Samenvatting
In dit hoofdstuk over zorg voor het gezin gaat het over de niet geringe impact van het opgroeien van een kind met autisme op ouders en broertjes en zusjes. Uit onderzoek blijkt dat ouders van kinderen met autisme veelal kampen met stress, angst en depressieve klachten. Er zijn verschillende factoren van invloed op deze psychische problemen. In dit hoofdstuk bespreken we deze factoren en kijken we wat er nodig is om ouders en broers/zussen te ondersteunen om de kans op psychische klachten te verlagen en de kwaliteit van leven te vergroten.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Literatuur
Altiere, M. J., & Von Kluge, S. (2009). Searching for acceptance: Challenges encountered while raising a child with autism. Journal of intellectual & developmental disability, 34(2), 142–152. https://doi.org/10.1080/13668250902845202.
Bonis, S. (2016) Stress and parents of children with autism: A review of literature. Issues in Mental Health Nursing, 37(3), 153–163.
Bourke-Taylor, H. M., Lee, D. A., Tirlea, L., Joyce, K., Morgan, P., & Haines, T. P. (2021). Interventions to improve the mental health of mothers of children with a disability: Systematic review, meta-analysis and description of interventions. Journal of Autism and Developmental Disorders, https://doi.org/10.1007/s10803-020-04826-4. Advance online publication. https://doi.org/10.1007/s10803-020-04826-4.
Byrne, G., Ghráda, Á. N., O’Mahony, T., & Brennan, E. (2020). A systematic review of the use of acceptance and commitment therapy in supporting parents. Psychology and psychotherapy, e12282. Advance online publication. https://doi.org/10.1111/papt.12282.
De la Iglesia, M., & Olivar, J. S. (2015). Risk factors for depression in children and adolescents with high functioning autism spectrum disorders. The Scientific World Journal, 2015. https://doi.org/10.1155/2015/127853.
Estes, A., Swain, D. M., & MacDuffie, K. E. (2019). The effects of early autism intervention on parents and family adaptive functioning. Pediatric Medicine (Hong Kong, China), 2, 21. https://doi.org/10.21037/pm.2019.05.05.
Fernańdez-Alcántara, M., García-Caro, M. P., Pérez-Marfil, M. N., Hueso-Montoro, C., Laynez-Rubio, C., & Cruz-Quintana, F. (2016). Feelings of loss and grief in parents of children diagnosed with autism spectrum disorder (ASD). Research in Developmental Disabilities, 55, 312–321. https://doi.org/10.1016/j.ridd.2016.05.007.
Frantz, R., Hansen, S.G. & Machalicek, W. (2018). Interventions to promote well-being in parents of children with autism: A systematic review. Review Journal of Autism and Developmental Disorders, 5, 58–77 https://doi-org.proxy.library.uu.nl/10.1007/s40489-017-0123-3.
Fuentes, J., Hervás, A., Howlin, P., & (ESCAP ASD Working Party), (2020). ESCAP practice guidance for autism: A summary of evidence-based recommendations for diagnosis and treatment. European Child and Adolescent Psychiatry. https://doi.org/10.1007/s00787-020-01587-4. Advance online publication.
Hartley, S. L., Barker, E. T., Seltzer, M. M., Floyd, F., Greenberg, J., Orsmond, G., et al. (2010). The relative risk and timing of divorce in families of children with an autism spectrum disorder. Journal of Family Psychology: JFP: Journal of the Division of Family Psychology of the American Psychological Association (Division 43), 24(4), 449–457. https://doi.org/10.1037/a0019847.
Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642. https://doi.org/10.1007/s10803-012-1604-y.
Hill-Chapman, C. R., Herzog, T. K., & Madura, R. S. (2013). Aligning over the child: Parenting alliance mediates the association of autism spectrum disorder atypicality with parenting stress. Research in Developmental Disabilities, 34, 1498–1504.
Keirse, M. (2017). Helpen bij verlies en verdriet (pag. 207–221). Tielt: Lannoo nv.
Leedham, A. T., Thompson, A. R., & Freeth, M. (2020). A thematic synthesis of siblings’ lived experiences of autism: Distress, responsibilities, compassion and connection. Research in Developmental Disabilities, 97. https://doi.org/10.1016/j.ridd.2019.103547.
Legg, H., & Tickle, A. (2019). UK parents’ experiences of their child receiving a diagnosis of autism spectrum disorder: A systematic review of the qualitative evidence. Autism: The international journal of research and practice, 23(8), 1897–1910. https://doi.org/10.1177/1362361319841488.
Lord, C., Brugha, T. S., Charman, T., Cusack, J., Dumas, G., Frazier, T., et al. (2020). Autism spectrum disorder. Nature reviews. Disease primers, 6(1), 5. https://doi.org/10.1038/s41572-019-0138-4.
Papadopoulos, C., Lodder, A., Constantinou, G., & Randhawa, G. (2019). Systematic review of the relationship between autism stigma and informal caregiver mental health. Journal of Autism and Developmental Disorders, 49(4), 1665–1685. https://doi.org/10.1007/s10803-018-3835-z.
Poslawsky, I. E., Naber, F. B., Bakermans-Kranenburg, M. J., Van Daalen, E., Van Engeland, H., & Van IJzendoorn, M. H. (2015). Video-feedback Intervention to promote positive parenting adapted to autism (VIPP-AUTI): A randomized controlled trial. Autism: The international journal of research and practice, 19(5), 588–603. https://doi.org/10.1177/1362361314537124.
Ridderinkhof, A., De Bruin, E. I., Blom, R., & Bögels, S. M. (2018). Mindfulness-based program for children with autism spectrum disorder and their parents: Direct and long-term improvements. Mindfulness, 9(3), 773–791. https://doi.org/10.1007/s12671-017-0815-x.
Salleh, N. S., Abdullah, K. L., Yoong, T. L., Jayanath, S., & Husain, M. (2020). Parents’ experiences of affiliate stigma when caring for a child with Autism Spectrum Disorder (ASD): A meta-synthesis of qualitative studies. Journal of Pediatric Nursing, 55, 174–183. https://doi.org/10.1016/j.pedn.2020.09.002.
Schnabel, A., Youssef, G. J., Hallford, D. J., Hartley, E. J., McGillivray, J. A., Stewart, M., et al. (2020). Psychopathology in parents of children with autism spectrum disorder: A systematic review and meta-analysis of prevalence. Autism: The International Journal of Research and Practice, 24(1), 26–40. https://doi.org/10.1177/1362361319844636.
Vivanti, G., & Nuske, H. J. (2017). Autism, attachment, and social learning: Three challenges and a way forward. Behavioural Brain Research, 325(Pt B), 251–259. https://doi.org/10.1016/j.bbr.2016.10.025.
Worden, J. W. (1992). Verdriet en rouw. Gids voor hulpverleners en therapeuten. Amsterdam/Lisse: Swets & Zeitlinger.
Author information
Authors and Affiliations
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2021 Bohn Stafleu van Loghum is een imprint van Springer Media B.V., onderdeel van Springer Nature
About this chapter
Cite this chapter
van Dinteren, E., de Jonge, M. (2021). Zorg voor het gezin. In: de Bildt, A., Servatius-Oosterling, I., de Jonge, M. (eds) Autisme bij kinderen. Bohn Stafleu van Loghum, Houten. https://doi.org/10.1007/978-90-368-2665-5_11
Download citation
DOI: https://doi.org/10.1007/978-90-368-2665-5_11
Published:
Publisher Name: Bohn Stafleu van Loghum, Houten
Print ISBN: 978-90-368-2664-8
Online ISBN: 978-90-368-2665-5
eBook Packages: Dutch language eBook collection