Advertisement

We Have Built It, But They Have Not Come: Examining the Adoption and Use of Assistive Technologies for Informal Family Caregivers

  • Pamela WisniewskiEmail author
  • Celia Linton
  • Aditi Chokshi
  • Brielle Perlingieri
  • Varadraj Gurupur
  • Meghan Gabriel
Conference paper
Part of the Advances in Intelligent Systems and Computing book series (AISC, volume 794)

Abstract

We conducted interviews with 14 informal family caregivers of elderly Alzheimer’s and dementia patients in the U.S. to understand opportunities to increase the adoption and use of assistive technologies (ATs) in the home. We identified three key themes: (1) Most of the caregivers were interested in adopting assistive technologies, but they did not know where to begin; healthcare providers gave little to no guidance. (2) Caregivers demonstrated a need for assistive technologies that enabled or enhanced remote caregiving, as many were adult children who worked full-time and had to leave their elderly parent at home, unattended during the day. (3) While caregivers rarely adopted assistive technologies designed specifically for caregiving, they often repurposed everyday technologies (e.g., home security systems, calendar applications) to aid in care. These findings provide insights for how we can better support the use of assistive technologies by informal family caregivers.

Keywords

Assistive technology Informal caregiving Alzheimer’s disease Dementia 

References

  1. 1.
    Family Caregiver Alliance: Caregiver Statistics: Demographics. https://www.caregiver.org/caregiver-statistics-demographics
  2. 2.
    Williams, A., Sethi, B., Duggleby, W., Ploeg, J., Markle-Reid, M., Peacock, S., Ghosh, S.: A canadian qualitative study exploring the diversity of the experience of family caregivers of older adults with multiple chronic conditions using a social location perspective. Int. J. Equity Health 15, 40 (2016)CrossRefGoogle Scholar
  3. 3.
    Edlund, C., Björklund, A.: Family caregivers’ conceptions of usage of and information on products, technology and web-based services. Technol. Disabil. 23, 205–214 (2011)Google Scholar
  4. 4.
    Olsson, A., Engström, M., Skovdahl, K., Lampic, C.: My, your and our needs for safety and security: relatives’ reflections on using information and communication technology in dementia care. Scand. J. Caring Sci. 26, 104–112 (2012)CrossRefGoogle Scholar
  5. 5.
    Clark, S., Elswick, S., Gabriel, M., Gurupur, V., Wisniewski, P.: Transitions of care: a patient-centered perspective of health information systems that support post-acute care. J. Integr. Des. Process Sci. 20, 95–110 (2016)CrossRefGoogle Scholar
  6. 6.
    McKenzie, B., Bowen, M.E., Keys, K., Bulat, T.: Safe home program: a suite of technologies to support extended home care of persons with dementia. Am. J. Alzheimers Dis. Demen. 28, 348–354 (2013)CrossRefGoogle Scholar
  7. 7.
    Robinson, L., Brittain, K., Lindsay, S., Jackson, D., Olivier, P.: Keeping In Touch Everyday (KITE) project: developing assistive technologies with people with dementia and their carers to promote independence. Int. Psychogeriatr. 21, 494–502 (2009)CrossRefGoogle Scholar
  8. 8.
    Cahill, S.: “It gives me a sense of independence” Findings from Ireland on the use and usefulness of assistive technology for people with dementia (2007)Google Scholar
  9. 9.
    Cahill, S.: Technology in dementia care (2007)Google Scholar
  10. 10.
    Gitlin, L.N., Chee, Y.K.: Use of adaptive equipment in caring for persons with dementia at home. Alzheimer’s Care Q. 7, 32–40 (2006)Google Scholar
  11. 11.
    Novitzky, P., Smeaton, A.F., Chen, C., Irving, K., Jacquemard, T., O’Brolcháin, F., O’Mathúna, D., Gordijn, B.: A review of contemporary work on the ethics of ambient assisted living technologies for people with dementia. Sci. Eng. Ethics 21, 707–765 (2015)CrossRefGoogle Scholar
  12. 12.
    Horvath, K.J., Trudeau, S.A., Rudolph, J.L., Trudeau, P.A., Duffy, M.E., Berlowitz, D.: Clinical Trial of a Home Safety Toolkit for Alzheimer’s Disease. https://www.hindawi.com/journals/ijad/2013/913606/
  13. 13.
    Bossen, A.L., Kim, H., Williams, K.N., Steinhoff, A.E., Strieker, M.: Emerging roles for telemedicine and smart technologies in dementia care. Smart Homecare Technol. Telehealth 3, 49–57 (2015)CrossRefGoogle Scholar
  14. 14.
    Mao, H.-F., Chang, L.-H., Yao, G., Chen, W.-Y., Huang, W.-N.W.: Indicators of perceived useful dementia care assistive technology: caregivers’ perspectives. Geriatr. Gerontol. Int. 15, 1049–1057 (2015)CrossRefGoogle Scholar
  15. 15.
    Mulvenna, M., Hutton, A., Coates, V., Martin, S., Todd, S., Bond, R., Moorhead, A.: Views of caregivers on the ethics of assistive technology used for home surveillance of people living with dementia. Neuroethics 10, 255–266 (2017)CrossRefGoogle Scholar
  16. 16.
    Gibson, G., Dickinson, C., Brittain, K., Robinson, L.: The everyday use of assistive technology by people with dementia and their family carers: a qualitative study. BMC Geriatr. 15, 89 (2015)CrossRefGoogle Scholar
  17. 17.
    Baumer, E.P.S., Burrell, J., Ames, M.G., Brubaker, J.R., Dourish, P.: On the importance and implications of studying technology non-use. Interact. New Vis. Hum.-Comput. Interact. 22, 52 (2015)Google Scholar
  18. 18.
    Braun, V., Clarke, V.: Using thematic analysis in psychology. Q. Res. Psychol. 3, 77–101 (2006)CrossRefGoogle Scholar
  19. 19.
    Sharma, N., Chakrabarti, S., Grover, S.: Gender differences in caregiving among family - caregivers of people with mental illnesses. World J. Psychiatry 6, 7–17 (2016)CrossRefGoogle Scholar
  20. 20.
    Duan, L., Street, W.N., Xu, E.: Healthcare information systems: data mining methods in the creation of a clinical recommender system. Enterp. Inf. Syst. 5, 169–181 (2011)CrossRefGoogle Scholar
  21. 21.
    Brubaker, J.R., Hayes, G.R., Dourish, P.: Beyond the grave: facebook as a site for the expansion of death and mourning. Inf. Soc. 29, 152–163 (2013)CrossRefGoogle Scholar

Copyright information

© Springer International Publishing AG, part of Springer Nature 2019

Authors and Affiliations

  • Pamela Wisniewski
    • 1
    Email author
  • Celia Linton
    • 1
  • Aditi Chokshi
    • 1
  • Brielle Perlingieri
    • 1
  • Varadraj Gurupur
    • 1
  • Meghan Gabriel
    • 1
  1. 1.University of Central FloridaOrlandoUSA

Personalised recommendations