Advertisement

Quality of Life Assessment in Arthritis

  • S. M. Skevington

Summary

Arthritis is rarely fatal but profoundly affects functioning, so there are important quality of life implications for these patients. Pain and disability are key issues in this disease, and has stimulated discussion of more general points on measuring quality of life cross-culturally. Following general remarks about conceptualization of the issue, this report reviews some important scales and concludes that, while a number of generic and specific instruments exist which could be used to evaluate the lives of those with arthritis, several do not assess pain and none includes the broad range of quality of life issues, positive and negative, to provide a comprehensive assessment. Future scales will need to take account of the fluctuating nature of the disease and how this affects the stability of measurement.

Keywords

Rheumatoid Arthritis Life Assessment Sickness Impact Profile Interethnic Difference Arthritis Impact Measurement Scale 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  1. Badley E (1992) The impact of musculoskeletal disorders on the Canadian population. Rheumtol 19: 337–340Google Scholar
  2. Bergner JM, Bobbitt RA, Carter WB, Gilson BS (1981) The Sickness Impact Profile: development and final revision of a health status measure. Med Care XIX (8): 787–805CrossRefGoogle Scholar
  3. Bowling A (1993) Conceptual and measurement issues in identified dimensions of quality of life: social, psychological and physical. Paper to the Health Related Quality of Life Workshop, Society for Social Medicine, SheffieldGoogle Scholar
  4. Caiman KC (1987) Definitions and dimensions of quality of life. In: Aaronson NK, Beckman J (eds) The quality of life of cancer patients. Raven Press, New York, pp 1–9Google Scholar
  5. Clark WB, Clark SB (1980) Pain responses in Nepalese porters. Science 209: 410–412PubMedCrossRefGoogle Scholar
  6. Dieppe PA, Harkness JAL, Higgs ER (1989) Osteoarthritis. In: Wall PD, Melzack R (eds) Textbook of pain (second edition). Churchill Livingston, Edinburgh, pp 306–314Google Scholar
  7. Deyo RA (1988) Measuring the quality of life of patients with rheumatoid arthritis. In: Walker SR, Rosser RM (eds) Quality of life: assessment and application. MTP Press, Lancaster, pp 205–222Google Scholar
  8. Fabrega H, Timms S (1976) Culture, language and the shaping of an illness: an illustration based on pain. J Psychosomatic Res 20: 323CrossRefGoogle Scholar
  9. Fallowfield L (1990) The quality of life: the missing measurement in health care. Souvenir Press, London.Google Scholar
  10. Ferraz MB, Quaresma MR, Aquino LRL, Atra E, Thgwell P, Goldsmith CH (1990) Reliability of pain scales in the assessment of literate and illiterate patients with RA. J Rheumatol 17(8): 1022PubMedGoogle Scholar
  11. Fries J, Spitz P, Young D (1980) The dimensions of health outcomes: the Health Assessment Questionnaire, disability and pain scales. J Rheumatol 9: 789–793Google Scholar
  12. Geddes DM (1985) Quality of life. Clinics Oncol 4(1): 161Google Scholar
  13. Guyatt GH, van Zanten SJOV, Feeny DH, Patrick DL (1989) Measuring quality of life in clinical trials: a taxonomy and review. CMAJ 140: 1441–1447PubMedGoogle Scholar
  14. Hochberg MC, Chang RW, Dwosh I, Lindsey S, Pincus T, Wolfe F (1992) The American College of Rheumatology 1991 revised criteria for the classification of global functional status in Rheumatoid Arthritis. Arth Rheumat 35(5): 498CrossRefGoogle Scholar
  15. Hunt SM, McEwan J, McKenna SP (1986) Cross-cultural issues in health indicators. Chapter 8. In: Measuring health status. Croom Helm, London, pp 203–224Google Scholar
  16. Huskisson EC (1983) Visual Analogue Scales. In: Melzack R (ed) Pain measurement and assessment. Raven Press, New York, pp 33–37Google Scholar
  17. Hyland M (1992) A reformulation of quality of life for medical science. Quality of Life Res 1: 267–272CrossRefGoogle Scholar
  18. Jacyna M (1992) Serious gastrointestinal adverse events to NSAIDS: complications in the treatment of arthritis. Brit J Med Econ: An evaluation of the cost of arthritis 15: 15–21Google Scholar
  19. Jayson MIV, Dixon A StJ (1980) Rheumatism and Arthritis: What you should know about the problems and treatment. Pan, LondonGoogle Scholar
  20. Jette AM (1980) Functional Status Index: reliability of a chronic disease evaluation instrument. Arch Phys Med Rehab 61: 395–401Google Scholar
  21. Liang MH, Cullen K, Larson M (1982) In search of a more perfect mousetrap (health status or quality of life instrument). J Rheumatol 9(5): 775PubMedGoogle Scholar
  22. Liang MH, Larson M, Cullen K, Schwartz JA (1985) Comparative measurement efficiency and sensitivity of five health status instruments for arthritis research. Arth Rheumat 28(5): 542–547CrossRefGoogle Scholar
  23. Lipton JA, Marbach JJ (1984) Ethnicity and the pain experience. Soc Sci Med 19(12): 1279–1298PubMedCrossRefGoogle Scholar
  24. Martin J, Meltzer H, Elliott D (1988) The prevalence of disability among adults. HMSO LondonGoogle Scholar
  25. Meenan RF, Gertman PM, Mason JH (1980) Measuring health status in arthritis: the Arthritis Impact Measurement Scales. Arth Rheumat 23(2): 146–152CrossRefGoogle Scholar
  26. Meenan RF, Gertman PM, Mason JH, Dunaif R (1982) The Arthritis Impact Measurement Scales: further investigations of a health status measure. Arth Rheumat 25(9): 1048–1053CrossRefGoogle Scholar
  27. Meenan RF, Mason JH, Anderson JJ, Guccione AA, Kazis LE (1992) The content and properties of a revised and expanded Arthritis Impact Measurement Scales health status questionaire. Arthritis Rheumat 35(1): 1–10PubMedCrossRefGoogle Scholar
  28. Melzack R, Dennis SC (1978) Neurophysiological foundations of pain. In: Sternbach RA (ed) The psychology of pain, Raven Press, New York, pp 1–26Google Scholar
  29. Pincus T, Callaghan LF (1986) Taking mortality in Rheumatoid Arthritis seriously – predictive markers, socio-economic status and comorbidity. J Rheumatol 13(5): 841–845PubMedGoogle Scholar
  30. Ropes MW, Bennett GA, Cobb S, Jacox R, Jessar RA (1958) Revision of diagnostic criteria for Rheumatoid Arthritis. Arthritis and Rheumatism Foundation. Bull Rheumat Dis IX(4): 175–176Google Scholar
  31. Ryff CD (1989) Happiness is everything, or is it? Explorations on the meaning of the psychological well-being. J Personality Social Psychol 57(6): 1069–1081CrossRefGoogle Scholar
  32. Sartorius N (1987) Cross-cultural comparisons of data about quality of life: a sample of issues. In: Aaronson NK, Beckman J (eds) The quality of life of cancer patients: Monographs of the European Organisation for research on the Treatment of Cancer (EORTC). Raven Press, New York, pp 19–24Google Scholar
  33. Sartorius N (1993) WHO method for assessment of health-related quality of life. In: Walker SR, Rosser RM (eds) Quality of life assessment: key issues in the 1990’s. Kluwer Academic Publishers, Dordrecht, NetherlandsGoogle Scholar
  34. Scotch NA, Geiger HJ (1962) The epidemiology of rheumatoid arthritis — a review with special attention to social factors. J Chron Dis 15: 1037–1067PubMedCrossRefGoogle Scholar
  35. Shutty MS, Lundiff G, DeGood DE (1992) Pain complaints and the weather: weather sensitivity and symptom complaints in chronic pain. Pain 49: 199–204PubMedCrossRefGoogle Scholar
  36. Skevington SM (1994) Social comparisons in cross-cultural quality of life assessment. International Journal of Mental Health. Monograph on Quality of Life (in press)Google Scholar
  37. Steinbroker O, Thaeger C, Batterman R (1949) Therapeutic criteria in Rheumatoid Arthritis. JAMA 262: 907–1013Google Scholar
  38. Tugwell P, Bombardier C, Buchanan WW, Goldsmith CH, Grace E, Hanna B (1987) The MACTAR patient preference disability questionnaire - an individual functional priority approach for assessing improvement in physical disability in clinical trials in Rheumatoid Arthritis. J Rheumatol 14(3): 446–451PubMedGoogle Scholar
  39. Wallston KA, Brown GK, Stein MJ, Dobbins CJ (1989) Comparing the short and long versions of the AIMS. J Rheumatol 16(8): 1105PubMedGoogle Scholar
  40. Zborowski M (1952) Cultural components in responses to pain. J Social Issues 8: 16–30CrossRefGoogle Scholar
  41. Zola IK (1966) Culture and symptoms — an analysis of patients presenting complaints. Am Social Rev 31: 615–630CrossRefGoogle Scholar

Copyright information

© Springer-Verlag Berlin Heidelberg 1994

Authors and Affiliations

  • S. M. Skevington

There are no affiliations available

Personalised recommendations