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Breaking Well-Formed Opinions and Mindsets by Designing with People Living with Dementia

Abstract

This paper presents ongoing research that highlights how design thinking and acting can contribute significantly to breaking down preconceived ideas about what people living with dementia are capable of doing. The research, undertaken in collaboration with Alzheimer Scotland and other dementia organisations across the UK, has adopted a range of disruptive design interventions to break the cycle of well-formed opinions, strategies, mindsets and ways-of-doing that tend to remain unchallenged in the health and social care of people living with dementia. The research has resulted in a number of co-designed interventions that help change the perception of dementia by showing that people living with dementia can offer much to UK society after diagnosis. Moreover, it is envisaged that the co-designed activities and interventions presented here will help reconnect people recently diagnosed with dementia to help build their self-esteem, identity and dignity and help keep the person with dementia connected to their community, thus delaying the need for formal support and avoid the need for crisis responses. The paper reports on three design interventions where the authors have worked collaboratively with nearly 200 people diagnosed with dementia across the UK in co-design and development activities. The paper concludes with a number of innovative recommendations for researchers when co-designing with people living with dementia.

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References

  • All Party Parliamentary Group on Dementia (2016) Dementia rarely travels alone. APPG on Dementia, London, UK

    Google Scholar 

  • Alzheimer Scotland (2008) Meeting our needs: the level and quality of dementia support services in Scotland. Alzheimer Scotland, Edinburgh, UK

    Google Scholar 

  • Batsch NL, Mittelman MS (2012) World Alzheimer report 2012: overcoming the stigma of dementia. Alzheimer’s Disease International, London, UK

    Google Scholar 

  • Bisson C, Luckner J (1996) Fun in learning: the pedagogical role of fun in adventure education perspectives. J Exp Educ 19(2):108–112

    Google Scholar 

  • Brown T (2009) Change by design: how design thinking transforms organisations and inspires innovation. HarperCollins, New York, NY, US

    Google Scholar 

  • Bury M (1982) Chronic illness as biographical disruption. Sociol Health Illn 4(2):167–182

    CrossRef  Google Scholar 

  • Christensen C, Overdorf M (2000) Meeting the challenge of disruptive change. Harvard Bus Rev 78(2):66–76

    Google Scholar 

  • Gorb P, Dumas A (1987) Silent design. Des Stud 8(3):150–156

    CrossRef  Google Scholar 

  • Heath C, Heath D (2011) Switch: how to change things when change is hard. Random House, London, UK

    Google Scholar 

  • Hendriks N, Slegers K, Duysburgh P (2015) Codesign with people living with cognitive or sensory impairments: a case for method stories and uniqueness. CoDesign 11(1):70–82

    CrossRef  Google Scholar 

  • Holcombe S (2010) The arrogance of ethnography: managing anthropological research knowledge. Aust Aboriginal Stud 2:22–32

    Google Scholar 

  • Katsuno T (2005) Dementia from the inside: how people with early-stage dementia evaluate their quality of life. Ageing Soc 25:197–214

    CrossRef  Google Scholar 

  • Kelley T, Kelley D (2015) Creative confidence: unleashing the creative potential within us all. William Collins, London, UK

    Google Scholar 

  • Kinnaird L (2012) Delivering integrated dementia care: the 8 pillars model of community support, September. Alzheimer Scotland, Edinburgh, Scotland, UK

    Google Scholar 

  • Kitwood T (1990) The dialectics of dementia: with particular reference to Alzheimer’s disease. Ageing Soc 10:177–196

    CrossRef  Google Scholar 

  • Lam B, Dearden A, William-Powlett K, Brodie E (2012) Exploring co-design in the voluntary sector. In: Proceedings of VSSN/NCVO annual conference, University of Birmingham, Birmingham, AL, US

    Google Scholar 

  • Leadbeater C (2009) We think. Profile Books, London, UK

    Google Scholar 

  • Manzini E, Rizzo F (2011) Small projects/large changes: participatory design as an open participated process. CoDesign 7(3–4):199–215

    CrossRef  Google Scholar 

  • Matthews E (2006) Dementia and the identity of the person. In: Hughes JC, Louw SJ, Sabat SR (eds) Dementia: mind, meaning and the person. Oxford University Press, Oxford, UK, pp 163–177

    Google Scholar 

  • Office for National Statistics (2017) Overview of the UK population: July 2017. ONS, London, UK

    Google Scholar 

  • Prince M, Prina M, Guerchet M (2013) World Alzheimer report 2013. Journey of caring: an analysis of long-term care for dementia. Alzheimer’s Disease International, London, UK

    Google Scholar 

  • Reitan JB (2006) Inuit vernacular design as a community of practice for learning. CoDesign 2(02):71–80

    CrossRef  Google Scholar 

  • Rodgers PA, Tennant A (2014) Disrupting health and social care by design. In: Proceedings of the 9th international conference on design & emotion, Bogota, Colombia

    Google Scholar 

  • Sanders EB-N, Stappers PJ (2014) Probes, toolkits and prototypes: three approaches to making in codesigning. CoDesign 10(1):5–14

    CrossRef  Google Scholar 

  • Scharmer CO (2011) Leading from the emerging future. In: Minds for change—future of global development ceremony to mark the 50th anniversary of the BMZ Federal Ministry for Economic Cooperation and Development, Berlin, Germany

    Google Scholar 

  • Van Klaveren R (2012) Artistic participatory practices as a vehicle for togetherness. In: Proceedings of the CUMULUS conference, Helsinki, Finland, pp. 1–11

    Google Scholar 

  • Wilson S, Roper A, Marshall J, Galliers J, Devane N, Booth T (2015) Codesign for people with aphasia through tangible design languages. CoDesign 11(1):21–34

    CrossRef  Google Scholar 

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Correspondence to Paul A. Rodgers .

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Rodgers, P.A., Winton, E. (2018). Breaking Well-Formed Opinions and Mindsets by Designing with People Living with Dementia. In: Langdon, P., Lazar, J., Heylighen, A., Dong, H. (eds) Breaking Down Barriers. CWUAAT 2018. Springer, Cham. https://doi.org/10.1007/978-3-319-75028-6_22

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  • DOI: https://doi.org/10.1007/978-3-319-75028-6_22

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  • Publisher Name: Springer, Cham

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