Abstract
This essay discusses three highly interconnected themes from a systems theoretical point of view: the evidence-based turn in biomedicine, the role and relevance of ethics in this current trend, and the practices of ethics organizations in the field of medicine. First, the origins and contours of evidence-based medicine (EBM) are outlined and put against the backdrop of their societal context. Then, the question of ethics and its contents in current EBM-informed medical practices are examined by asking what kind of problems are eventually labeled as ethical and why? In the latest section, the sites of ethical reasoning, medical ethics committees and commissions, are taken up for observation. The argumentation is based on an on-going empirical case study of a national ethics organization in Finland, the Advisory Board on Social Welfare and Healthcare (ETENE). The essay concludes by discussing the function of problem-based ethics organizations in polycentric society of the presents.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Notes
- 1.
My own empirical research (started in 2009) concentrates on a national Finnish ethics board, the National Advisory Board on Social Welfare and Healthcare, ETENE (www.etene.fi/en). The empirical interpretations are preliminary at this point.
- 2.
The term evidence-based medicine first appeared in the published literature the previous year, in 1991. It was evidently this particular JAMA publication that brought both the term and the general idea of EBM to a wider medical public and started the triumphal march of the new paradigm (Montori and Guyatt 2008; see also Liberati and Vineis 2004 for a more critical summary). It is also possible to trace the roots of EBM back to Archie Cochrane’s lectures in epidemiology and research methods from 1972 (see Ashcroft 2004, S. 131).
- 3.
In Finland EBM orientation began to take took root shortly after the original JAMA article and the first official EBM guidelines were published in Finnish in 1997 by the Finnish Medical Society Duodecim.
- 4.
The Finnish EBMG-pages in English, based on the colossal international Cochrane-database (http://www.thecochranelibrary.com) can be found at the website http://www.terveysportti.fi/pls/ebmg/ltk.koti and include almost one thousand care guidelines, over 3,500 evidence summaries and over one thousand pictures, all of which can be downloaded onto mobile phones and hand-held computers, thus enabling physicians to use them during treatment.
- 5.
All translations from Finnish to English are the author’s.
- 6.
- 7.
Ethics agencies are not only on the receiving end of the emerging biomedical problems. In the case of fetal screenings, for example, parents carry the burden of particularly troublesome ethical decisions; medicine produces only (publicly expressed) value neutral information (Jallinoja 2002b; Helén 2004, S. 30–35).
- 8.
Various agencies that focus on medical ethics cover the whole field of medicine. They extend from the multifaceted, often legislation-informing, nationwide advisory boards (e.g. in Finland, the National Advisory Board on Social Welfare and Healthcare, ETENE) to intra-professional committees (the Committee for Ethical Matters of Principle of the Finnish Medical Association) to general forums (the Physicians’ Ethics Forum) to various intra-organizational commissions and more free-forming local discussions (see Lötjönen 1999; Fuchs 2005, p. 28–29; Halila 2003, S. 357–361; cf. Kappel 2008, S. 25–27 and Kettner 2005, S. 4–5). On the early stages of hospital ethics committees, see Rosner 1985.
- 9.
The symptoms of the scientific self-understanding of the medical profession is easily found, especially in efforts to close off all non-biomedical ways of healing from the medical sphere and from the focus on evidence-based diagnoses, treatment and prevention early on in medical training.
- 10.
74 % of 344 American physicians who took part in a telephone interview stated that their last dilemma ending in ethical consultation was related to questions of the end-phase of life. These same dilemmas led to ethical consultations in every group of physicians interviewed. (DuVal et al. 2001 and 2004, cf. Saarni et al. 2008.)
References
Armstrong, D. (2007). Professionalism, indeterminacy and the EBM project. BioSocieties, 2(1), 73–84.
Ashcroft, R. E. (2004). Current epistemological problems in evidence based medicine. Journal of Medical Ethics, 30(2), 131–135.
Bauch, J. (2000). Selbst- und Fremdbeschreibung des Gesundheitswesens. Anmerkungen zu einem absonderlichen Sozialsystem. In H. de Berg & J. Schmidt (Eds.), Rezeption und Reflexion. Zur Resonanz der Systemtheorie Niklas Luhmanns außerhalb der Soziologie (pp. 387–410). Frankfurt a. M.: Suhrkamp.
Boden, R., Epstein, D., & Latimer, J. (2009). Accounting for ethos or programmes for conduct? The brave new world of research ethics committees. The Sociological Review, 57(4), 727–749.
Bogner, A. (2009). Ethisierung und die Marginalisierung der Ethik. Zur Mikropolitik des Wissens in Ethikräten. Soziale Welt, 60(2), 119–137.
Bora, A. (2009). Technoscientific normativity and the “Iron Cage” of law. Science, Technology & Human Values, 35(1), 3–28.
van den Daele, W. (2001). Von moralischer Kommunikation zur Kommunikation über Moral. Reflexive Distanz in diskursiven Verfahren. Zeitschrift für Soziologie, 30(1), 4–22.
van den Daele, W. (2008). Streitkultur. Über den Umgang mit unlösbaren moralischen Konflikten im Nationalen Ethikrat. In D. Gosewinkel & G. Folke Schuppert (Eds.), Politische Kultur im Wandel von Staatlichkeit (WZB-Jahrbuch 2007) (pp. 357–384). Berlin: Edition Sigma.
DuVal, G., Sartorius, L., Clarridge, B., Gensler, G., & Danis, M. (2001). What triggers requests for ethics consultations? Journal of Medical Ethics, ##############27(1), 24–29.
DuVal, G., Clarridge, B., Gensler, G., & Danis, M. (2004). A national survey of U.S. Internists’ experiences with ethical dilemmas and ethics consultation. Journal of General Internal Medicine (JGIM), 19(3), 251–258.
Evidence-Based Medicine Working Group. (1992). Evidence-based medicine: A new approach to teaching the practice of medicine. The Journal of the American Medical Association (JAMA), 268(17), 2420–2425.
Evidence-Based Medicine Working Group. (2002). The users’ guide to the medical literature. Introduction: The philosophy of evidence-based medicine (1A) (pp. 3–12). Chicago: The American Medical Association.
Fateh-Moghadam, B., & Atzeni, G. (2008). Ethisch vertretbar im Sinne des Gesetzes—Zum Verhältnis von Ethik und Recht am Beispiel der Praxis von Forschungs-Ethikkomissionen. In S. Vöneky, C. Hagedorn, M. Clados, & J. von Achenbach (Eds.), Legitimation ethischer Entscheidungen im Recht—Interdisziplinäre Untersuchungen (pp. 115–143). Berlin: Springer.
Fuchs, M. (2005). National ethics councils. Their backgrounds, functions and modes of operation compared. Berlin: National Ethikrat.
Fuchs, C., Nagel, E., & Raspe, H. (2009). Rationalisierung, Rationierung und Priorisierung—was ist gemeint? DeutschesÄrzteblatt, 106(12), 554–557.
Hacking, I. (1975). The emergence of probability. A philosophical study of early ideas about probability, induction and statistical inference. Cambridge: Cambridge University Press.
Hacking, I. (1990). The taming of chance. Cambridge: Cambridge University Press.
Hafen, M. (2007). Mythologie der Gesundheit. Zur Integration von Salutogenese und Pathogenese (Mit einem Vorwort von Jost Bauch). Heidelberg: Carl–Auer–Systeme.
Halila, R. (2003).The role of national ethics commissions in Finland. Bioethics, 17(4), 357–368.
Haug, M. R. (1988). A re-examination of the hypothesis of physician deprofessionalization. Milbank Quarterly, 66(Suppl. 2), 48–56.
Helén, I. (2004). Technics over life: Risk, ethics and the existential condition in high-tech antenatal care. Economy and Society, 33(1), 28–51.
Høyer, K. (2008). The ethics of research biobanking: A critical review of the literature. In S. Harding (Ed.), The ethics of research biobanking (Vol. 25, pp. 429–452). Nottingham: Nottingham University Press.
Høyer, K. L., & Tutton, R. (2005). ‘Ethics was here’: Studying the language-games of ethics in the case of UK Biobank. Critical Public Health, 15(4), 385–397.
Jallinoja, P. (2002a). Genetics, negotiated ethics and the ambiguities of moral choices. Helsinki: Kansanterveyslaitos.
Jallinoja, P. (2002b). Ethics of clinical genetics. The spirit of profession and trials of suitability from 1970 to 2000. Critical Public Health, 12(2), 103–118.
Jensen, U. J. (2007). The struggle for clinical authority: Shifting ontologies and the politics of evidence. BioSocieties, 2(1), 101–114.
Kappel, K. (2008). National ethics advisory boards: Do they have a legitimate role in liberal democracy? In S. Lötjönen & H. von Troil (Eds.), Bioethics, politics and business (pp. 26–44). Copenhagen: TemaNord.
Kettner, M. (2005). Ethik-Komitees. Ihre Organisations for men und ihre moralischer Anspruch. Erwägen Wissen Ethik (EWE), 16(1), 1–16.
Kristiansen, I. S., & Mooney, G. (Eds.) (2004). Evidence-based medicine: In its place. London: Routledge.
Kruger, M. (2010). The ethical approach to evidence-based medicine. South African Journal of Clinical Nutrition, 23(1), 69–70.
Liberati, A., & Vineis, P. (2004). Introduction to the symposium: What evidence based medicine is and what it is not. Journal of Medical Ethics, 30(2), 120.
Lippman, A. (1991). Prenatal genetic testing and screening: Constructing needs and reinforcing inequities. American Journal of Law and Medicine, 17(1–2), 15–50.
Luhmann, N. (1983a). Medizin und Gesellschaftstheorie. Medizin, Mensch, Gesellschaft, 8, 168–175.
Luhmann, N. (1983b). Anspruchsinflation im Krankheitssystem. Eine Stellungnahme aus gesellschaftlicher Sicht. In P. Herder-Dorneich & A. Schuller (Eds.), Die Anspruchsspirale: Schicksal oder Systemdefekt? (pp. 28–49). Stuttgart: Kohlhammer.
Luhmann, N. (1990). Der medizinische Kode. In N. Luhmann (Ed.) Soziologische Aufklärung: Konstruktivistische Perspektiven (Band V) (pp. 183–195). Opladen: Westdeutscher Verlag.
Luhmann, N. (1991). Soziologie des Risikos. Berlin: Walter de Gruyter.
Lötjönen, S. (1999). Ethics committees in Finland—biomedicine and research. Helsinki: The National Research Ethics Council of Finland, Ministry of Education.
Mackie, J. L. (1974). The cement of the universe: A study of causation. Oxford: Oxford University Press
Mayes, R. (2007). The origins, development, and passage of medicare’s revolutionary prospective payment system. Medicine and Allied Sciences, 62(1), 21–55.
Meskus, M. (2009). Elämän tiede. Tutkimus lääketieteellisestä teknologiasta, vanhemmuudesta ja perimän hallinnasta. (The science of life. A study of medical technology, parenthood and governing the heredity). Tampere: Vastapaino.
Mol, A. (2002). The body multiple: Ontology in medical practice. Durham: Duke University Press.
Mol, A. (2008).The logic of care. Health and the problem of patient choice. London: Routledge.
Montori, V. M., & Guyatt, G. H. (2008). Progress in evidence-based medicine. The Journal of the American Medical Association (JAMA), 300(15), 1814–1816.
Nassehi, A. (2006). Die Praxis ethischen Entscheidens. Eine soziologische Forschungsperspektive. Zeitschrift für Medizinische Ethik, 52(4), 267–277.
Nassehi, A., Saake, I., & Mayr, K. W. (2008). Health care ethics committees without function? Locations and forms of ethical speech in a ‘society of the presents’. In B. Katz Rothman, E. Mitchell Armstrong, & R. Tiger (Eds.), Bioethical issues, sociological perspectives. Advances in Medical Sociology (Vol 9, pp. 129–156). Amsterdam: Elsevier Ltd.
Pelikan, J. M. (2007a).Understanding differentiation of health and modernity by use of sociological systems theory. In D. V. McQueen, I. Kickbush, L. Potvin, J. M. Pelikan, L. Balbo, & T. Abel (Eds.), Health and modernity. The role of theory in health promotion (pp. 74–102). New York: Springer.
Pelikan, J. M. (2007b). Zur Rekonstruktion und Rehabilitation eines absonderliches Funktionssystems—Medizin und Krankenbehandlung bei Niklas Luhmann und in der Folgerezeption. Soziale Systeme, 13(1 & 2), 290–303.
Pelikan, J. M. (2009). Ausdifferenzierung von spezifischen Funktionssystemen für Krankenbehandlung und Gesundheitsförderung oder: Leben wir in der „Gesundheitsgesellschaft“? Österreichische Zeitschrift für Soziologie (ÖZS), 34(2), 28–47.
Ritzer, G., & Walczak, D. (1988). Rationalization and deprofessionalization of physicians. Social Forces, 67(1) 1–22.
Rosner, F. (1985). Hospital medical ethics committees: A review of their development. The Journal of the American Medical Association (JAMA), 253(18), 2693–2697.
Saake, I. (2003). Die Performanz des Medizinischen. Zur Asymmetrie in der Arzt-Patienten-Interaktion. Soziale Welt, 54(4), 429–460.
Saake, I., & Kunz, D. (2006). Von Kommunikation über Ethik zu “ethischer Sensibilisierung”: Symmetrierungsprozess in diskursiven Verfahren. Zeitschrift für Soziologie, 35(1), 41–56.
Saake, I., & Vogd, W. (Eds.) (2008). Moderne Mythen der Medizin. Studien zur organisierten Krankenbehandlung. Wiesbaden: VS Verlag für Sozialwissenschaften.
Saarni, S., Halila, R., Palmu, P., & Vänskä, J. (2008). Ethically problematic treatment decisions in different medical specialties. Journal of Medical Ethics, 34(4), 262–267.
Sackett, D. L. (2002). Clinical epidemiology: what, who and whither. Journal of Clinical Epidemiology, 55(12), 1161–1166.
Schimank, U. (2005). Organisationsgesellschaft. In W. Jäger & U. Schimank (Eds.), Organisationsgesellschaft. Facetten und Perspektiven (pp. 19–50). Wiesbaden: VS Verlag für Sozialwissenschaften.
Self, D. J., Skeel, J. D., & Jecker, N. S. (1993). A comparision of the moral reasoning of physicians and clinical medical ethicists. Academic Medicine, 68(11), 852–855.
Stollberg, G. (2009). Das medizinische System. Überlegungen zu einem von der Soziologie vernachlässigten Funktionssystem. Soziale Systeme, 15(1), 189–217.
Sulilatu, S. (2008). Klinische Ethik-Komitees als Verfahren der Entbürokratisierung? In I. Saake & W. Vogd (Eds.), Moderne Mythen der Medizin. Studien zur organisierten Krankenbehandlung (pp. 285–306). Wiesbaden: VS Verlag für Sozialwissenschaften.
Suomen Lääkäriliitto. (2005). Lääkärin etiikka. (Physician’s Ethics). Helsinki: Suomen Lääkäriliitto.
ten Have, H. A. M. J. (2001). Genetics and culture: The ‘geneticization thesis’. Medicine, Health Care and Philosophy, 4(3), 295–304.
Timmermans, S., & Berg, M. (2003). The gold standard. The challenge of evidence-based medicine and standardization in health care. Philadelphia: Temple University Press.
Timmermans, S., & Kolker, E. (2004). Evidence-based medicine and the reconfiguration of medical knowledge. Journal of Health and Social Behaviour, 45(1), 177–193.
Timmermans, S., & Mauck, A. (2005). The promises and pitfalls of evidence-based medicine. Health Affairs, 24(1), 18–28.
Vineis, P. (2004). Evidence-based medicine and ethics: A practical approach. Journal of Medical Ethics, 30(2), 126–130.
Vogd, W. (2002). Professionalisierungsschub oder Auflösung ärztlicher Autonomie. Die Bedeutung von Evidence Based Medicine und neuen funktionalen Eliten in der Medizin aus system- und interaktionistischer Perspektive. Zeitschrift für Soziologie, 31(4), 294–315.
Vogd, W. (2005). Medizinsystem und Gesundheitswissenschaften—Rekonstruktion einer schwierigen Beziehung. Soziale Systeme, 11(2), 236–270.
Worrall, J. (2010). Evidence: philosophy of science meets medicine. Journal of Evaluation in Clinical Practice, 16(2), 356–362.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2015 Springer Fachmedien Wiesbaden
About this chapter
Cite this chapter
Virtanen, M. (2015). From Square Problems to Round Reasoning: A Systems Theoretical View of Medical Ethics Problems and Their Solution Practices. In: Nassehi, A., Saake, I., Siri, J. (eds) Ethik – Normen – Werte. Studien zu einer Gesellschaft der Gegenwarten, vol 1. Springer VS, Wiesbaden. https://doi.org/10.1007/978-3-658-00110-0_13
Download citation
DOI: https://doi.org/10.1007/978-3-658-00110-0_13
Published:
Publisher Name: Springer VS, Wiesbaden
Print ISBN: 978-3-658-00109-4
Online ISBN: 978-3-658-00110-0
eBook Packages: Humanities, Social Science (German Language)