Abstract
The growth in social networking sites and online forums make the internet a potential platform to be considered for the provision of self-management and e-learning support to young people following cancer treatment. However, the feasibility and potential barriers to this as a post treatment option should be considered. A mixed methods approach was adopted that included an online survey, focus groups and interviews with cancer survivors, their parents, and information technology, clinical and social work professionals to consider the potential of a web-based self-management resource. Barriers were identified to the delivery of care using this method. Developing such a self-management system requires close working between IT and clinical staff, alongside patient representation and usability expertise. As computer access and use amongst this group is commonplace, there is an expectation that self-management needs will be met at least partially in this way in the future.
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Moody, L., Turner, A., Osmond, J., Kosmala-Anderson, J., Hooker, L., Batehup, L. (2013). Exploring the Need for, and Feasibility of, a Web-Based Self-Management Resource for Teenage and Young Adult Cancer Survivors in the UK. In: Marcus, A. (eds) Design, User Experience, and Usability. Health, Learning, Playing, Cultural, and Cross-Cultural User Experience. DUXU 2013. Lecture Notes in Computer Science, vol 8013. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-39241-2_46
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DOI: https://doi.org/10.1007/978-3-642-39241-2_46
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