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Patient-Reported Outcome Measures as Driving Factors to Transform Surgical Cleft Care

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Current Concept in Cleft Surgery

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Abstract

Most healthcare systems constantly quantify an ever-increasing amount of outcome measures of processes and volumes, but these often miss what matters to patients. Patient-reported outcome and proxy-reported outcome measures are valuable tools to collect comprehensive, clinically meaningful data on the impact of a condition and its treatment from the patient’s perspective. In recent years, there has been rising interest in the adoption of patient-reported outcome measure instruments, which could be the best patient-focused outcome measure of delivering value in health care, representing that patients’ symptom or condition is improving or worsening through their interaction with different elements of the healthcare system. In this chapter, the authors explore the current paradigm shift in cleft-related outcome measures toward definitely involving patient-reported outcome measures in cleft clinical and research settings. The authors’ background toward involving patient-reported outcome measures as driven elements for a culture-shifting from a provider-centered to a patient-focused surgical care model was described. Strategies were delineated to support other teams in the implementation process of patient-reported outcome measures in routine surgical cleft practice, health service evaluation, and research settings. Engaged surgeons and other members of multidisciplinary cleft teams leading these patient-reported outcome measures-focused initiatives would compose the basis to influence on necessary changes at the government level.

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Authors and Affiliations

  1. Plastic and Cleft-Craniofacial Surgery, A&D DermePlastique, São Paulo, Brazil

    Rafael Denadai

  2. Plastic and Reconstructive Surgery, Chang Gung Memorial Hospital, Taoyuan, Taiwan

    Lun-Jou Lo

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  1. Rafael Denadai
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Correspondence to Rafael Denadai .

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  1. Plastic and Cleft-Craniofacial Surgery, A&D DermePlastique, São Paulo, Brazil

    Rafael Denadai

  2. Plastic and Reconstructive Surgery, Chang Gung Memorial Hospital, Taoyuan, Taiwan

    Lun-Jou Lo

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Denadai, R., Lo, LJ. (2022). Patient-Reported Outcome Measures as Driving Factors to Transform Surgical Cleft Care. In: Denadai, R., Lo, LJ. (eds) Current Concept in Cleft Surgery. Springer, Singapore. https://doi.org/10.1007/978-981-19-3163-5_6

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