Skip to main content

Caring for Women During Prenatal Diagnosis: Personal Perspectives from the United Kingdom

  • Chapter
  • First Online:
Ethical Dilemmas in Prenatal Diagnosis

Abstract

This chapter reviews developments in prenatal testing. The changes in the range of tests that are available, perspectives on testing and the option of termination after a positive prenatal diagnosis are addressed. Caring for women undergoing prenatal diagnosis is a demanding task for health professionals. To enhance informed choice and support to women and their partners, health professionals must first be aware of their own values regarding sensitive issues in providing information about tests and the outcome of pregnancies after a diagnosis. The chapter details the process of testing and identifies particular times when parents have specific needs – making a decision, undergoing a termination, continuing a pregnancy. It also considers the resources necessary for professionals including their own need for training and support. Finally it identifies a number of online resources available to professionals and parents that can give further information and support.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 129.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 169.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 169.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Notes

  1. 1.

    Cf.: http://www.un.org/esa/population/publications/abortion/doc/sweden.doc (Accessed 12 April 2011).

  2. 2.

    Cf.: http://www.hsph.harvard.edu/population/abortion/abortionlaws.htm (Accessed 12 April 2011).

References

  • Bourne P (1968) The psychological effects of stillbirths on women and their doctors. J R Coll Gen Pract 16:103–112

    PubMed  CAS  Google Scholar 

  • Bui T-H, Meiner V (2008) State of the art in prenatal diagnosis. In: Leuzinger-Bohleber M, Engels E-M, Tsiantis J (eds.) The janus face of prenatal diagnostics. Karnac, London, pp 61–86

    Google Scholar 

  • Carrapato MR, Marcelino F (2001) The infant of the diabetic mother: the critical developmental windows. Early Pregnancy 5(1):57–58

    PubMed  CAS  Google Scholar 

  • Evans MI, Pryde PG et al (1993) The choices women make about prenatal diagnosis. Fetal Diagn Ther 8:70–80

    Article  Google Scholar 

  • Fairgrieve SD, Jackson M et al (2000) Population based, prospective study of the care of women with epilepsy in pregnancy. Br Med J 321:674–675

    Article  CAS  Google Scholar 

  • Fischmann T, Pfenning N et al (2008) Empirical data evaluation on EDIG. In: Leuzinger-Bohleber M, Engels E-M, Tsiantis J (eds.) The janus face of prenatal diagnostics. Karnac, London, pp 89–136

    Google Scholar 

  • Fuchs F, Riis P (1956) Antenatal sex determination. Nature 177:330

    Article  PubMed  CAS  Google Scholar 

  • Holmes LB, Harvey EA et al (2001) The teratogenicity of anticonvulsant drugs. N Engl J Med 344(15):1132–1138

    Article  PubMed  CAS  Google Scholar 

  • Kennell JH, Slyter H et al (1970) The mourning response of parents to the death of a newborn infant. N Engl J Med 283:344–349

    Article  PubMed  CAS  Google Scholar 

  • Kessler S (1992) Psychological aspects of genetic counseling. VII. Thoughts on directiveness. J Genet Couns 1:164–171

    Google Scholar 

  • LeJeune J, Gautheir M et al (1959) Les chromosomes humains en culture de tissus. Comptes Rendu Acad Sci 248:602–603

    CAS  Google Scholar 

  • Lowe SA (2001) Drugs in pregnancy. Anticonvulsants and drugs for neurological disease. Baillières Best Pract Res Clin Obstet Gynaecol 15(6):863–876

    Article  CAS  Google Scholar 

  • Makowski EL, Prem KA et al (1956) Detection of sex of fetuses by the incidence of sex chromatin body in nuclei of cells in amniotic fluid. Science 123:542–543

    Article  PubMed  CAS  Google Scholar 

  • Moore KL, Graham M et al (1953) The detection of chromosomal sex in hermaphrodites from a skin biopsy. Surg Gynecol Obstet 96:641–648

    PubMed  CAS  Google Scholar 

  • Nadler HL (1968) Antenatal detection of hereditary disorders. Pediatrics 42:912–918

    PubMed  CAS  Google Scholar 

  • Parkes CM (1965) Bereavement and mental illness. Part 1. A clinical study of the grief of bereaved psychiatric patients. Br J Med Psychol 38:1–12

    PubMed  CAS  Google Scholar 

  • Parkes CM (1995) Guidelines for conducting ethical bereavement research. Death Stud 19:171–181

    Article  PubMed  Google Scholar 

  • RCP (1989) Prenatal diagnosis and screening, A report of the Royal College of Physicians

    Google Scholar 

  • Resta RG (1997) The first prenatal diagnosis of a fetal abnormality. J Genet Couns 6(1):81–84

    Article  Google Scholar 

  • Riis P, Fuchs F (1960) Antenatal determination of foetal sex in prevention of hereditary diseases. Lancet ii:180–182

    Article  Google Scholar 

  • Serr DM, Sachs L et al (1955) The diagnosis of sex before birth using cells from the amniotic fluid. Bull Res Counc Isr 5B:137–138

    PubMed  CAS  Google Scholar 

  • Shettle LB (1956) Nuclear morphology of cells in human amniotic fluid in relation to sex of infant. Am J Obstet Gynecol 71:834

    Google Scholar 

  • Smoak IW (2002) Hypoglycemia and embryonic heart development. Front Biosci 7:d307–d318

    Article  PubMed  CAS  Google Scholar 

  • Statham H (1992) Professional understanding and parents’ experience of termination. In: Brock DJH, Rodeck CH, Ferguson-Smith MA (eds) Prenatal diagnosis and screening. Churchill Livingstone, London, pp 697–702

    Google Scholar 

  • Statham H (1994) Parents’ reactions to termination of pregnancy for fetal abnormality: from a mother’s point of view. In: Abramsky L, Chapple J (eds) Prenatal diagnosis: the human side. Chapman & Hall, London, pp 157–172

    Google Scholar 

  • Statham H (2002) Prenatal diagnosis of fetal abnormality: the decision to terminate the pregnancy and the psychological consequences. Fetal Matern Med Rev 13:213–247

    Google Scholar 

  • Statham H, Dimavicius J (2008) Ethics of care in prenatal diagnosis: implications of variations in law, policy and practice in EDIG countries. In: Leuzinger-Bohleber M, Engels E-M, Tsiantis J (eds.) The janus face of prenatal diagnostics. Karnac, London, pp 45–60

    Google Scholar 

  • Statham H, Solomou W et al (2000) Prenatal diagnosis of fetal abnormality: psychological effects on women in low-risk pregnancies. Baillières Best Pract Res Clin Obstet Gynaecol 14(4):731–747

    Article  PubMed  CAS  Google Scholar 

  • Steele MW, Breg WR (1966) Chromosome analysis of human amniotic fluid cells. Lancet 1:383–385

    Article  PubMed  CAS  Google Scholar 

  • Sullivan ID (2002) Prenatal diagnosis of structural heart disease: does it make a difference to survival? Heart 87(5):405–406

    Article  PubMed  CAS  Google Scholar 

  • Wertz DC, Fletcher JC (1989) Ethical issues in prenatal diagnosis. Pediatr Ann 18:739–749

    PubMed  CAS  Google Scholar 

  • Wong SF, Chan FY et al (2002) Routine ultrasound screening in diabetic pregnancies. Ultrasound Obstet Gynecol 19(2):171–176

    Article  PubMed  CAS  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Helen Statham .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2011 Springer Science+Business Media B.V.

About this chapter

Cite this chapter

Statham, H., Dimavicius, J. (2011). Caring for Women During Prenatal Diagnosis: Personal Perspectives from the United Kingdom. In: Fischmann, T., Hildt, E. (eds) Ethical Dilemmas in Prenatal Diagnosis. Springer, Dordrecht. https://doi.org/10.1007/978-94-007-1396-3_6

Download citation

Publish with us

Policies and ethics