Gene Hunting, Genetic Testing, and Genetically Tailor-Made Drugs

  • Anders Nordgren
Part of the Philosophy and Medicine book series (PHME, volume 70)


It is a rather uncontroversial view that geneticists should take responsibility for the direct consequences of their research, i.e. those consequences that appear in the research process itself. For instance, they are responsible for the treatment of human subjects participating in the research. More controversial is the view that geneticists should also take responsibility for the indirect consequences of research, i.e. the consequences of publication. I have argued that they should try to affect applications of their findings made by other people.


Genetic Testing Genetic Counseling Genetic Information Ethical Problem Life Insurance 
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  1. 5.
    Cf. the discussion of The Bell Curve on pp. 111–114, 227, 234.Google Scholar
  2. 6.
    Cf. the Channel Four film Gene Hunters directed by Ian Taylor (ZEF Productions Ltd., Brighton Media Centre, 9–12 Middle Street, Brighton BN1 1AL, UK).Google Scholar
  3. 16.
    See, for instance, Munthe, 1996, and Munthe, 1999.Google Scholar
  4. 17.
    However, an example of a discussion of these issues can be found in Khoury et al. (eds.), 1998.Google Scholar
  5. 18.
    Note that I am not talking about carriership here.Google Scholar
  6. 20.
    For a discussion, see Hoedemaekers, ten Have, 1998.Google Scholar
  7. 21.
    Commission of the European Communities, 1988. Quoted in Kevles, 1994, p. 20.Google Scholar
  8. 22.
    See Commission of the European Communities, 1989; European Community, 1989; Official Journal of the European Communities, 1990; Kevles, 1994.Google Scholar
  9. 23.
    For an overview of the American laws, see Frankel (ed.), 1997, pp. 103–107.Google Scholar
  10. 25.
    For a discussion of altruism in health care and medical research, see Nordgren, Westrin (eds.), 1998.Google Scholar

Copyright information

© Springer Science+Business Media Dordrecht 2001

Authors and Affiliations

  • Anders Nordgren
    • 1
  1. 1.Department of Public Health and Caring Sciences (Biomedical Ethics)Uppsala UniversityUppsalaSweden

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