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The Long-Term Follow-Up from the Parents’ and Patient’s Perspective

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Esophageal and Gastric Disorders in Infancy and Childhood

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Abstract

Corrective surgery of esophageal atresia (EA) does not mean that a patient’s health is fully restored. Potential early or late complications may affect the private, social, and working life of patients and their families. Patient Support Organizations (PSOs) provide support to patients and their families by offering practical assistance. By making their own offers and proposing their own concepts, they contribute to the improvement of the patients’ medical care.

In Europe PSOs encourage the establishment of guidelines and standardized checklists for the lifelong follow-up of patients who underwent surgical EA repair. Based on multicenter data, the PSOs take part in the evaluation and optimization of guidelines and treatment concepts focusing on EA-related morbidity and their development from infant age to late adulthood.

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Author information

Authors and Affiliations

  1. KEKS e.V., Sommerrainstraße 61, Stuttgart, 70374, Germany

    J. Trompelt

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  1. J. Trompelt
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Correspondence to J. Trompelt .

Editor information

Editors and Affiliations

  1. Medical University of Graz, Graz, Austria

    Holger Till

  2. Sheffield Children’s Hospital, Paediatric Gastroenterology Centre, Sheffield, United Kingdom

    Mike Thomson

  3. Division of Cardiothoracic Surgery, Department of Surgery, University of Minnesota Medical School, Minneapolis, Minnesota, USA

    John E. Foker

  4. Department Surgery, University of Missouri, Kansas City Children’s Mercy Hospital, Kansas City, Missouri, USA

    George W. Holcomb III

  5. University of Arizona, Tucson, Arizona, USA

    Khalid M. Khan

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Trompelt, J. (2017). The Long-Term Follow-Up from the Parents’ and Patient’s Perspective. In: Till, H., Thomson, M., Foker, J., Holcomb III, G., Khan, K. (eds) Esophageal and Gastric Disorders in Infancy and Childhood. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-11202-7_57

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  • DOI: https://doi.org/10.1007/978-3-642-11202-7_57

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  • Online ISBN: 978-3-642-11202-7

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