Skip to main content

Severe Brain Injury and Boundary Work

  • Chapter
  • First Online:
  • 290 Accesses

Abstract

Based on the concept of boundary work, this chapter focuses on how survivors of severe traumatic brain injury construe themselves and the rest of society, and how enacting boundaries is especially important for these individuals’ constitution of self. The qualitative study features in-depth interviews with working-age people from across Denmark five years post injury. The data suggest two diverse age-related constructions of boundary work. The older respondents reinforced collective norms of the typical brain-injured individual, thus manifesting strong symbolic boundaries at the levels of both individual and collective identity. However, the younger respondents, who had more at stake, sought to challenge the predominant stereotypes of being unable to work and thus transform their collective identity. The chapter concludes that boundary work for survivors of severe traumatic brain injury is a continuous process even many years after their accident; these individuals must negotiate the official categories into which they are placed, along with the types of discourse that sustain them, despite being relatively well rehabilitated.

This is a preview of subscription content, log in via an institution.

Buying options

Chapter
USD   29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD   109.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD   139.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD   139.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Learn about institutional subscriptions

References

  • Bourdieu, P. (1984). Distinction. Cambridge, MA: Harvard University Press.

    Google Scholar 

  • Danish Health Authority. (2011). Hjerneskaderehabilitering – en medicinsk teknologivurdering [Brain injury rehabilitation – A health technology assessment]. www.sst.dk/~/media/CB8CCFE77832456C8B1BABF2F558A661.ashx. Accessed 26 Jan 2019.

  • Das-Gupta, R., & Turner-Stokes, L. (2002). Traumatic brain injury. Disability & Rehabilitation, 24(13), 654–665.

    Article  Google Scholar 

  • DiMaggio, P. (1987). Classification in art. American Sociological Review, 52(4), 440–455.

    Article  Google Scholar 

  • Epstein, C. F. (1992). Tinkerbells and pinups: The construction and reconstruction of gender boundaries at work. In M. Lamont & M. Fournier (Eds.), Cultivating differences: Symbolic boundaries and the making of inequality (pp. 232–256). Chicago: University of Chicago Press.

    Google Scholar 

  • Gieryn, T. F. (1983). Boundary-work and the demarcation of science from non-science: Strains and interests in professional ideologies of scientists. American Sociological Review, 48(6), 781–795.

    Article  Google Scholar 

  • Gieryn, T. F. (1995). Boundaries of science. In S. Jasanoff, G. Markle, J. Petersen, & T. Pinch (Eds.), Handbook of science and technology studies (pp. 393–443). Thousand Oaks: SAGE.

    Google Scholar 

  • Hindhede, A. L., & Aagaard-Hansen, J. (2017). Using social network analysis as a method to assess and strengthen participation in health promotion programs in vulnerable areas. Health Promotion Practice, 18(2), 175–183.

    Article  Google Scholar 

  • Hofstede, G. (2001). Culture’s consequences: Comparing values, behaviors, institutions, and organizations across nations (2nd ed.). Thousand Oaks: SAGE.

    Google Scholar 

  • Juengst, S. B., Adams, L. M., Bogner, J. A., Arenth, P. M., O’Neil-Pirozzi, T. M., Dreer, L., et al. (2015). Trajectories of life satisfaction after traumatic brain injury: Influence of life roles, age, cognitive disability, and depressive symptoms. Rehabilitation Psychology, 60(4), 353–364.

    Article  Google Scholar 

  • Lamont, M. (1992). Money, morals, and manners: The culture of the French and American upper-middle class. Chicago: University of Chicago Press.

    Book  Google Scholar 

  • Lamont, M. (2012). Toward a comparative sociology of valuation and evaluation. Annual Review of Sociology, 38(1), 201–221.

    Article  Google Scholar 

  • Lamont, M., & Fournier, M. (Eds.). (1992). Cultivating differences: Symbolic boundaries and the making of inequality. Chicago: University of Chicago Press.

    Google Scholar 

  • Lamont, M., & Molnár, V. (2002). The study of boundaries in the social sciences. Annual Review of Sociology, 28, 167–195.

    Article  Google Scholar 

  • Lefebvre, H., Cloutier, G., & Levert, M. J. (2008). Perspectives of survivors of traumatic brain injury and their caregivers on long- term social integration. Brain Injury, 22(7–8), 535–543.

    Article  Google Scholar 

  • Mauss, M. (1929/1969). Les civilisations. Éléments et formes. Exposé présenté à la Première Semaine Internationale de Synthèse, Civilisation. Le mot et l’idée, La Renaissance du livre (pp. 81–106). Paris, 1930. Texte reproduit in Marcel Mauss, Oeuvres. 2. Représentations collectives et diversité des civilisations (pp. 456–479). Paris: Les Éditions de Minuit, 1969.

    Google Scholar 

  • Odgaard, L., Johnsen, S. P., Stubbs, P. W., Pedersen, A. R., & Nielsen, J. F. (2017). Alternative measures reveal different but low estimates of labour market attachment after severe traumatic brain injury: A nationwide cohort study. Brain Injury, 31(10), 1298–1306.

    Article  Google Scholar 

  • Odgaard, L., Pedersen, A. R., Poulsen, I., Johnsen, S. P., & Nielsen, J. F. (2018). Return to work predictors after traumatic brain injury in a welfare state. Acta Neurologica Scandinavica, 137(1), 44–50.

    Article  Google Scholar 

  • Scott, J. (2017). Social network analysis. London: SAGE.

    Google Scholar 

  • Swidler, A. (1986). Culture in action: Symbols and strategies. American Sociological Review, 51(2), 273–286.

    Article  Google Scholar 

  • van Velzen, J. M., van Bennekom, C. A. M., Edelaar, M. J. A., Sluiter, J. K., & Frings-Dresen, M. H. W. (2009). How many people return to work after acquired brain injury? A systematic review. Brain Injury, 23(6), 473–488.

    Article  Google Scholar 

  • Warde, A. (2008). Dimensions of a social theory of taste. Journal of Cultural Economy, 1(3), 321–336.

    Article  Google Scholar 

  • Weber, M. (1991). From Max Weber: Essays in sociology. New York: Routledge. (Original English-language translation published 1946).

    Google Scholar 

  • Zerubavel, E. (1993). The fine line: Making distinctions in everyday life. Chicago: University of Chicago Press.

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Anette Lykke Hindhede .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2019 The Author(s)

About this chapter

Check for updates. Verify currency and authenticity via CrossMark

Cite this chapter

Hindhede, A.L. (2019). Severe Brain Injury and Boundary Work. In: Harsløf, I., Poulsen, I., Larsen, K. (eds) New Dynamics of Disability and Rehabilitation. Palgrave Macmillan, Singapore. https://doi.org/10.1007/978-981-13-7346-6_8

Download citation

  • DOI: https://doi.org/10.1007/978-981-13-7346-6_8

  • Published:

  • Publisher Name: Palgrave Macmillan, Singapore

  • Print ISBN: 978-981-13-7345-9

  • Online ISBN: 978-981-13-7346-6

  • eBook Packages: Social SciencesSocial Sciences (R0)

Publish with us

Policies and ethics