Abstract
This chapter reviews developments in prenatal testing. The changes in the range of tests that are available, perspectives on testing and the option of termination after a positive prenatal diagnosis are addressed. Caring for women undergoing prenatal diagnosis is a demanding task for health professionals. To enhance informed choice and support to women and their partners, health professionals must first be aware of their own values regarding sensitive issues in providing information about tests and the outcome of pregnancies after a diagnosis. The chapter details the process of testing and identifies particular times when parents have specific needs – making a decision, undergoing a termination, continuing a pregnancy. It also considers the resources necessary for professionals including their own need for training and support. Finally it identifies a number of online resources available to professionals and parents that can give further information and support.
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Notes
- 1.
Cf.: http://www.un.org/esa/population/publications/abortion/doc/sweden.doc (Accessed 12 April 2011).
- 2.
Cf.: http://www.hsph.harvard.edu/population/abortion/abortionlaws.htm (Accessed 12 April 2011).
References
Bourne P (1968) The psychological effects of stillbirths on women and their doctors. J R Coll Gen Pract 16:103–112
Bui T-H, Meiner V (2008) State of the art in prenatal diagnosis. In: Leuzinger-Bohleber M, Engels E-M, Tsiantis J (eds.) The janus face of prenatal diagnostics. Karnac, London, pp 61–86
Carrapato MR, Marcelino F (2001) The infant of the diabetic mother: the critical developmental windows. Early Pregnancy 5(1):57–58
Evans MI, Pryde PG et al (1993) The choices women make about prenatal diagnosis. Fetal Diagn Ther 8:70–80
Fairgrieve SD, Jackson M et al (2000) Population based, prospective study of the care of women with epilepsy in pregnancy. Br Med J 321:674–675
Fischmann T, Pfenning N et al (2008) Empirical data evaluation on EDIG. In: Leuzinger-Bohleber M, Engels E-M, Tsiantis J (eds.) The janus face of prenatal diagnostics. Karnac, London, pp 89–136
Fuchs F, Riis P (1956) Antenatal sex determination. Nature 177:330
Holmes LB, Harvey EA et al (2001) The teratogenicity of anticonvulsant drugs. N Engl J Med 344(15):1132–1138
Kennell JH, Slyter H et al (1970) The mourning response of parents to the death of a newborn infant. N Engl J Med 283:344–349
Kessler S (1992) Psychological aspects of genetic counseling. VII. Thoughts on directiveness. J Genet Couns 1:164–171
LeJeune J, Gautheir M et al (1959) Les chromosomes humains en culture de tissus. Comptes Rendu Acad Sci 248:602–603
Lowe SA (2001) Drugs in pregnancy. Anticonvulsants and drugs for neurological disease. Baillières Best Pract Res Clin Obstet Gynaecol 15(6):863–876
Makowski EL, Prem KA et al (1956) Detection of sex of fetuses by the incidence of sex chromatin body in nuclei of cells in amniotic fluid. Science 123:542–543
Moore KL, Graham M et al (1953) The detection of chromosomal sex in hermaphrodites from a skin biopsy. Surg Gynecol Obstet 96:641–648
Nadler HL (1968) Antenatal detection of hereditary disorders. Pediatrics 42:912–918
Parkes CM (1965) Bereavement and mental illness. Part 1. A clinical study of the grief of bereaved psychiatric patients. Br J Med Psychol 38:1–12
Parkes CM (1995) Guidelines for conducting ethical bereavement research. Death Stud 19:171–181
RCP (1989) Prenatal diagnosis and screening, A report of the Royal College of Physicians
Resta RG (1997) The first prenatal diagnosis of a fetal abnormality. J Genet Couns 6(1):81–84
Riis P, Fuchs F (1960) Antenatal determination of foetal sex in prevention of hereditary diseases. Lancet ii:180–182
Serr DM, Sachs L et al (1955) The diagnosis of sex before birth using cells from the amniotic fluid. Bull Res Counc Isr 5B:137–138
Shettle LB (1956) Nuclear morphology of cells in human amniotic fluid in relation to sex of infant. Am J Obstet Gynecol 71:834
Smoak IW (2002) Hypoglycemia and embryonic heart development. Front Biosci 7:d307–d318
Statham H (1992) Professional understanding and parents’ experience of termination. In: Brock DJH, Rodeck CH, Ferguson-Smith MA (eds) Prenatal diagnosis and screening. Churchill Livingstone, London, pp 697–702
Statham H (1994) Parents’ reactions to termination of pregnancy for fetal abnormality: from a mother’s point of view. In: Abramsky L, Chapple J (eds) Prenatal diagnosis: the human side. Chapman & Hall, London, pp 157–172
Statham H (2002) Prenatal diagnosis of fetal abnormality: the decision to terminate the pregnancy and the psychological consequences. Fetal Matern Med Rev 13:213–247
Statham H, Dimavicius J (2008) Ethics of care in prenatal diagnosis: implications of variations in law, policy and practice in EDIG countries. In: Leuzinger-Bohleber M, Engels E-M, Tsiantis J (eds.) The janus face of prenatal diagnostics. Karnac, London, pp 45–60
Statham H, Solomou W et al (2000) Prenatal diagnosis of fetal abnormality: psychological effects on women in low-risk pregnancies. Baillières Best Pract Res Clin Obstet Gynaecol 14(4):731–747
Steele MW, Breg WR (1966) Chromosome analysis of human amniotic fluid cells. Lancet 1:383–385
Sullivan ID (2002) Prenatal diagnosis of structural heart disease: does it make a difference to survival? Heart 87(5):405–406
Wertz DC, Fletcher JC (1989) Ethical issues in prenatal diagnosis. Pediatr Ann 18:739–749
Wong SF, Chan FY et al (2002) Routine ultrasound screening in diabetic pregnancies. Ultrasound Obstet Gynecol 19(2):171–176
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Statham, H., Dimavicius, J. (2011). Caring for Women During Prenatal Diagnosis: Personal Perspectives from the United Kingdom. In: Fischmann, T., Hildt, E. (eds) Ethical Dilemmas in Prenatal Diagnosis. Springer, Dordrecht. https://doi.org/10.1007/978-94-007-1396-3_6
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