Protecting Privacy in the Child’s Electronic Health Record

  • S. Andrew Spooner
Part of the Translational Bioinformatics book series (TRBIO, volume 2)


With the increasing availability of electronic health records, translational researchers frequently wish to extract information from or add information to these records to support various research projects. It is important that investigators be familiar with laws and regulations that protect the privacy of patients and restrict who can view or extract information from their EHRs. Laws and professional standards demand that all individually identifiable health information be secured at a high level and handled as private, sensitive information. Some information (mental health, reproductive health, abuse) is generally regarded as more sensitive than others in the health care of a patient at any age. In a situation where minors are involved, these security and privacy policies become more complicated because of possible conflicts between the interests of the child and the interests of parents or guardians. Situations specific to pediatric clinical practice and research increase the difficulty of implementing these policies: adolescent care, adoption, fetal care, foster care, and genetic disease. Security policies for access to systems intended to be used by patients (personal health records and patient portals) are complex. They can become even more challenging when the child has participated in clinical research and unexpected clinically relevant results are obtained.


Electronic Health Record Personal Health Record Health Insurance Portability Parental Notification Electronic Health Record Implementation 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.


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Copyright information

© Springer Science+Business Media Dordrecht 2012

Authors and Affiliations

  1. 1.Department of PediatricsUniversity of Cincinnati College of MedicineCincinnatiUSA
  2. 2.Division of Biomedical InformaticsCincinnati Children’s Hospital Medical CenterCincinnatiUSA

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