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Epidemiological Issues in Intellectual Disability and Aging Research

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Physical Health of Adults with Intellectual and Developmental Disabilities

Abstract

Epidemiology is the study of prevalence, incidence, and contributors to chronic conditions and other disorders in a population. Data drawn from epidemiological studies increasingly informs the setting of priorities for public health initiatives and healthcare planning, targeting and implementation. Examples of such datasets are national census data, household surveys, birth and death records, surveillance surveys, health indicator surveys, administrative datasets with health encounter, service utilization, and demographic data, registries, electronic health records, and population surveys targeting persons with specific health conditions or disabilities. Challenges exist to utilizing existing datasets to track aging people with intellectual disability due to differences in definitions and how data are gathered. To improve the availability and comparability of epidemiological studies, there needs to be greater standardization in the definition of intellectual disability, in the designation of levels of disability, agreement on age categories, and the use of standardized identifiers for intellectual disability in national datasets.

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Notes

  1. 1.

    “Mental retardation” is now considered a pejorative term and its use is generally avoided.

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Authors and Affiliations

  1. The School of Social Work, College of Public Health, Temple University, Philadelphia, PA, USA

    Philip McCallion

  2. School of Social Work, College of Public Health, Temple University, Philadelphia, PA, USA

    Lisa A. Ferretti

  3. Centre for Developmental Disability Studies, University of Sydney, Sydney, NSW, Australia

    Helen Beange

  4. Faculty of Health Sciences and The Trinity Centre for Ageing and Intellectual Disability, Trinity College, The University of Dublin, Dublin, Ireland

    Mary McCarron

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  1. Philip McCallion
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Correspondence to Philip McCallion .

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Editors and Affiliations

  1. The Greenfields, Birmingham, UK

    Vee P. Prasher

  2. University of Illinois at Chicago, Chicago, IL, USA

    Matthew P. Janicki

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McCallion, P., Ferretti, L.A., Beange, H., McCarron, M. (2019). Epidemiological Issues in Intellectual Disability and Aging Research. In: Prasher, V., Janicki, M. (eds) Physical Health of Adults with Intellectual and Developmental Disabilities. Springer, Cham. https://doi.org/10.1007/978-3-319-90083-4_2

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