Abstract
The growing number of young adults with neurodevelopmental disabilities and chronic diseases necessitates a careful consideration of the issues involved in transition of these youth from a child-focused to an adult-oriented health-care system. Most adolescents accomplish the transition successfully as a natural process of growth and maturation in all spheres of life. Presence of chronic disease or disability, however, adds a significant dimension to the transition process and affects all areas of the adolescent’s life – medical care, educational, vocational, daily living and activity, financial, and employment. The psychological and psychosocial impact of chronic illness or disability on the youth and family has been well documented. A brief overview of issues as they relate to transition of medical care of adolescents and young adults with chronic disease or disability from child-oriented to adult-oriented system of health care is presented here.
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References
Barbero GJ. Leaving the pediatrician for the internist. Ann Intern Med. 1982;96:673.
Blum RW, Leonard B, editors. Youth with disabilities: the transitional years. J Adolesc Health Care. 1985:6.
McGrab P, Millar H, editors. Surgeon General’s Conference. Growing up and getting medical care: youth with special health care needs. Washington, DC: National Center for Networking Community-Based Services, Georgetown University Child Development Center; 1989.
Blum RW, Garell D, Hodgman CH, Jorissen TW, Okinow NA, Orr DP, Slap GB. Transition from child-centered to adult health-care systems for adolescents with chronic conditions: a position paper of the Society of Adolescent Medicine. J Adolesc Health. 1993;14:570–76.
United States Department of Education. Individuals with Disabilities Education Act: Part B. 2004 Section 602(34). http://idea.ed.gov/explore/search
Hirsch D, Kastner TA, Quint RD, Sandler AD. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics. 2002;110(6):1304–5.
White PH. Transition to adulthood: adolescents with disabilities. In: Greydanus DE, Patel DR, Pratt HD, editors. Essential adolescent medicine. New York, NY: McGraw Hill Medical; 2006. pp. 51–78.
Betz CL. Facilitating the transition of adolescents with developmental disabilities: nursing practice issues and care. J Pediatr Nurs. 2007;22(2):103–15.
White P. Success on the road to adulthood: issues and hurdles for adolescents with disabilities. Pediatr Clin North Am. 1997;23(3):697–707.
Blomquist KB, Brown G, Peersen A, Presler EP. Transitioning to independence: challenges for young people with disabilities and their caregivers. Orthop Nurs. 1998;17(3):27–35.
Luther B. Age-specific activities that support successful transition to adulthood for children with disabilities. Orthop Nurs. 2001;20(1):23–29.
Kelly AM, Kratz B, Mary B, Rinehart PM. Implementing transitions for youth with complex chronic conditions using the medical home model. Pediatrics. 2002;110(6):1322–27.
Lotstein DS, McPherson M, Strickland B, Newacheck P. Transition planning for youth with special health care needs: results from the national survey of children with special health care needs. Pediatrics. 2005;115(6):1562–67.
Olson DG, Swigonski NL. Transition to adulthood: the role of the pediatrician. Pediatrics. 2004;113:e159–62.
Scal P. Transition for youth with chronic conditions: primary care physicians’ approaches. Pediatrics. 2002;110(6):1315–21.
Kim H, Murphy N, Kim CT, et al. Pediatric rehabilitation: 5. Transitioning teens with disabilities into adulthood. PM R. 2010;2(3):S31–37.
Stewart D. Transition to adult services for young people with disabilities: current evidence to guide future research. Dev Med Child Neurol. 2009;51(Suppl 4):169–73.
Berkowitz S. Transitioning adolescents to adult care: putting theory into practice. Minn Med. 2009;92(3):42–44.
Cameron JS. The continued care of pediatric patients with renal disease into adult life. Am J Kidney Dis. 1985;6:91.
Peter NG, Forke CM, Ginsburg KR, Schwarz DF. Transition from pediatric to adult care: internists’ perspective. Pediatrics. 2009;123(2):417–23.
Suris JC, Akre C, Rutishauser C. How adult specialists deal with the principles of a successful transition. J Adolesc Health. 2009;45(6):551–55.
US Department of Health and Human Services. Maternal and Child Health Bureau: moving on: transition from child-centered to adult health care for youth with disabilities. 44. Rockville, MD: US Department of Health and Human Services; 1992.
Slap GB. Youth in transition to adult health care. In: McAnarney ER, Kreipe RE, Orr DP, Comerci GD, editors. Textbook of adolescent medicine. Philadelphia, PA: WB Saunders; 1992.
Berg P. Youth in transition: developing appropriate services for adult survivors of pediatric disorders. Minneapolis, MN: National Center for Youth with Disabilities; 1988.
Bronheim S, Fiel S, Schidlow DB, et al. Crossings: a manual for transition of chronically ill youth to adult health care. Washington, DC: Georgetown University Child Development Center; 1988.
Blum RW. Chronic illness and disability in adolescence. J Adolesc Health Care. 1992;13:364.
Hofmann AD, Gabriel HP. Managing chronic illness in adolescence: a paradigm. In: Hofmann AD, Greydanus DE, editors. Adolescent medicine. Norwalk, CT: Appleton-Lange; 1989.
Resnick MD. Use of cutoff policies for adolescents in pediatric practice: report from the upper Midwest regional physician survey. Pediatrics. 1983;72:420.
Schidlow DV, Fiel SB. Life beyond pediatrics: transition of chronically ill adolescents from pediatric to adult health care systems. Med Clin North Am. 1990;74:132.
Hofmann AD. Legal issues in adolescent medicine. In: Hofmann AD, Greydanus DE, editors. Adolescent medicine. Norwalk, CT: Appleton-Lange; 1989.
Millstein SG, Alder NE, Irwin CE Jr. Conceptions of illness of young adolescents. Pediatrics. 1981;68:834.
Burdo-Hartman WB, Patel DR. Medical home and transition planning for children and youth with special health care needs. Pediatr Clin North Am. 2008;55(6):1287–98.
Patel DR, Rowlett JD, Greydanus DE. Youth with chronic conditions in transition to adult health care: an overview. Adolesc Med. 1994;5(3):543–51.
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Patel, D.R., Greydanus, D.E. (2011). Transition from Child-Oriented to Adult-Oriented Health Care. In: Patel, D., Greydanus, D., Omar, H., Merrick, J. (eds) Neurodevelopmental Disabilities. Springer, Dordrecht. https://doi.org/10.1007/978-94-007-0627-9_28
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