Abstract
Patients and caregivers often express feeling isolated due to the infrequent diagnosis of mesothelioma and helpless due to the lack of available and dependable treatments. These issues, along with undue financial burdens and limited centers of excellence for treatment, culminate to reach the pinnacle of complicated illness, treatment, and grief. Providing emotional and mental health support to mesothelioma patients can be challenging and intimidating. This chapter focuses on how health-care providers can engage in difficult conversation with patients and their families during and after active treatment.
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References
Bates G, Taub RN, West H. Intimacy, body image, and cancer. JAMA Oncol. 2016;2(12):1667. https://doi.org/10.1001/jamaoncol.2016.1196.
Bates GE, Mostel JL, Hesdorffer M. Mesothelioma survivorship: challenges in delivering quality care. Expert Rev Qual Life Cancer Care. 2017;2(3):177–80.
Blanch-Hartigan D, et al. Provision and discussion of survivorship care plans among cancer survivors: results of a nationally representative survey of oncologists and primary care physicians. J Clin Oncol. 2014;32(15):1578–85.
Bower JE. Cancer-related fatigue—mechanisms, risk factors, and treatments. Nat Rev Clin Oncol. 2014;11(10):597–609.
Durand M-A, et al. Do interventions designed to support shared decision-making reduce health inequalities? A systematic review and meta-analysis. PLoS One. 2014;9(4):e94670.
Grunfeld E, Earle CC. The interface between primary and oncology specialty care: treatment through survivorship. J Natl Cancer Inst Monogr. 2010;2010(40):25–30.
Janelsins MC, et al. Prevalence, mechanisms, and management of cancer-related cognitive impairment. Int Rev Psychiatry. 2014;26(1):102–13.
McCorkle R, et al. Self-management: enabling and empowering patients living with cancer as a chronic illness. CA Cancer J Clin. 2011;61(1):50–62.
Parry R, Land V, Seymour J. How to communicate with patients about future illness progression and end of life: a systematic review. BMJ Support Palliat Care. 2014;4(4):331–41.
Shalev A, et al. Examining the role of primary care physicians and challenges faced when their patients transition to home hospice care. Am J Hosp Palliat Med. 2017; https://doi.org/10.1177/1049909117734845.
Ussher JM, et al. Renegotiating sex and intimacy after cancer: resisting the coital imperative. Cancer Nurs. 2013;36(6):454–62.
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Mostel, J.L., Bates-Pappas, G.E. (2019). Difficult Conversations and Survivorship. In: Hesdorffer, M., Bates-Pappas, G. (eds) Caring for Patients with Mesothelioma: Principles and Guidelines. Springer, Cham. https://doi.org/10.1007/978-3-319-96244-3_14
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DOI: https://doi.org/10.1007/978-3-319-96244-3_14
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