington Home Centerfor Palliative Care Studies: http://www.rand.org/pubs/white_papers/WP137.html Google Scholar
- McCollum, A. (1994). “Roundtable discussion women with disabilities: A Challenge to feminist theology.” Journal of Feminist Studies in Religion, 10(2), 122–129.Google Scholar
- McColman, C. (1997). Where body and soul encounter the sacred. Georgetown, Massachusetts: North Star Publications.Google Scholar
- McNulty, K., Livneh, H. & Wilson, L. M. (2004). “Perceived uncertainty, spiritual well-being, and psychosocial adaptation in individuals with multiple sclerosis.” Rehabilitation Psychology, 49, 91–99.CrossRefGoogle Scholar
- Moss, P. & Dyck, I. (1999). “Body, corporeal space, and legitimating chronic illness: Women diagnosed with M.E.” Antipode, 31(4), 372–397.CrossRefGoogle Scholar
- Nichols, L. & Hunt, B. (2011). “The significance of spirituality for individuals with chronic illness: Implications for mental health counseling.” Journal of Mental Health Counseling, 33(1), 51–66.CrossRefGoogle Scholar
- Price, M. (1993). “Exploration of body listening: Health and physical awareness in chronic illness.” Advances in Nursing Science, 15(4), 37–52.CrossRefGoogle Scholar
- Register, C. (1978). Living with chronic illness: Days of patience and passion. New York: The Free Press.Google Scholar
- Reynolds, T. (2008). Vulnerable communion: A theology of disability and hospitality. Grand Rapids, MI: Brazos Press.Google Scholar
- Sacks, O. (1991). A leg to stand on. London: Picador.Google Scholar
- Scheper-Hughes N. & Lock, M. (1986). “Speaking ‘truth’ to illness: Metaphors, reification, and a pedagogy for patients.” Medical Anthropology Quarterly, 17(5), 137–140.CrossRefGoogle Scholar
- Schumm, D. & Stoltzfus, M. (2011). “Beyond models: Some tentative Daoist contributions to disability studies,” in D. Schumm & M. Stoltzfus (eds). Disability and religious diversity: Cross-cultural and, interreligious perspectives. New York, NY: Palgrave Macmillan, 103–122.CrossRefGoogle Scholar
- Schumm, D. & Stoltzfus, M. (2011). “Chronic illness and disability: Narratives of suffering and healing,” in D. Schumm & M. Stoltzfus (eds), Disability and religious diversity: Cross-cultural and interreligious perspectives. New York, NY: Palgrave Macmillan, 159–175.CrossRefGoogle Scholar
- Schutz, A. (1962). “Symbol, reality, and society,” in M. Natanson (ed.). The problem of social reality: Collected papers I. The Hague: Martinus Nijhoff, 287–339.CrossRefGoogle Scholar
- Schutz, A. & Luckman, T. (1983). The structures of the lifeworld: Volume II. Trans. R. Zaner & D. Parent. Evanston, IL: Northwestern University Press.Google Scholar
- Sharts-Hopko, N. C. (2003). “Spirituality and health care,” in J.T. Catalano (ed.). Nursing now: Today’s issues, tomorrows trends (2nd ed). Philadelphia: F.A. Davis, 347–371.Google Scholar
- Shaw, S. (2007). “Responding appropriately to patients with chronic illness.” Nursing Standard, 21(24), 35–39.CrossRefGoogle Scholar
- Simundson, D. J. (2001). Faith under fire: How the bible speaks to us in times of suffering. Lima, Ohio: Academic Renewal Press.Google Scholar
- Stanley, R. (2009). “Neurobiology of chakras and prayer.” Zygon, 4(44), 825–846.CrossRefGoogle Scholar
- Stoll, R. I. (1989). “The essence of spirituality,” in V. B. Carson (ed.). Spiritual dimensions of nursing practice. Philadelphia: Saunders, 4–23.Google Scholar
- Stone, S. D. (1995). “The myth of bodily perfection.” Disability and Society, 10, 413–424.CrossRefGoogle Scholar
- Sawatzsky, R., Ratner, P. A. & Chiu, L. (2005). “A meta-analysis of the relationship between spirituality and quality of life.” Social Indicators Research, 72, 153–188.CrossRefGoogle Scholar
- Taylor, B. (2010). Reflective practice for healthcare professionals. Berkshire: UK: Open University Press.Google Scholar
- Thorne, S. (2006). “Patient-provider communication in chronic illness: a health promotion window of opportunity.” Family & Community Health, 29(1S), 4S–11S.CrossRefGoogle Scholar
- Toombs, K. (1995). “Chronic illness and the goals of medicine.” Second Opinion, 21(1), 11–22.1Google Scholar
- Thompson, C. J. (2003). “Natural health discourse and the therapeutic production of consumer resistance.” The Sociological Quarterly, 44(1), 81–107.CrossRefGoogle Scholar
- Wagner, E., Austin, B., Davis, C., Hindmarsh, M., Schaefer, J. & Bonomi, A. (2001). “Improving chronic illness care: Translating evidence into action.” Health Affairs, 20(6), 64–78.CrossRefGoogle Scholar
- Wellard, S. (1998). “Constructions of chronic illness.” International Journal of Nursing Studies, 35, 49–55.CrossRefGoogle Scholar
- Wendell, S. (1996). The rejected body: Feminist philosophical reflections on disability. New York: Routledge.Google Scholar
- Wendell, S. (2001). “Unhealthy disabled: Treating chronic illnesses as disabilities.” Hypatia, 16(4), 17–33.CrossRefGoogle Scholar
- Wielawski, I. (2006). “Improving chronic illness care,” in S. Isaacs & J. Rickman (eds). To improve health and health care. Princeton, NJ: The Robert Wood Johnson Foundation, vol. X, 1–17.Google Scholar
- Wills, M. (2007). “Connection, action and hope: An invitation to reclaim the ’spiritual’ in health care.” Journal of Religion and Health, 46(3), 423–436.CrossRefGoogle Scholar