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Autism Policy and Advocacy in Brazil and the USA

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Autism in Translation

Part of the book series: Culture, Mind, and Society ((CMAS))

Abstract

This chapter addresses the policy shifts on autism in Brazil and USA in the last decades, stressing the common points and differences between both countries in the fields of public mental health, disability rights movements, and education. The chapter starts with a historical overview of institutionalization and deinstitutionalization processes in these countries, and then describes the tensions among different mental health, educational, and disability studies approaches to autism in both places. In Brazil, this tension involves family associations and the disability sector, in conflict with mental health professionals, psychoanalysis, and Basaglian psychiatry. In the USA, alongside family advocacy and disability rights associations, there are emerging autistic self-advocacy and peer-support groups that often find themselves in conflict with a biomedical mainstream focused on prevention and cure. Each country has something to learn from the other, as both continue to face the challenge of building a more inclusive approach for autistic people.

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Authors and Affiliations

  1. Institute for Social Medicine, State University of Rio de Janeiro (UERJ), Rio de Janeiro, Brazil

    Rossano Cabral Lima & Clara Feldman

  2. Health and Rehabilitation Science, Stony Brook University, Stony Brook, NY, USA

    Cassandra Evans & Pamela Block

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  1. Rossano Cabral Lima
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  2. Clara Feldman
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  1. Duquesne University, Pittsburgh, PA, USA

    Elizabeth Fein

  2. Department of Social Psychology, Federal University of Rio de Janeiro, Rio de Janeiro, Brazil

    Clarice Rios

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Lima, R.C., Feldman, C., Evans, C., Block, P. (2018). Autism Policy and Advocacy in Brazil and the USA. In: Fein, E., Rios, C. (eds) Autism in Translation. Culture, Mind, and Society. Palgrave Macmillan, Cham. https://doi.org/10.1007/978-3-319-93293-4_2

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