Skip to main content

Human Research Ethics Guidelines as a Basis for Consent and Benefit Sharing: A Canadian Perspective

  • Chapter
  • 1731 Accesses

Abstract

While no access and benefit-sharing policy is yet in place in Canada, consent, benefit sharing and other issues relevant to bioprospecting and biodiversity research are important points of discussion at national as well as institutional and community levels. Although some plant species in Canada that are heavily exploited for commercial purposes have suffered serious decline, which has affected cultural uses by Aboriginal peoples, a primary difference from the San- Hoodia case is that much of the Canadian biodiversity debate has taken place in the abstract, based largely on rights and responsibilities emerging from potential scenarios rather than real instances of successful commercial products derived from traditional knowledge. New national human research ethics guidelines for research involving Aboriginal peoples are likely to provide a key reference point for addressing issues raised in the biodiversity context when the appropriation of traditional knowledge is involved.

Canadian biodiversity policy will likely include good ethical practice standards and promote collaboration and adherence to community-level protocols for current and future biodiversity research and development. However, traditional knowledge appropriation from already published literature is unlikely to be addressed, even though such knowledge may not have made its way into the published record by ethical means. This significant policy gap should be informed by the San- Hoodia case, which sets an important precedent by enabling Aboriginal communities and biological populations to be supported through benefits and capacity-building, even when bioprospecting is based on the published literature.

This is a preview of subscription content, log in via an institution.

Buying options

Chapter
USD   29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD   44.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD   59.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Learn about institutional subscriptions

Notes

  1. 1.

    1 ‘Aboriginal peoples’ refers collectively to the descendants of the original inhabitants of Canada. The Constitution of Canada recognizes three separate peoples with unique heritages, languages, cultural practices, and spiritual beliefs. The three Aboriginal peoples of Canada are: Inuit, Métis and Indian (noting that the term ‘Indian’ has largely been replaced with ‘First Nation’ in common usage). Inuit are northern Aboriginal peoples. Métis are of mixed European and First Nations ancestry. First Nation people comprise the largest and most diverse group of Aboriginal peoples in Canada with over 600 First Nations bands and over 50 languages.

  2. 2.

    2 With over 600 recognized First Nations bands in Canada, multiple claims to knowledge of a particular plant would be likely and claims could be extremely complex.

  3. 3.

    3 Awareness-raising activities have included the following workshops and meetings:

    • Access and Benefit Sharing of Genetic Resources: The Science and Technology Agenda Experts' Workshop (December 2004)

    • Northern Workshop on Access to Genetic Resources and Associated Traditional Knowledge and Benefit Sharing (March 2005)

    • Genetic Resources in Agriculture: Their role, Their Governance — Implications for Access & Benefit Sharing (November 2005)

    • Access to Forest Genetic Resources and Benefit Sharing: Potential Opportunities and Challenges for Governments and Forest Stakeholders (February 2006)

    • National Meeting on ABS and Certificates (November 2006)

  4. 4.

    4 See http://www.ec.gc.ca/apa-abs/index.cfm?lang=eng. Accessed 1 August 2009

  5. 5.

    5 Canada's national ethics policy governing academic research involving humans, called the Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans, was adopted in 1998. In December 2008, a substantially revised draft second edition was released for public consultation. The release of a revised version of the draft to the public for further comment is anticipated in Fall 2009 and, following a second consultation period, a final draft is expressed in February 2010 (see http://pre.ethics.gc.ca/eng/index/). Accessed 1 August 2009).

  6. 6.

    6 Examples are the Nuu-chah-nulth Tribal Council Research Ethics Committee in British Columbia and the Mi'kmaq Ethics Watch in Nova Scotia.

  7. 7.

    7 Here are some examples of Aboriginal community research protocols and guidelines in Canada:

    • Mi'kmaq Research Principles and Protocols (Mi'kmaw Ethics Watch 2000)

    • Namgis First Nation Guidelines for Visiting Researchers/Access to Information (‘Namgis First Nation n.d.)

    • Code of Ethics for Researchers Conducting Research Concerning the Ktunaxa Nation (Ktunaxa Nation 1998)

    • Tl'azt'en Nation Guidelines for Research in Tl'azt'en Territory (Tl'azt'en Nation 1998)

    • Protocols and Principles for Conducting Research in a Nuu-chah-nulth Context (Nuu-chah-nulth Tribal Council Research Ethics Committee 2004)

  8. 8.

    8 Examples are the Template Traditional Knowledge Protocol by the First Nations Technology Council (2005) and Negotiating Research Relationships: A Guide for Communities by the Inuit Tapiriit Kanatami and the Nunavut Research Institute (1998).

References

  • Bannister, K. (2009). Non-legal instruments for protection of intangible cultural heritage: key roles for ethical codes and community protocols. In C. Bell & R. K. Paterson (Eds.), Protection of first nations cultural heritage: laws, policy, and reform. Toronto, ON: UBC Press.

    Google Scholar 

  • Bannister, K., & Haddad, P. (2006). Roadmap to developing a code of conduct for researchers accessing genetic resources and traditional knowledge. Report prepared under contract for Environment Canada, Ottawa, ON.

    Google Scholar 

  • CIHR (2007). CIHR guidelines for health research involving aboriginal people. Ottawa, ON: Canadian Institutes of Health Research. www.cihr-irsc.gc.ca/e/documents/ethics_aboriginal_guidelines_e.pdf. Accessed 23 October 2008.

    Google Scholar 

  • CIHR, NSERC and SSHRC (1998, with 2000, 2002 and 2005 amendments). Tri-council policy statement: ethical conduct for research involving humans. Ottawa, ON: Interagency Secretariat on Research Ethics (on behalf of the Canadian Institutes of Health Research, Natural Sciences and Engineering Research Council of Canada and Social Sciences and Humanities Research Council of Canada). www.pre.ethics.gc.ca/english/policystatement/policystatement.cfm. Accessed 23 October 2008.

  • Compton, B. D. (1993). Upper North Wakashan and Southern Tsimshian ethnobotany: the knowledge and usage of plants and fungi among the Oweekeno, Hanaksiala (Kitlope and Kemano), Haisla (Kitamaat) and Kitasoo peoples of the central and north coasts of British Columbia. PhD dissertation. Vancouver, BC: Department of Botany, University of British Columbia.

    Google Scholar 

  • Cragg, G. M., Boyd, M. R., Cardellina II, J. H., Newman, D. J., Snader, K. M., & McCloud, T. G. (1994). Ethnobotany and drug discovery: the experience of the US National Cancer Institute. In D. J. Chadwick & J. Marsh (Eds.), Ethnobotany and the search for new drugs. Ciba Foundation Symposium 185. Chichester: Wiley.

    Google Scholar 

  • Elisabetsky, E. (1991). Sociopolitical, ecological and ethical issues in medicinal plant research. Journal of Ethnopharmacology, 32(1–3), 235–239.

    Article  CAS  Google Scholar 

  • Environment Canada (2005). ABS policies in Canada: scoping the questions and issues. Prepared by the Federal/Provincial/Territorial Working Group on Access and Benefit Sharing of Genetic Resources. www.ec.gc.ca/apa-abs/documents/ABS_policies_e.pdf. Accessed 22 October 2008.

  • Environment Canada (2009). Access to Genetic Resources and Sharing the Benefits of Their Use in Canada: Opportunities for a New Policy Direction. http://www.ec.gc.ca/apa-abs/utilisant-using2/default.cfm?lang=eng. Accessed 1 August 2009.

  • FNTC (2005). Template traditional knowledge protocol, First Nations Technology Council. www.fntc.info/files/documents/Traditional%20Knowledge%20Protocol%20Template%20Feb%20 2005.doc. Accessed 23 October 2008.

  • Foster, S. (1995). Forest pharmacy: medicinal plants in American forests. Durham, NC: Forest History Society.

    Google Scholar 

  • Goodman, J., & Walsh, V. (2001). The story of taxol: nature and politics in the pursuit of an anticancer drug. New York: Cambridge University Press.

    Google Scholar 

  • Hartzell, H., Jr. (1991). The yew tree: a thousand whispers, biography of a species. Eugene, OR:Hulogosi.

    Google Scholar 

  • Inuit Tapiriit Kanatami and Nunavut Research Institute (1998). Negotiating research relationships:a guide for communities. Reproduced in Pimatisiwin, A Journal of Aboriginal and Indigenous Community Health (2003), 1 (1), 19–27. http://www.itk.ca/system/files/Negotitiating-Research-Relationships-Community-Guide.pdf. www.itk.ca/system/filesNegotitiating-Research-Rela-tionships-Community-Guide.pdf or http://www.pimatisiwin.com/online/?page_id=101. Accessed 1 August 2009.

    Google Scholar 

  • Ktunaxa Nation (1998). Code of ethics for researchers conducting research concerning the Ktunaxa nation. www.law.ualberta.ca/research/aboriginalculturalheritage/casestudies/Ktunaxa%20Code%20of%20Ethics.pdf. Accessed 23 October 2008.

  • Kuhnlein, H. V., & Turner, N. J. (1991). Traditional plant foods of Canadian indigenous peoples:nutrition, botany and use, food and nutrition in history and anthropology (Vol. 8). Philadelphia, PA: Gordon and Breach Science.

    Google Scholar 

  • Marles, R. J., Clavelle, C., Monteleone, L., Tays, N., & Burns, D. (2000). Aboriginal plant use in Canada's northwest boreal forest. Vancouver, BC: UBC Press.

    Google Scholar 

  • McCutcheon, A. R., Ellis, S. M., Hancock, R. E. W., & Towers, G. H. N. (1992). Antibiotic screening of medicinal plants of British Columbian native peoples. Journal of Ethnopharmacology, 37, 213–223.

    Article  CAS  Google Scholar 

  • McCutcheon, A. R., Ellis, S. M., Hancock, R. E. W., & Towers, G. H. N. (1994). Antifungal screening of medicinal plants of British Columbian native peoples. Journal of Ethnopharmacology, 44, 157–169.

    Article  CAS  Google Scholar 

  • Mi'kmaw Ethics Watch (2000). Research principles and protocols. http://mrc.uccb.ns.ca/prinpro.html. Accessed 23 October 2008.

  • Moerman, D. E. (1998). Native American ethnobotany. Portland, OR: Timber Press.

    Google Scholar 

  • Na̱mg̱is First Nation (n.d.). Guidelines for visiting researchers/access to information. www.law. ualberta.ca/research/aboriginalculturalheritage/casestudies/namgisform.pdf. Accessed 23 October 2008.

    Google Scholar 

  • Nuu-chah-nulth Tribal Council Research Ethics Committee (2004). Protocols and principles for conducting research in a Nuu-chah-nulth context. www.clayoquotbiosphere.org/science/ntcethics.xls. Accessed 23 October 2008.

  • Ramsay, H. (2005). Who owns the healing secrets of plants? The Tyee, 20 January. http://thetyee.ca/News/2005/01/20/WhoOwnsHealingSecretsofPlants/. Accessed 23 October 2008.

  • Tl'azt'en Nation (1998). Tl'azt'en nation guidelines for research in Tl'azt'en territory. http://cura.unbc.ca/governance/CEM-Tlazten%20Guidelines.pdf. Accessed 23 October 2008.

  • Tobin, B. (2004). Towards an international regime for protection of traditional knowledge: reflections on the role of intellectual property rights. Paper presented at Bioethical Issues of Intellectual Property in Biotechnology, Tokyo, Japan.

    Google Scholar 

  • Turner, N. J. (2001). “Doing it right”: issues and practices of sustainable harvesting of non-timber forest products relating to first peoples in British Columbia. BC Journal of Ecosystems and Management, 1(1), 1–11. www.forrex.org/JEM/ISS1/vol1_no1_art6.pdf. Accessed 23 October 2008.

    Google Scholar 

  • Turner, N. J. (2004). Plants of Haida Gwaii. Winlaw, BC: Sononis Press.

    Google Scholar 

  • Turner, N. J., & Hebda, R. J. (1990). Contemporary use of bark for medicine by two Salishan native elders of southeast Vancouver island. Journal of Ethnopharmacology, 229, 59–72.

    Article  Google Scholar 

  • Turner, N. J., Thompson, L. C., Thompson, M. T., & York, A. Z. (1990). Thompson ethnobotany:knowledge and usage of plants by the Thompson Indians of British Columbia, Memoir No. 3. Victoria, BC: Royal British Columbia Museum.

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Kelly Bannister .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2009 Springer Science+Business Media B.V.

About this chapter

Cite this chapter

Bannister, K. (2009). Human Research Ethics Guidelines as a Basis for Consent and Benefit Sharing: A Canadian Perspective. In: Wynberg, R., Schroeder, D., Chennells, R. (eds) Indigenous Peoples, Consent and Benefit Sharing. Springer, Dordrecht. https://doi.org/10.1007/978-90-481-3123-5_16

Download citation

Publish with us

Policies and ethics