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International Conference on Electronic Healthcare

eHealth 2009: Electronic Healthcare pp 51–61Cite as

Enabling Technology to Advance Health-Protecting Individual Rights-Are We Walking the Talk?

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Abstract

The evolving structure and business of health care services and delivery need the functionality and capability offered by electronic health record (EHR) systems. By electronically diffusing the traditional patient record, however, this new model blurs the long-established medical data home, raising concerns about data ownership, confidentiality, access and individual rights. In 2008 the Lawson Health Research Institute began the process of instituting a robust health informatics and collaborative research infrastructure, now known as I-THINK Research. As data are migrated to the platform and policies are developed, we are forced to confront the complexity of issues around protection of individual rights. The paper presents, in a broader context, the main issues surrounding the privacy debate and the need for education, accountability and new legislation to help define and protect individual rights as new e-health business models emerge.

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Author information

Authors and Affiliations

  1. I-THINK Research, Lawson Health Research Institute, 268 Grosvenor St, FB-112, London, ON, N6A 4V2, Canada

    Crystal Sharp & Femida Gwadry-Sridhar

Authors
  1. Crystal Sharp
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  2. Femida Gwadry-Sridhar
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Editor information

Editors and Affiliations

  1. Head of Centre City ehealth Research Centre (CeRC),School of Coomunity and Health Sciences, City University London, Northhampton Square, EC1V 0HB, London, United Kingdom

    Patty Kostkova

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© 2010 ICST Institute for Computer Science, Social Informatics and Telecommunications Engineering

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Sharp, C., Gwadry-Sridhar, F. (2010). Enabling Technology to Advance Health-Protecting Individual Rights-Are We Walking the Talk?. In: Kostkova, P. (eds) Electronic Healthcare. eHealth 2009. Lecture Notes of the Institute for Computer Sciences, Social Informatics and Telecommunications Engineering, vol 27. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-11745-9_9

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  • DOI: https://doi.org/10.1007/978-3-642-11745-9_9

  • Publisher Name: Springer, Berlin, Heidelberg

  • Print ISBN: 978-3-642-11744-2

  • Online ISBN: 978-3-642-11745-9

  • eBook Packages: Computer ScienceComputer Science (R0)

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