Abstract
Every year, an estimated five million patients receive care in an ICU. ICU care is often in response to a medical emergency or medical instability, and common ICU interventions, such as intubation and mechanical respiration, are considered highly burdensome and invasive. When a patient lacks capacity to communicate their preferences, the responsibility to make health-care decisions often falls to family members. Families may experience a constellation of symptoms, such as high-intensity emotions, interpersonal conflict, anticipatory grief, and a compromised ability to process complex information, known as family ICU syndrome (FICUS). The ICU social worker is uniquely positioned to intervene and support families during this critical period. Within the context of FICUS, this chapter will (1) provide an overview of the dynamic needs of patients and families who encounter the ICU; (2) define the role of social work in the ICU; and (3) discuss evidence-supported interventions that social workers can employ to address the needs of patients, family members, and interdisciplinary team members. Case examples are also provided to foster critical thinking about complex encounters with families in the ICU.
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References
Ahrens T, Yancey V, Kollef M. Improving family communications at the end of life: implications for length of stay in the intensive care unit and resource use. Am J Crit Care. 2003;12(4):317–23.
Baile WF, Buckman R, Lenzi R, Glober G, Beale EA, Kudelka AP. SPIKES – a six-step protocol for delivering bad news: application to the patient with cancer. Oncologist. 2000;5(4):302–11. https://doi.org/10.1634/theoncologist.5-4-302.
Boulware LE, Cooper LA, Ratner LE, LaVeist TA, Powe NR. Race and trust in the health care system. Public Health Rep. 2003;118(4):358–65. https://doi.org/10.1016/S0033-3549(04)50262-5.
Brooks RT, Hopkins R. Cultural mistrust and health care utilization: the effects of a culturally responsive cognitive intervention. J Black Stud. 2017;48(8):816. https://doi.org/10.1177/0021934717728454.
Burns JP, Mello MM, Studdert DM, Puopolo AL, Truog RD, Brennan TA. Results of a clinical trial on care improvement for the critically ill. Crit Care Med. 2003;31(8):2107–17. https://doi.org/10.1097/01.CCM.0000069732.65524.72.
Cagle JG, Pek J, Clifford M, Guralnik J, Zimmerman S. Correlates of a good death and the impact of hospice involvement: findings from the National Survey of households affected by cancer. Support Care Cancer. 2015;23:809–18. https://doi.org/10.1007/s00520-014-2404-z.
Cagle JG, Van Dussen DJ, Culler KL, Carrion IV, Hong S, Guralnik J, Zimmerman S. Knowledge about hospice: exploring misconceptions, attitudes, and preferences for care. Am J Hospice Palliat Med. 2016;33:27–33. https://doi.org/10.1177/1049909114546885.
Cagle JG, Widera EW. Geriatrics and palliative care. In: Williams B, Chang A, Ahalt C, Chen R, Conant R, Landefeld S, et al., editors. Current diagnosis and treatment: geriatrics. 2nd ed. New York: McGraw Hill; 2014.
Cagle JG, Williams K. Communication education for social workers. In: Wittenberg-Lyles E, Ferrell J, Goldsmith J, Smith T, Ragan S, Glajchen M, Handzo G, editors. Textbook of palliative care communication. New York: Oxford University Press; 2016.
Chik I, Fischberg D, Bernstein I. The impact of social work encounters on risk of ICU admission, ICU death, and CPR among hospitalized patients with cancer at end of life. J Pain Symptom Manag. 2017;53(2):325. https://doi.org/10.1016/j.jpainsymman.2016.12.047.
Choudhuri AH, Chakravarty M, Uppal R. Influence of admission source on the outcome of patients in an intensive care unit. Indian J Crit Care Med. 2017;21(4):213–7. https://doi.org/10.4103/ijccm.IJCCM_7_17.
Davidson JE, Aslakson RA, Long AC, Puntillo KA, Kross EK, Hart J, et al. Guidelines for family-centered care in the neonatal, pediatric, and adult ICU. Crit Care Med. 2017;45(1):103–28. https://doi.org/10.1097/CCM.0000000000002169.
Diem SJ, Lantos JD, Tulsky JA. Cardiopulmonary resuscitation on television: miracles and misinformation. N Engl J Med. 1996;334(24):1578–82. https://doi.org/10.1056/NEJM199606133342406.
Dombrovskiy VY, Martin AA, Sunderram J, Paz HL. Rapid increase in hospitalization and mortality rates for severe sepsis in the United States: a trend analysis from 1993 to 2003. Crit Care Med. 2007;35(5):1244–50. https://doi.org/10.1097/01.CCM.0000261890.41311.E9.
Gay EB, Pronovost PJ, Bassett RD, Nelson JE. The intensive care unit family meeting: making it happen. J Crit Care. 2009;24(4):629. https://doi.org/10.1016/j.jcrc.2008.10.003.
Harris D, Willoughby H. Resuscitation on television: realistic or ridiculous? A quantitative observational analysis of the portrayal of cardiopulmonary resuscitation in television medical drama. Resuscitation. 2009;80:1275–9. https://doi.org/10.1016/j.resuscitation.2009.07.008.
Hartman-Shea K, Hahn AP, Kraus JF, Cordts G, Sevransky J. The role of the social worker in the adult critical care unit: a systematic review of the literature. Soc Work Health Care. 2011;50(2):143–57. https://doi.org/10.1080/00981389.2010.506411.
Hong S, Cagle JG, Plant AJ, Culler KL, Carrion IV, Van Dussen DJ. Quality of death among hospice decedents: proxy observations from a survey of community dwelling adults in the contiguous United States. Death Stud. 2016;40:529–37. https://doi.org/10.1080/07481187.2016.1188867.
King WD. Examining African Americans’ mistrust of the health care system: expanding the research question. Public Health Rep. 2003;118(4):366–7.
Lee JJ, Long AC, Curtis JR, Engelberg RA. The influence of race/ethnicity and education on family ratings of the quality of dying in the ICU. J Pain Symptom Manag. 2016;51(1):9–16. https://doi.org/10.1016/j.jpainsymman.2015.08.008.
Lentini N, Martinez E, Michelson K. Characterizing social worker and chaplain interactions with parents of critically ill children with cancer. J Clin Oncol. 2017:e22024. https://doi.org/10.1200/JCO.2017.35.15_suppl.e22024.
Loggers ET, Maciejewski PK, Paulk E, DeSanto-Madeya S, Nilsson M, Viswanath K, et al. Racial differences in predictors of intensive end-of-life care in patients with advanced cancer. J Clin Oncol. 2009;27(33):5559–64. https://doi.org/10.1200/JCO.2009.22.4733.
McCormick AJ, Curtis JR, Stowell-Weiss P, Toms C, Engelberg R. Improving social work in intensive care unit palliative care: results for a quality improvement intervention. J Palliat Med. 2010;13(3):297–304. https://doi.org/10.1089/jpm.2009.0204.
McCormick AJ, Engelberg R, Curtis JR. Social workers in palliative care: assessing activities and barriers in the intensive care unit. J Palliat Med. 2007;10(4):929–37. https://doi.org/10.1089/jpm.2006.0235.
Narayanan V, Bista B, Koshy C. “BREAKS” protocol for breaking bad news. Indian J Palliat Care. 2010;16(2):61–5. https://doi.org/10.4103/0973-1075.68401.
Nelson JE, Mulkerin CM, Adams LL, Pronovost PJ. Improving comfort and communication in the ICU: a practical new tool for palliative care performance measurement and feedback. Qual Saf Health Care. 2006;15(4):264–71. https://doi.org/10.1136/qshc.2005.017707.
Netzer G, Sullivan DR. Recognizing, naming, and measuring a family intensive care unit syndrome. Ann Am Thorac Soc. 2014;11(3):435–41. https://doi.org/10.1513/AnnalsATS.201309-308OT.
Rabow MW, McPhee SJ. Beyond breaking bad news: how to help patients who suffer. West J Med. 1999;171(4):260–3.
Schwei RJ, Kadunc K, Nguyen AL, Jacobs EA. Impact of sociodemographic factors and previous interactions with the health care system on institutional trust in three racial/ethnic groups. Patient Educ Couns. 2014;96:333–8. https://doi.org/10.1016/j.pec.2014.06.003.
Stein G, Cagle JG, Christ GH. Social work involvement in advance care planning: findings from a large survey of social workers in hospice a palliative care settings. J Palliat Med. 2016;53:198–207. https://doi.org/10.1089/jpm.2016.0352.
Sundararajan K, Sullivan TS, Chapman M. Determinants of family satisfaction in the intensive care unit. Anaesth Intensive Care. 2012;40(1):159–65.
Thompson EC. Race and the ICU. In: Crippon D, editor. The interventionist’s challenge: Springer; 2016. p. 75–9. https://doi.org/10.1007/978-3-319-30454-0.
Willis A, Reed E, Pratt-Chapman M, Kapp H, Hatcher E, Vaitones V, et al. Development of a framework for patient navigation: delineating roles across navigator types. J Oncol Navig Survivorship. 2013;4(6):20–6.
Wittenberg-Lyles E, Goldsmith J, Ferrell B, Burchett M. Assessment of an interprofessional online curriculum for palliative care communication training. J Palliat Care. 2014;17(4):400–6. https://doi.org/10.1089/jpm.2013.0270.
Wunsch H, Angus DC, Harrison DA, Linde-Zwirble WT, Rowan KM. Comparison of medical admissions to intensive care units in the United States and United Kingdom. Am J Respir Crit Care Med. 2011;183(12):1666–73. https://doi.org/10.1164/rccm.201012-1961OC.
Zuckerman M, Gagne M. The COPE revised: proposing a 5-factor model of coping strategies. J Res Pers. 2003;37:169–2014. https://doi.org/10.1016/S0092-6566(02)00563-9.
Kaye P. Breaking bad news: A 10 step approach. ELP: Northampton, UK; 1996.
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Cagle, J.G., Bunting, M. (2018). The Role of the ICU Social Worker in Supporting Families. In: Netzer, G. (eds) Families in the Intensive Care Unit. Springer, Cham. https://doi.org/10.1007/978-3-319-94337-4_24
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DOI: https://doi.org/10.1007/978-3-319-94337-4_24
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