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Privacy Issues in Data-Driven Health Care

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Data-Driven Approach for Bio-medical and Healthcare

Part of the book series: Data-Intensive Research ((DIR))

Abstract

Data-driven health care is truly valuable and promising. As long as relevant data are gathered, probed, used, and managed in a good fashion, significant improvements in the dependability of healthcare practices are achievable. Nevertheless, unless privacy facets of relevant sensitive data are addressed, there are notable concerns regarding data-driven healthcare policies and applications. In general, technical and engineering facets of such interventions are concentered on to a greater extent, but privacy facets are not adequately addressed. This chapter highlights and discusses privacy issues in data-driven health care. A comprehensive review and distillation of pertinent literature and works yielded relevant results and interpretations. Purposefully, generic privacy issues are elaborated in the beginning. Additionally, areas for improvement regarding privacy issues in data-driven health care are underlined and discussed. People, policy, and technology aspects are also explained and deliberated. Moreover, how privacy is related to people and policy to ensure the success in data-driven healthcare practices is discussed in this chapter. Besides, people’s perceptions about privacy are distilled and reported. The focal impact of this chapter is to deliver a contemporary interpretation and discussion regarding privacy issues in data-driven health care. Product developers and managers, policy-makers, and pertinent researchers might benefit from this chapter in order to improve related knowledge and implementations.

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References

  1. Hathaliya JJ, Tanwar S (2020) An exhaustive survey on security and privacy issues in Healthcare 4.0. Comput Commun 153:311–335. https://doi.org/10.1016/j.comcom.2020.02.018

    Article  Google Scholar 

  2. Raghupathi W, Raghupathi V (2014) Big data analytics in healthcare: promise and potential. Health Inf Sci Syst 2:3. https://doi.org/10.1186/2047-2501-2-3

    Article  Google Scholar 

  3. Yasnoff WA (2003) Privacy, confidentiality, and security of public health information. In: O’Carroll PW, Ripp LH, Yasnoff WA et al (eds) Public health informatics and information systems. Health informatics. Springer, New York, pp 199–212

    Google Scholar 

  4. Meingast M, Roosta T, Sastry S (2006) Security and privacy issues with health care information technology. In: 2006 International conference of the IEEE engineering in medicine and biology society. IEEE, pp 5453–5458

    Google Scholar 

  5. Kondylakis H, Stefanidis K, Rao P (2021) Report on the third international workshop on semantic web meets health data management (SWH 2020). ACM SIGMOD Rec 50:32–35. https://doi.org/10.1145/3503780.3503792

    Article  Google Scholar 

  6. Chaki J (2021) Introduction to digital future of healthcare. In: Digital future of healthcare. CRC Press, pp 1–10

    Google Scholar 

  7. Kolasa K, Goettsch W, Petrova G, Berler A (2020) Without data, you’re just another person with an opinion. Expert Rev Pharmacoecon Outcomes Res 20:147–154. https://doi.org/10.1080/14737167.2020.1751612

    Article  Google Scholar 

  8. Degerli M, Ozkan Yildirim S (2020) Identifying critical success factors for wearable medical devices: a comprehensive exploration. Univ Access Inf Soc. https://doi.org/10.1007/s10209-020-00763-2

    Article  Google Scholar 

  9. Ullah K, Shah MA, Zhang S (2016) Effective ways to use the Internet of Things in the field of medical and smart health care. In: 2016 international conference on intelligent systems engineering (ICISE). IEEE, pp 372–379

    Google Scholar 

  10. Dey N, Ashour AS, Bhatt C (2017) Internet of Things driven connected healthcare. Internet of Things and big data technologies for next generation healthcare. Springer, Cham, pp 3–12

    Chapter  Google Scholar 

  11. Batarseh FA, Ghassib I, Chong D, Su P-H (2020) Preventive healthcare policies in the US: solutions for disease management using big data analytics. J Big Data 7:38. https://doi.org/10.1186/s40537-020-00315-8

    Article  Google Scholar 

  12. Low LL, Yan S, Kwan YH et al (2018) Assessing the validity of a data-driven segmentation approach: a 4 year longitudinal study of healthcare utilization and mortality. PLoS ONE 13:e0195243. https://doi.org/10.1371/journal.pone.0195243

    Article  Google Scholar 

  13. Rahim FA, Ismail Z, Samy GN (2013) Information privacy concerns in electronic healthcare records: a systematic literature review. In: 2013 international conference on research and innovation in information systems (ICRIIS). IEEE, pp 504–509

    Google Scholar 

  14. Sohail SA, Bukhsh FA, van Keulen M (2021) Multilevel privacy assurance evaluation of healthcare metadata. Appl Sci 11:10686. https://doi.org/10.3390/app112210686

    Article  Google Scholar 

  15. de Fuentes JM, Gonzalez-Manzano L, Lopez J et al (2019) Editorial: security and privacy in Internet of Things. Mob Netw Appl 24:878–880. https://doi.org/10.1007/s11036-018-1150-8

    Article  Google Scholar 

  16. Hahanov V, Miz V (2015) Big data driven healthcare services and wearables. In: The experience of designing and application of CAD systems in microelectronics. IEEE, pp 310–312

    Google Scholar 

  17. Abouelmehdi K, Beni-Hessane A, Khaloufi H (2018) Big healthcare data: preserving security and privacy. J Big Data 5:1. https://doi.org/10.1186/s40537-017-0110-7

    Article  Google Scholar 

  18. Martínez-Pérez B, de la Torre-Díez I, López-Coronado M (2015) Privacy and security in mobile health apps: a review and recommendations. J Med Syst 39:181. https://doi.org/10.1007/s10916-014-0181-3

    Article  Google Scholar 

  19. Brusil P (2015) Healthcare security and privacy. In: Computer security handbook. Wiley, Hoboken, pp 71.1–71.66

    Google Scholar 

  20. Kasar S, Kshirsagar M (2021) Open challenges in smart cities: privacy and security. In: Studies in systems, decision and control, pp 25–36

    Google Scholar 

  21. Agrawal V (2015) Security and privacy issues in wireless sensor networks for healthcare. In: Giaffreda R, Vieriu R-L, Pasher E et al (eds) Internet of Things. User-centric IoT. Springer International Publishing, Cham, pp 223–228

    Chapter  Google Scholar 

  22. Florczak KL (2021) Privacy: an elusive concept. Nurs Sci Q 34:113–113. https://doi.org/10.1177/0894318420987172

    Article  Google Scholar 

  23. Haklai Z, Mostovoy D, Gordon ES et al (2014) The Israel national hospital discharge register: an essential component of data driven healthcare. Stud Health Technol Inf 197:59–63. https://doi.org/10.3233/978-1-61499-389-6-59

    Article  Google Scholar 

  24. Witjas-Paalberends ER, van Laarhoven LPM, van de Burgwal LHM et al (2018) Challenges and best practices for big data-driven healthcare innovations conducted by profit–non-profit partnerships—a quantitative prioritization. Int J Healthc Manag 11:171–181. https://doi.org/10.1080/20479700.2017.1371367

    Article  Google Scholar 

  25. Jahan S, Chowdhury M, Islam R, Gao J (2018) Security and privacy protection for eHealth data. In: Communications in computer and information science. Springer, pp 197–205

    Google Scholar 

  26. Kupwade Patil H, Seshadri R (2014) Big data security and privacy issues in healthcare. In: 2014 IEEE international congress on big data. IEEE, pp 762–765

    Google Scholar 

  27. Degerli M, Ozkan Yildirim S (2021) Enablers for IoT regarding wearable medical devices to support healthy living: the five facets. In: Studies in computational intelligence. Springer, Singapore, pp 201–222

    Google Scholar 

  28. Chong KM (2021) Privacy-preserving healthcare informatics: a review. ITM Web of Conf 36:04005. https://doi.org/10.1051/itmconf/20213604005

    Article  Google Scholar 

  29. Pika A, Wynn MT, Budiono S et al (2020) Privacy-preserving process mining in healthcare. Int J Environ Res Public Health 17:1612. https://doi.org/10.3390/ijerph17051612

    Article  Google Scholar 

  30. Karunarathne SM, Saxena N, Khan MK (2021) Security and privacy in IoT smart healthcare. IEEE Internet Comput 25:37–48. https://doi.org/10.1109/MIC.2021.3051675

    Article  Google Scholar 

  31. Avancha S, Baxi A, Kotz D (2012) Privacy in mobile technology for personal healthcare. ACM Comput Surv 45:1–54. https://doi.org/10.1145/2379776.2379779

    Article  Google Scholar 

  32. Asghar MR, Lee T, Baig MM et al (2017) A review of privacy and consent management in healthcare: a focus on emerging data sources. In: 2017 IEEE 13th international conference on e-science (e-science). IEEE, pp 518–522

    Google Scholar 

  33. Wang L, Jones R (2019) Big data, cybersecurity, and challenges in healthcare. In: 2019 SoutheastCon. IEEE, pp 1–6

    Google Scholar 

  34. Kumar D, Kumar SA, Kumar P, Wahab MHA (2019) The importance of healthcare information privacy through blockchain. In: Security and privacy of electronic healthcare records: concepts, paradigms and solutions. Institution of Engineering and Technology, pp 321–344

    Google Scholar 

  35. Singh N, Jangra A, Elamvazuthi I, Kashyap K (2017) Healthcare data privacy measures to cure & care cloud uncertainties. In: 2017 4th international conference on signal processing, computing and control (ISPCC). IEEE, pp 402–407

    Google Scholar 

  36. Caine K (2016) Privacy is healthy. IEEE Pervasive Comput 15:14–19. https://doi.org/10.1109/MPRV.2016.61

    Article  Google Scholar 

  37. Su X, Hyysalo J, Rautiainen M et al (2016) Privacy as a service: protecting the individual in healthcare data processing. Computer 49:49–59. https://doi.org/10.1109/MC.2016.337

    Article  Google Scholar 

  38. Singh A, Chatterjee K (2019) Security and privacy issues of electronic healthcare system: a survey. J Inf Optim Sci 40:1709–1729. https://doi.org/10.1080/02522667.2019.1703265

    Article  Google Scholar 

  39. Rahim FA, Muruti G, Ismail Z, Samy GN (2018) A qualitative analysis of information privacy concerns among healthcare employees. Int J Secur Appl 12:69–78. https://doi.org/10.14257/ijsia.2018.12.1.06

  40. Wehrens R, Stevens M, Kostenzer J et al (2021) Ethics as discursive work: the role of ethical framing in the promissory future of data-driven healthcare technologies. Sci Technol Human Values 016224392110536.https://doi.org/10.1177/01622439211053661

  41. Adu EK, Mills A, Todorova N (2021) Factors influencing individuals’ personal health information privacy concerns. A study in Ghana. Inf Technol Dev 27:208–234. https://doi.org/10.1080/02681102.2020.1806018

    Article  Google Scholar 

  42. Hwang H-G, Lin Y (2020) Evaluating people’s concern about their health information privacy based on power-responsibility equilibrium model: a case of Taiwan. J Med Syst 44:112. https://doi.org/10.1007/s10916-020-01579-6

    Article  Google Scholar 

  43. Alghanim AA, Rahman SMM, Hossain MA (2017) Privacy analysis of smart city healthcare services. In: 2017 IEEE international symposium on multimedia (ISM). IEEE, pp 394–398

    Google Scholar 

  44. Beck EJ, Gill W, de Lay PR (2016) Protecting the confidentiality and security of personal health information in low- and middle-income countries in the era of SDGs and Big Data. Glob Health Action 9:32089. https://doi.org/10.3402/gha.v9.32089

    Article  Google Scholar 

  45. Gille F, Brall C (2021) Limits of data anonymity: lack of public awareness risks trust in health system activities. Life Sci Soc Policy 17:7. https://doi.org/10.1186/s40504-021-00115-9

    Article  Google Scholar 

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Authors and Affiliations

  1. Graduate School of Informatics, Middle East Technical University, 06800, Ankara, Turkey

    M. Degerli

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  1. M. Degerli
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Correspondence to M. Degerli .

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Editors and Affiliations

  1. Department of Computer Science and Engineering, Techno International New Town, Kolkata, West Bengal, India

    Nilanjan Dey

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Degerli, M. (2023). Privacy Issues in Data-Driven Health Care. In: Dey, N. (eds) Data-Driven Approach for Bio-medical and Healthcare. Data-Intensive Research. Springer, Singapore. https://doi.org/10.1007/978-981-19-5184-8_2

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