Abstract
Self-care is the process of maintaining health through health promoting practices and managing illness. Self-care is very important for patients with CHD, due to its link with medication taking, symptom monitoring, dietary adherence, fluid restriction, alcohol restriction, physical exercise, smoke cessation, all-cause hospitalization, cost of care, and quality of life. However, little research is currently available on CHD patients’ self-care. This chapter offers a portrait of what self-care is, and why it is so important.
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References
Orem D. Nursing concepts of practice. 6th ed. St Louis: Mosby; 1991.
Riegel B, Jaarsma T, Strömberg A, Steinbright EC. A middle-range theory of self-care of chronic illness. Adv Nurs Sci. 2012;3:194–204. https://doi.org/10.1097/ANS.0b013e318261b1ba.
Ausili D, Masotto M, Dall’Ora C, et al. A literature review on self-care of chronic illness: definition, assessment and related outcomes. Prof Inferm. 2014;67:180–9. https://doi.org/10.7429/pi.2014.673180.
Klein G. Naturalistic decision making. Hum Factors. 2008;50:456–60. https://doi.org/10.1518/001872008X288385.
Clark AP, McDougall G, Riegel B, et al. Health status and self-care outcomes after an education-support intervention for people with chronic heart failure. J Cardiovasc Nurs. 2015;30:S3–S13. https://doi.org/10.1097/JCN.0000000000000169.
Graven LJ, Grant JS. Social support and self-care behaviors in individuals with heart failure: an integrative review. Int J Nurs Stud. 2014;51:320–33. https://doi.org/10.1016/j.ijnurstu.2013.06.013.
Moser DK, Watkins JF. Conceptualizing self-care in heart failure. J Cardiovasc Nurs. 2008;23:205–18. https://doi.org/10.1097/01.JCN.0000305097.09710.a5.
Riegel B, Moser DK, Anker SD, et al. State of the science: promoting self-care in persons with heart failure: a scientific statement from the American Heart Association. Circulation. 2009;120:1141–63. https://doi.org/10.1161/CIRCULATIONAHA.109.192628.
De Geest S, Abraham I, Moons P, et al. Late acute rejection and subclinical noncompliance with cyclosporine therapy in heart transplant recipients. J Heart Lung Transplant. 1998;17:854–63.
Barbiero SM, D’Azevedo Sica C, Schuh DS, et al. Overweight and obesity in children with congenital heart disease: combination of risks for the future? BMC Pediatr. 2014;14:271. https://doi.org/10.1186/1471-2431-14-271.
Jensen M, Ryan D, Apovian C, Ard J. 2013 AHA/ACC/TOS guideline for the management of overweight and obesity in adults. Circulation. 2014;129:S102–38.
van der Wal MHL, Jaarsma T, Moser DK, et al. Compliance in heart failure patients: the importance of knowledge and beliefs. Eur Heart J. 2005;27:434–40. https://doi.org/10.1093/eurheartj/ehi603.
Reid GJ, Webb GD, McCrindle BW, et al. Health behaviors among adolescents and young adults with congenital heart disease. Congenit Heart Dis. 2008;3:16–25. https://doi.org/10.1111/j.1747-0803.2007.00161.x.
Khan M, Monaghan M, Klein N, et al. Associations among depression symptoms with alcohol and smoking tobacco use in adult patients with congenital heart disease. Congenit Heart Dis. 2015;10:E243–9. https://doi.org/10.1111/chd.12282.
Flocco SF, Caruso R, Dellafiore F, et al. Towards the standardization of transition care models for adolescents with congenital heart disease (CHD): a perspective. J Clin Exp Cardiol. 2017;8:1–3. https://doi.org/10.4172/2155-9880.1000495.
Fletcher GF, Balady GJ, Amsterdam EA, et al. Exercise standards for testing and training: a statement for healthcare professionals from the American Heart Association. Circulation. 2001;104:1694–740.
Dua JS, Cooper AR, Fox KR, Stuart AG. Physical activity levels in adults with congenital heart disease. Eur J Cardiovasc Prev Rehabil. 2007;14:287–93. https://doi.org/10.1097/HJR.0b013e32808621b9.
Chaix M-A, Marcotte F, Dore A, et al. Risks and benefits of exercise training in adults with congenital heart disease. Can J Cardiol. 2016;32:459–66. https://doi.org/10.1016/j.cjca.2015.12.007.
Islam S, Yasui Y, Kaul P, Mackie AS. Hospital readmission of patients with congenital heart disease in Canada. Can J Cardiol. 2016;32:987.e7–987.e14. https://doi.org/10.1016/j.cjca.2015.12.018.
Bertoletti J, Marx GC, Hattge Júnior SP, Pellanda LC. Quality of life and congenital heart disease in childhood and adolescence. Arq Bras Cardiol. 2014;102:192–8.
Fteropoulli T, Stygall J, Cullen S, et al. Quality of life of adult congenital heart disease patients: a systematic review of the literature. Cardiol Young. 2013;23:473–85. https://doi.org/10.1017/S1047951112002351.
Apers S, Luyckx K, Moons P. Quality of life in adult congenital heart disease: what do we already know and what do we still need to know? Curr Cardiol Rep. 2013;15:407. https://doi.org/10.1007/s11886-013-0407-x.
Caruso R, Fida R, Sili A, Arrigoni C. Towards an integrated model of nursing competence: an overview of the literature reviews and concept analysis. Prof Inferm. 2016;69:35–43. https://doi.org/10.7429/pi.2016.691035.
Caruso R, Pittella F, Zaghini F, et al. Development and validation of the nursing profession self-efficacy scale. Int Nurs Rev. 2016;63:455–64. https://doi.org/10.1111/inr.12291.
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Caruso, R. (2019). Self-Care in Congenital Heart Disease Patients. In: Flocco, S., Lillo, A., Dellafiore, F., Goossens, E. (eds) Congenital Heart Disease. Springer, Cham. https://doi.org/10.1007/978-3-319-78423-6_18
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DOI: https://doi.org/10.1007/978-3-319-78423-6_18
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