Advertisement

Transition from Pediatric to Adult Care

  • Theresa M. Gabay
  • Jennifer A. Disabato
  • Teresa Schultz
Chapter

Abstract

Many children are now able to survive into adulthood with conditions that only a few years ago were early death sentences. Nurses are now seeing these children grow into productive adults. This chapter looks at how pediatric nurses can help these children and their families’ transition to adult care models smoothly. And interestingly, there are examples of how health care providers see handing patients off to the next care provider. Several national experts have written this chapter that looks at current models of care and gives an overview of the current recommendation for this population.

Keywords

Cerebral Palsy Spina Bifida Medical Home Child With Special Health Care Need Special Health Care 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

References

  1. American Academy of Pediatrics American Academy of Family Physicians, & America College of Physicians – American Society of Internal Medicine (2002) A consensus statement on health care transitions for young adults with special health care needs. Pediatrics 110(6 pt 2):1304–1306Google Scholar
  2. American Academy of Pediatrics, American Academy of Family Physicians, & American College of Physicians, Transitions Clinical Report Authoring Group (2011) Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics 128:182–200. doi:  10.1542/peds.2011-0969 CrossRefGoogle Scholar
  3. Berkowitz S (2009) Transitioning adolescents to adult care: putting theory into practice. Minn Med 92(3):42–44PubMedGoogle Scholar
  4. Betz CL (2004) Transition of adolescents with special health care needs: Review and analysis of the literature. Issues Compr Pediatr Nurs 27:179–240PubMedGoogle Scholar
  5. Betz CL, Redcay G (2003) Creating Healthy Futures: an innovative nurse-managed transition clinic for adolescents and young adults with special health care needs. Pediatr Nurs 29(1):25–30PubMedGoogle Scholar
  6. Betz CL, Redcay G (2005) Dimensions of the transition service coordinator role. J Spec Pediatr Nurs 10(2):49–59. doi:  JSPN010 [pii]  10.1111/j.1744-6155.2005.00010.x PubMedCrossRefGoogle Scholar
  7. Binks J, Barden W, Burke T, Young N (2007) What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida. Arch Phys Med Rehabil 88(8):1064–1073. doi:  10.1016/j.apmr.2007.04.018 PubMedCrossRefGoogle Scholar
  8. Blum R (1995) Transition to adult health care: setting the stage. J Adolesc Health 17:3–5PubMedCrossRefGoogle Scholar
  9. Buxton N, Punt J (1998) Failure to follow patients with hydrocephalus shunts can lead to death. Br J Neurosurg 12(5):399–401PubMedCrossRefGoogle Scholar
  10. Callahan S, Winitzer R, Keenan P (2001) Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease. Curr Opin Pediatr 31:310–316CrossRefGoogle Scholar
  11. Camfield P, Camfield C (2011) Transition to adult care for children with chronic neurological disorders. Ann Neurol 69:437–444. doi:  10.1002/ana.22393 PubMedCrossRefGoogle Scholar
  12. Darer J, Hwang W, Pham H, Bass E, Anderson G (2004) More training needed in chronic care: a survey of US physicians. Acad Med 79(6):541–548PubMedCrossRefGoogle Scholar
  13. Duke N, Scal P (2011) Adult care transitioning for adolescents with special health care needs: a pivotal role for family centered care. Matern Child Health J 15:98–105. doi:  10.1007/s10995-0547-1 PubMedCrossRefGoogle Scholar
  14. Epilepsy Foundation of Metropolitan New York (2008) Transition Planning, in Care Book, English & Spanish, http://www.epilepsyfoundation.org/search/index.cfm/NY_CareBK_EnglishSpanish.pdf. Accessed March 12, 2012
  15. Goodman D, Hall M, Levin A, Watson R, Williams R, Shah S, Slonim A (2011) Adults with chronic health conditions originating in childhood: inpatient ­experience in children’s hospitals. Pediatrics 128:5–13. doi:  10.1542/peds.2010-2037 PubMedCrossRefGoogle Scholar
  16. Jurasek L, Ray L, Quigley D (2010) Development and implementation of an adolescent epilepsy transition clinic. J Neurosci Nurs 42(4):181–189PubMedCrossRefGoogle Scholar
  17. Kaufman B, Terbrock A, Winters N, Ito J, Klosterman A, Park T (1994) Disbanding a multidisciplinary clinic: effects on the health care of myelomeningocele patients. Pediatr Neurosurg 21(1):36–44PubMedCrossRefGoogle Scholar
  18. Labhard S (2010) Transitioning to adulthood with disabilities: a holistic approach. Top Spinal Cord Inj Rehabil 16(1):1–16. doi:  10.1310/sci1601-1 CrossRefGoogle Scholar
  19. Lam P, Fitzgerald B, Sawyer S (2005) Young adults in children’s hospitals: why are they there? Med J Aust 182(8):381–384. doi:  lam10648_fm [pii]PubMedGoogle Scholar
  20. Lotstein D, Ghandour R, Cash A, McGuire E, Strickland B, Newacheck P (2009) Planning for health care transitions: results from the 2005-2006 national survey of children with special health care needs. Pediatrics 123:e145–e152. doi:  10.1542/peds.2008-1298 PubMedCrossRefGoogle Scholar
  21. Mennito S, Clark J (2010) Transition medicine: a review of current theory and practice. South Med J 103(4):339–342PubMedCrossRefGoogle Scholar
  22. Okumura M, Heisler M, Davis M, Cabana M, Demonner S, Kerr E (2008) Comfort of general internists and general pediatricians in providing care for young adults with chronic illnesses of childhood. J Gen Intern Med 23(10):1621–1627. doi:  10.1007/s11606-008-0716-8 PubMedCrossRefGoogle Scholar
  23. Okumura M, Kerr E, Cabana M, Davis M, Demonner S, Heisler M (2010) Physician views on barriers to ­primary care for young adults with childhood-onset chronic disease. Pediatrics 125:e748–e754. doi:  10.1542/peds.2008-3451 PubMedCrossRefGoogle Scholar
  24. Park M, Adams S, Irwin C (2011) Health care services and the transition to young adulthood: challenges and opportunities. Acad Pediatr 11(2):115–122PubMedCrossRefGoogle Scholar
  25. Patel M, O’Hare K (2010) Residency training in transition of youth with childhood-onset chronic disease. Pediatrics 126:S190–S193. doi:  10.1542/peds.2010-1466P PubMedCrossRefGoogle Scholar
  26. Patwardhan R, Nanda A (2005) Implanted ventricular shunts in the United States: the billion-dollar-a-year cost of hydrocephalus treatment. Neurosurgery 56(1):139–144PubMedGoogle Scholar
  27. Peter N, Forke C, Ginsburg K, Schwarz D (2009) Transition from pediatric to adult care: internists’ perspectives. Pediatrics 123(2):417–423. doi:  123/2/417 [pii] 10.1542/peds.2008-0740 PubMedCrossRefGoogle Scholar
  28. Reiss J (2009) When you’re 18 you are in charge of your health: health care transition guide for young adults. Institute for Child Health Policy at the University of Florida, GainesvilleGoogle Scholar
  29. Rekate H (2009) The pediatric neurosurgical patient: the challenge of growing up. Semin Pediatr Neurol 16(1):2–8. doi:  10.1016/j.spen.2009.03.004 PubMedCrossRefGoogle Scholar
  30. Ried S (2010) Transition of youth from pediatric to adult care: physician’s perspective and recommendations. Top Spinal Cord Inj Rehabil 16(1):38–47. doi:  10.1310/sci1601-38 CrossRefGoogle Scholar
  31. Sanders R, Kuo D, Levey D, Cheng T (2009) Transitioning adolescents to adult care and adulthood: is it time yet? Contemp Pediatr 26(12):46–55Google Scholar
  32. Sawicki G, Lukens-Bull K, Xiaoping Y, Demars N, Huang I, Livingood W, Reiss J, Wood D (2011) Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ – Transition Readiness Assessment Questionnaire. J Pediatr Psychol 36(2):160–171. doi:  10.1093/jpepsy/jsp128 PubMedCrossRefGoogle Scholar
  33. Sawyer S, Aroni R (2005) Self-management in adolescents with chronic illness. What does it mean and how can it be achieved? Med J Aust 183(8):405–409. doi:  saw10483_fm [pii] [pii]PubMedGoogle Scholar
  34. Simon T, Riva-Cambrin J, Srivastava R, Bratton S, Dean J, Kestle J (2008) Hospital care for children with hydrocephalus in the United States: utilization, charges, comorbidities, and deaths. J Neurosurg Pediatr 1(2):131–137PubMedCrossRefGoogle Scholar
  35. Simon T, Lamb S, Murphy N, Hom B, Walker M, Clark E (2009) Who will care for me next? Transitioning to adulthood with hydrocephalus. Pediatrics 124(5):1431–1437. doi:  10.1542/peds.2008-3834 PubMedCrossRefGoogle Scholar
  36. Slap G (2009) Promoting lifelong health for adolescents and young adults with special health care needs. Pediatrics 124:1469–1470. doi:  10.1542/peds.2009-1662 PubMedCrossRefGoogle Scholar
  37. Tomlinson P, Sugarman I (1995) Complications with shunts in adults with spina bifida. BMJ 311:286–287PubMedCrossRefGoogle Scholar
  38. Tuffrey C, Pearce A (2003) Transition from paediatric to adult medical services for young people with chronic neurological problems. J Neurol Neurosurg Psychiatry 74(8):1011–1013PubMedCrossRefGoogle Scholar
  39. Vinchon M, Dhellemmes P (2007) The transition from child to adult in neurosurgery. Adv Tech Stand Neurosurg 32:3–24PubMedCrossRefGoogle Scholar
  40. Washington State Adolescent Health Transition Project (2006) Working Together for Successful Transition: Washington State Adolescent Transition Resource Notebook, Publication Number 970–110, Washington State Department of Health, http://www.dshs.wa.gov/health.shtml. Accessed March 19, 2012
  41. Woldorf J (2007) Transition adolescents with special healthcare needs: potential barriers and ethical conflicts. J Spec Pediatr Nurs 12(1):53–55PubMedGoogle Scholar

Copyright information

© Springer-Verlag Berlin Heidelberg 2013

Authors and Affiliations

  • Theresa M. Gabay
    • 1
  • Jennifer A. Disabato
    • 2
  • Teresa Schultz
    • 3
  1. 1.Department of Pediatrics and NeurosurgeryThe Joseph M. Sanzari Children’s Hospital at Hackensack UMCHackensackUSA
  2. 2.Women, Children and Family HealthUniversity of Colorado, Anschutz Medical Campus, College of NursingAuroraUSA
  3. 3.Department of NeurosurgeryGillette Children’s Specialty HealthcareSt. PaulUSA

Personalised recommendations