Skip to main content

Dignity-Conserving Care in Medicine

  • Chapter
  • First Online:
Person Centered Approach to Recovery in Medicine

Abstract

Dignity-conserving care is a multifactorial construct, consisting of three primary domains, i.e. illness-related concerns, such as symptom distress; dignity-conserving perspectives and practices, such as continuity of the self, maintenance of pride and hopefulness; and social dimensions of dignity, such as privacy concerns, burden to others and aftermath concerns. Dignity-conserving care has recently been the focus of research in both somatic and mental care settings. In patients suffering from somatic disorders, particularly chronic and progressive disorders, loss of dignity is often manifested by loss of identity, shattering of their self-image or having psychological, interpersonal, spiritual and existential needs that are not being adequately addressed. Similar issues apply to psychiatric patient healthcare, where stereotypes, prejudice and discrimination continue to exist. Fractured dignity has been associated with increasing levels of physical and psychological symptoms, including spiritual pain. The delivery of dignity-conserving care is essential in achieving a holistic and healing approach, improving the satisfaction of patients, families and healthcare professionals alike.

“The patient enters the hospital as if he were entering a business concern, to be served in the best possible way by an impersonal apparatus. And the physician of modernity acts as if he were a collectivity, which cares for the patient without a physician’s entering into the treatment in any personal way. […]”

(Jaspers, 1959, The physician in the technological age, p. 254)

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 84.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Hardcover Book
USD 109.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Notes

  1. 1.

    Personhood here is intended as the status of being a person, a human person as the natural inherent capacity to give rise to human functions, whether or not those functions are ever attained.

  2. 2.

    What I feel regarding my body, that is, the intentional, living aspects of my body, is often described in terms of Leib to be differentiated by Körper, where Leib is the intentional lived body, to be a body, and Körper is the material body, to have a body. These concepts, which are important in a psychosomatic approach in medicine, were introduced by Husserl and re-proposed by Merleau-Ponty and are still crucial in the mind-body problem.

References

  1. Barclay L. In sickness and in dignity: a philosophical account of the meaning of dignity in health care. Int J Nurs Stud. 2016;61:136–41.

    Article  PubMed  Google Scholar 

  2. Jacobson N. Dignity and health: a review. Soc Sci Med. 2007;64:292–302.

    Article  PubMed  Google Scholar 

  3. Rosen M. Dignity. His history and meaning. Cambridge, MA: Harvard University Press; 2012.

    Book  Google Scholar 

  4. Lebech M. On the problem of human dignity. A Hermenutical and Phenomenolgical Investigation: Königshausen und Neumann, Würzburg; 2009.

    Google Scholar 

  5. Pico della Mirandola G. Discorso sulla dignità dell’uomo (Oratio de hominis dignitate) 1496 (Italian re-edition: Dignità dell’uomo (De hominis dignitate), by Bruno Cicognani, Le Monnier, Firenze, 1942; English Translation Oration on the dignity of man by Robert A. Caponigri, Henry Regnery Company, Chicago, ILL, 1956).

    Google Scholar 

  6. Sensen O. Kant on human dignity. Berlin: Walter De Gruyter Inc.; 2011.

    Book  Google Scholar 

  7. Spiegelberg H. Human dignity: a challenge to contemporary philosophy. J New Paradigm Res. 1971;9:39–64.

    Google Scholar 

  8. Malvestiti B. Human dignity as a status vs. human dignity as a value. A double nature. Spring School and International Conference; 2011 June 7–9; Milan: University Vita-Salute San Raffaele.

    Google Scholar 

  9. Sulmasy DP. The varieties of human dignity: a logical and conceptual analysis. Med Health Care Philos. 2013;16(4):937–44.

    Article  PubMed  Google Scholar 

  10. Jaspers K. Der Arzt im technischen Zeitalter. Universitas: Zeitschrift für Wissenschaft, Kunst und Literatur. 1959;14(4):337–54. (English translation by Arthur A. Grugan, The physician in the technological age. Theoretical Medicine and Bioethics, 1989;10(3):251–267).

    Google Scholar 

  11. Pellegrino E. The lived experience of human dignity. In: Human dignity and bioethics. Essays commissioned by the President’s Council of Bioethics, Washington DC; 2008. p. 513–40.

    Google Scholar 

  12. Jacobson N. Dignity violation in health care. Qual Health Res. 2009;19(11):1536–47.

    Article  PubMed  Google Scholar 

  13. Stenhouse R, Ion R, Roxburgh M, Devitt PF, Smith SDM. Exploring the compassion deficit debate. Nurse Educ Today. 2016;39:12–5.

    Article  PubMed  Google Scholar 

  14. Deery R, Fisher P. Professionalism and person-centredness: developing a practice based approach to leadership within NHS maternity services in the UK. Health Sociol Rev. 2017;26:143–59.

    Article  Google Scholar 

  15. Barron K, Deery R, Sloan G. Community mental health nurses’ and compassion: an interpretative approach. J Psychiatr Ment Health Nurs. 2017;24:211–20.

    Article  CAS  PubMed  Google Scholar 

  16. Tournier P. Médicine de la personne. (English Tr. The Healing of Persons. Harper Collins Pub, 1965).

    Google Scholar 

  17. Pfeifer H-R. Paul Tournier and ‘Médecine de la Personne’—the man and his vision. Int J Integr Care. 2010;10:60–2.

    Article  Google Scholar 

  18. Cox JL. Towards an evidence-based ‘Medicine of the Person’: the contribution of psychiatry to health care provision. J Eval Clin Pract. 2008;14:694–8.

    Article  PubMed  Google Scholar 

  19. Murata H. Spiritual pain and its care in patients with terminal cancer: construction of a conceptual framework by philosophical approach. Palliat Support Care. 2003;1(1):15–21.

    Article  PubMed  Google Scholar 

  20. Luddington L, Cox S, Higginson I, Livesley B. The need for palliative care for patients with non-cancer diseases: a review of the evidence. Int J Palliat Nurs. 2001;7(5):221–6.

    Article  CAS  PubMed  Google Scholar 

  21. Solano JP, Gomes B, Higginson IJ. A comparison of symptom prevalence in far advanced cancer, AIDS, heart disease, chronic obstructive pulmonary disease and renal disease. J Pain Symptom Manag. 2006;31(1):58–69.

    Article  Google Scholar 

  22. Oliver DJ, Borasio GD, Caraceni A, de Visser M, Grisold W, Lorenzl S, Veronese S, Voltz R. A consensus review on the development of palliative care for patients with chronic and progressive neurological disease. Eur J Neurol. 2016;23:30–8.

    Article  CAS  PubMed  Google Scholar 

  23. Lloyd-Williams M, Mogan C, Dening KH. Identifying palliative care needs in people with dementia. Curr Opin Support Palliat Care. 2017. [Epub ahead of print].

    Google Scholar 

  24. Moadel A, Morgan C, Fatone A, Grennan J, Carter J, Laruffa G, Skummy A, Dutcher J. Seeking meaning and hope: self-reported spiritual and existential needs among an ethnically-diverse cancer patient population. Psychooncology. 1999;8(5):378–85.

    Article  CAS  PubMed  Google Scholar 

  25. Chochinov HM, Krisjanson LJ, Hack TF, Hassard T, McClement S, Harlos M. Dignity in the terminally ill: revisited. J Palliat Med. 2006;9(3):666–72.

    Article  PubMed  Google Scholar 

  26. Chochinov HM, Johnston W, McClement SE, Hack TF, Dufault B, Enns M, Thompson G, Harlos M, Damant RW, Ramsey CD, Davison S, Zacharias J, Milke D, Strang D, Campbell-Enns HJ, Kredentser MS. Dignity and distress towards the end of life across four non-cancer populations. PLoS One. 2016;11(1):e0147607. https://doi.org/10.1371/journal.pone.0147607.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  27. Albers G, de Vet HC, Pasman HR, Deliens L, Onwuteaka-Philipsen BD. Personal dignity in the terminally ill from the perspective of caregivers: a survey among trained volunteers and physicians. J Palliat Med. 2013;16(9):1108–14.

    Article  PubMed  Google Scholar 

  28. van Gennip IE, Pasman HR, Oosterveld-Vlug MG, Willems DL, Onwuteaka-Philipsen BD. Dynamics in the sense of dignity over the course of illness: a longitudinal study into the perspectives of seriously ill patients. Int J Nurs Stud. 2015;52(11):1694–704.

    Article  PubMed  Google Scholar 

  29. Oechsle K, Wais MC, Vehling S, Bokemeyer C, Mehnert A. Relationship between symptom burden, distress, and sense of dignity in terminally ill cancer patients. J Pain Symptom Manag. 2014;48(3):313–21.

    Article  Google Scholar 

  30. Beach MC, Sugarman J, Johnson RL, Arbelaez JJ, Duggan PS, Cooper LA. Do patients treated with dignity report higher satisfaction, adherence, and receipt of preventive care? Ann Fam Med. 2005;3:331–8.

    Article  PubMed  PubMed Central  Google Scholar 

  31. Visser A, Garssen B, Vingerhoets A. Spirituality and well-being in cancer patients: a review. Psychooncology. 2010;19(6):565–72.

    Article  PubMed  Google Scholar 

  32. Salsman JM, Pustejovsky JE, Jim HS, Munoz AR, Merluzzi TV, George L, Park CL, Danhauer SC, Sherman AC, Snyder MA, Fitchett G. A meta-analytic approach to examining the correlation between religion/spirituality and mental health in cancer. Cancer. 2015;121(21):3769–78.

    Article  PubMed  PubMed Central  Google Scholar 

  33. Naghi JJ, Philip KJ, Phan A, Cleenewerck L, Schwarz ER. The effects of spirituality and religion on outcomes in patients with chronic heart failure. J Relig Health. 2012;51(4):1124–36.

    Article  PubMed  Google Scholar 

  34. Dalmida SG. Spirituality, mental health, physical health, and health-related quality of life among women with HIV/AIDS: integrating spirituality into mental health care. Issues Ment Health Nurs. 2006;27(2):185–98.

    Article  PubMed  PubMed Central  Google Scholar 

  35. Szaflarski M. Spirituality and religion among HIV-infected individuals. Curr HIV/AIDS Rep. 2013;10(4):324–32.

    Article  PubMed  PubMed Central  Google Scholar 

  36. Puchalski C. Spirituality in health: the role of spirituality in critical care. Crit Care Clin. 2004;20(3):487–504.

    Article  PubMed  Google Scholar 

  37. Delgado-Guay MO. Spirituality and religiosity in supportive and palliative care. Curr Opin Support Palliat Care. 2014;8(3):308–13.

    Article  PubMed  Google Scholar 

  38. Park CL, Masters KS, Salsman JM, Wachholtz A, Clements AD, Salmoirago-Blotcher E, Trevino K, Wischenka DM. Advancing our understanding of religion and spirituality in the context of behavioral medicine. J Behav Med. 2017;40(1):39–51.

    Article  PubMed  Google Scholar 

  39. Williams AL. Perspectives on spirituality at the end of life: a meta-summary. Palliat Support Care. 2006;4(4):407–17.

    Article  PubMed  Google Scholar 

  40. Livingston JD, Boyd JE. Correlates and consequences of internalized stigma for people living with mental illness: a systematic review and meta-analysis. Soc Sci Med. 2010;71(12):2150–61.

    Article  PubMed  Google Scholar 

  41. Bhugra D, Ventriglio A, Pathare S. Freedom and equality in dignity and rights for persons with mental illness. Lancet Psychiatry. 2016;3(3):196–7.

    Article  PubMed  Google Scholar 

  42. Burns JK. Mental health and inequity: a human rights approach to inequality, discrimination, and mental disability. Health Hum Rights. 2009;11(2):19–31.

    PubMed  Google Scholar 

  43. Mestdagh A, Hansen B. Stigma in patients with schizophrenia receiving community mental health care: a review of qualitative studies. Soc Psychiatry Psychiatr Epidemiol. 2014;49(1):79–87.

    Article  PubMed  Google Scholar 

  44. Corrigan PW, Watson AC. Understanding the impact of stigma on people with mental illness. World Psychiatry. 2002;1(1):16–20.

    PubMed  PubMed Central  Google Scholar 

  45. Corrigan PW, Watson AC. The paradox of self-stigma and mental illness. Clin Psychol Sci Pract. 2002;9:35–53.

    Article  Google Scholar 

  46. Corrigan PW, Wassel A. Understanding and influencing the stigma of mental illness. J Psychosoc Nurs Ment Health Serv. 2008;46(1):42–8.

    Article  PubMed  Google Scholar 

  47. Mashiach-Eizenberg M, Hasson-Ohayon I, Yanos PT, Lysaker PH, Roe D. Internalized stigma and quality of life among persons with severe mental illness: the mediating roles of self-esteem and hope. Psychiatry Res. 2013;208(1):15–20.

    Article  PubMed  PubMed Central  Google Scholar 

  48. Świtaj P, Grygiel P, Chrostek A, Nowak I, Wciórka J, Anczewska M. The relationship between internalized stigma and quality of life among people with mental illness: are self-esteem and sense of coherence sequential mediators? Qual Life Res. 2017;26(9):2471–8. https://doi.org/10.1007/s11136-017-1596-3.

    Article  PubMed  PubMed Central  Google Scholar 

  49. Oliveira SE, Carvalho H, Esteves F. Internalized stigma and quality of life domains among people with mental illness: the mediating role of self-esteem. J Ment Health. 2016;25(1):55–61.

    Article  PubMed  Google Scholar 

  50. Crawford P, Gilbert P, Gilbert J, Gale C, Harvey K. The language of compassion in acute mental health care. Qual Health Res. 2013;23(6):719–27.

    Article  PubMed  Google Scholar 

  51. Skorpen F, Thorsen AA, Forsberg C, Rehnsfeldt AW. Suffering related to dignity among patients at a psychiatric hospital. Nurs Ethics. 2014;21(2):148–62.

    Article  PubMed  Google Scholar 

  52. Whitley R, Campbell RD. Stigma, agency and recovery amongst people with severe mental illness. Soc Sci Med. 2014;107:1–8.

    Article  PubMed  Google Scholar 

  53. Ho RT, Chan CK, Lo PH, Wong PH, Chan CL, Leung PP, Chen EY. Understandings of spirituality and its role in illness recovery in persons with schizophrenia and mental-health professionals: a qualitative study. BMC Psychiatry. 2016;16:86.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  54. Huguelet P, Mohr SM, Olié E, Vidal S, Hasler R, Prada P, Bancila M, Courtet P, Guillaume S, Perroud N. Spiritual meaning in life and values in patients with severe mental disorders. J Nerv Ment Dis. 2016;204(6):409–14.

    Article  PubMed  Google Scholar 

  55. Mohr S, Borras L, Nolan J, Gillieron C, Brandt PY, Eytan A, Leclerc C, Perroud N, Whetten K, Pieper C, Koenig HG, Huguelet P. Spirituality and religion in outpatients with schizophrenia: a multi-site comparative study of Switzerland, Canada, and the United States. Int J Psychiatry Med. 2012;44(1):29–52.

    Article  PubMed  Google Scholar 

  56. Kim NY, Huh HJ, Chae JH. Effects of religiosity and spirituality on the treatment response in patients with depressive disorders. Compr Psychiatry. 2015;60:26–34.

    Article  PubMed  Google Scholar 

  57. Peselow E, Pi S, Lopez E, Besada A, Ishak WW. The impact of spirituality before and after treatment of major depressive disorder. Innov Clin Neurosci. 2014;11(3–4):17–23.

    PubMed  PubMed Central  Google Scholar 

  58. Chochinov HM. Dignity-conserving care—a new model for palliative care: helping the patient feel valued. JAMA. 2002;287(17):2253–60.

    Article  PubMed  Google Scholar 

  59. Andorno R. The dual role of human dignity in bioethics. Med Health Care Philos. 2013;16(4):967–73.

    Article  PubMed  Google Scholar 

  60. Chochinov HM, Hack T, McClement S, Kristjanson L, Harlos M. Dignity in the terminally ill: a developing empirical model. Soc Sci Med. 2002a;54(3):433–43.

    Article  PubMed  Google Scholar 

  61. Hack TF, Chochinov HM, Hassard T, Kristjanson LJ, McClement S, Harlos M. Defining dignity in terminally ill cancer patients: a factor-analytic approach. Psychooncology. 2004;13:700–8.

    Article  PubMed  Google Scholar 

  62. Chochinov HM. Dignity and the essence of medicine: the A, B, C, and D of dignity conserving care. BMJ. 2007;335(7612):184–7.

    Article  PubMed  PubMed Central  Google Scholar 

  63. Lown BA, McIntosh S, Gaines ME, McGuinn K, Hatem DS. Integrating compassionate, collaborative care (the “Triple C”) into health professional education to advance the triple aim of health care. Acad Med. 2016;91(3):310–6.

    Article  PubMed  Google Scholar 

  64. McCaffrey G, McConnell S. Compassion: a critical review of peer-reviewed nursing literature. J Clin Nurs. 2015;24:3006–15.

    Article  PubMed  Google Scholar 

  65. Prime Minister’s Commission on the Future of Nursing and Midwifery in England Front Line Care. The Future of Nursing and Midwifery in England. Report of the Prime Minister’s Commission on the Future of Nursing and Midwifery in England. http://webarchive.nationalarchives.gov.uk/20100331110400/http:/cnm.independent.gov.uk/wp-content/uploads/2010/03/front_line_care.pdf.

  66. Post SG, Ng LE, Fischel JE, Bennett M, Bily L, Chandran L, Joyce J, Locicero B, McGovern K, McKeefrey RL, Rodriguez JV, Roess MW. Routine, empathic and compassionate patient care: definitions, development, obstacles, education and beneficiaries. J Eval Clin Pract. 2014;20:872–80.

    Article  PubMed  Google Scholar 

  67. Sinclair S, Torres MB, Raffin-Bouchal S, Hack TF, McClement S, Hagen NA, Chochinov HM. Sympathy, empathy, and compassion: a grounded theory study of palliative care patients’ understandings, experiences, and preferences. Palliat Med. 2017;31(5):437–47.

    Article  PubMed  Google Scholar 

  68. Sinclair S, McClement S, Raffin-Bouchal S, Hack TF, Hagen NA, McConnell S, Chochinov HM. Compassion in health care: an empirical model. J Pain Symptom Manag. 2016;51(2):193–203.

    Article  Google Scholar 

  69. Sinclair S, Norris JM, McConnell SJ, Chochinov HM, Hack TF, Hagen NA, McClement S, Bouchal SR. Compassion: a scoping review of the healthcare literature. BMC Palliat Care. 2016;15:6.

    Article  PubMed  PubMed Central  Google Scholar 

  70. van der Cingel M. Compassion: the missing link in quality of care. Nurse Educ Today. 2014;34:1253–7.

    Article  PubMed  Google Scholar 

  71. van der Cingel M. Compassion and professional care: exploring the domain. Nurs Philos. 2009;10:124–36.

    Article  PubMed  Google Scholar 

  72. Papadopoulos I, Ali S. Measuring compassion in nurses and other healthcare professionals: an integrative review. Nurse Educ Pract. 2016;16:133–9.

    Article  PubMed  Google Scholar 

  73. Svenaeus F. The relationship between empathy and sympathy in good healthcare. Med Health Care Philos. 2015;18:267–77.

    Article  PubMed  Google Scholar 

  74. Jeffrey D. Empathy, sympathy and compassion in healthcare: is there a problem? Is there a difference? Does it matter? J R Soc Med. 2016;109(12):446–52.

    Article  PubMed  Google Scholar 

  75. Institute of Medicine. Crossing the quality chasm: a new health system for the 21st century. Washington, DC: National Academy Press; 2001.

    Google Scholar 

  76. Cox J. Medicine of the person and personalized care: a stitch in time saves nine? J Eval Clin Pract. 2010;16:315–7.

    Article  PubMed  Google Scholar 

  77. Rushton CH, Kaszniak AW, Halifax JS. A framework for understanding moral distress among palliative care clinicians. J Palliat Med. 2013a;16(9):1074–9.

    Article  PubMed  Google Scholar 

  78. Rushton CH, Kaszniak AW, Halifax JS. Addressing moral distress: application of a framework to palliative care practice. J Palliat Med. 2013b;16(9):1080–8.

    Article  PubMed  Google Scholar 

  79. Hojat M, Louis DZ, Maxwell K, Markham F, Wender R, Gonnella JS. Patient perceptions of physician empathy, satisfaction with physician, interpersonal trust, and compliance. Int J Med Educ. 2010;1:83–7.

    Article  PubMed Central  Google Scholar 

  80. Street RL, Makoul G, Arora NK, Epstein RM. How does communication heal? Pathways linking clinician–patient communication to health outcomes. Patient Educ Couns. 2009;74:295–301.

    Article  PubMed  Google Scholar 

  81. Raab K. Mindfulness, self-compassion, and empathy among health care professionals: a review of the literature. J Health Care Chaplain. 2014;20(3):95–108.

    Article  PubMed  Google Scholar 

  82. Burks DJ, Kobus AM. The legacy of altruism in health care: the promotion of empathy, prosociality and humanism. Med Educ. 2012;46(3):317–25.

    Article  PubMed  Google Scholar 

  83. Crawford P, Brown B, Kvangarsnes M, Gilbert P. The design of compassionate care. Clin Nurs. 2014;23(23–24):3589–99.

    Article  Google Scholar 

  84. Spandler H, Stickley T. No hope without compassion: the importance of compassion in recovery-focused mental health services. J Ment Health. 2011;20(6):555–66.

    Article  PubMed  Google Scholar 

  85. Chochinov HM. Dignity in care: time to take action. J Pain Symptom Manag. 2013;46(5):756–9.

    Article  Google Scholar 

  86. Chochinov HM, McClement SE, Hack TF, McKeen NA, Rach AM, Gagnon P, Sinclair S, Taylor-Brown J. Health care provider communication: an empirical model of therapeutic effectiveness. Cancer. 2013;119(9):1706–13.

    Article  PubMed  PubMed Central  Google Scholar 

  87. Chochinov HM, McClement S, Hack T, Thompson G, Dufault B, Harlos M. Eliciting personhood within clinical practice: effects on patients, families, and health care providers. J Pain Symptom Manag. 2015;49(6):974–80.

    Article  Google Scholar 

  88. Pan JL, Chochinov H, Thompson G, McClement S. The TIME questionnaire: a tool for eliciting personhood and enhancing dignity in nursing homes. Geriatr Nurs. 2016;37(4):273–7.

    Article  PubMed  Google Scholar 

  89. Sinclair S, Torres MB, Raffin-Bouchal S, Hack TF, McClement S, Hagen NA, Chochinov HM. Compassion training in healthcare: what are patients’ perspectives on training healthcare providers? BMC Med Educ. 2016;16:169.

    Article  PubMed  PubMed Central  Google Scholar 

  90. Lown BA. A social neuroscience-informed model for teaching and practising compassion in health care. Med Educ. 2016;50(3):332–42.

    Article  PubMed  Google Scholar 

  91. Chochinov HM, Hassard T, McClement S, et al. The patient dignity inventory: a novel way of measuring dignity-related distress in palliative care. J Pain Symptom Manag. 2008;36:559–71.

    Article  Google Scholar 

  92. Abbaszadeh A, Borhani F, Rabori R. Patient dignity in coronary care: psychometrics of the Persian version of the patient dignity inventory. Br J Med Med Res. 2015;8(5):463–9.

    Article  Google Scholar 

  93. Ripamonti CI, Buonaccorso L, Maruelli A, et al. Patient dignity inventory (PDI) questionnaire: the validation study in Italian patients with solid and hematological cancers on active oncological treatments. Tumori. 2012;98:491–500.

    Article  PubMed  Google Scholar 

  94. Grassi L, Costantini A, Caruso R, Brunetti S, Marchetti P, Sabato S, Nanni MG. Dignity and psychosocial-related variables in advanced and nonadvanced cancer patients by using the patient dignity inventory-Italian version. J Pain Symptom Manag. 2017;53(2):279–87.

    Article  Google Scholar 

  95. Sautier L, Vehling S, Mehnert A. Assessment of patient dignity in cancer care: preliminary psychometrics of the German version of the patient dignity inventory (PDI-G). J Pain Symptom Manag. 2014;47:181–8.

    Article  Google Scholar 

  96. Parpa E, Kostopoulou S, Tsilika E, Galanos A, Katsaragakis S, Mystakidou K. Psychometric properties of the Greek version of the patient dignity inventory in advanced cancer patients. J Pain Symptom Manag. 2017;54(3):376–82.

    Article  Google Scholar 

  97. Rullán M, Carvajal A, Núñez-Córdoba JM, Martínez M, Carrasco JM, et al. Spanish version of the patient dignity inventory: translation and validation in patients with advanced cancer. J Pain Symptom Manag. 2015;50:874–81.

    Article  Google Scholar 

  98. Albers G, Pasman HR, Rurup ML, de Vet HC, Onwuteaka-Philipsen BD. Analysis of the construct of dignity and content validity of the patient dignity inventory. Health Qual Life Outcomes. 2011;9:45.

    Article  PubMed  PubMed Central  Google Scholar 

  99. Chochinov HM, McClement SE, Hack TF, et al. The patient dignity inventory: applications in the oncology setting. J Palliat Med. 2012;15:998–1005.

    Article  PubMed  Google Scholar 

  100. Hall S, Davies JM, Gao W, Higginson IJ. Patterns of dignity-related distress at the end of life: a cross-sectional study of patients with advanced cancer and care home residents. Palliat Med. 2014;28:1118–27.

    Article  PubMed  Google Scholar 

  101. Vehling S, Mehnert A. Symptom burden, loss of dignity, and demoralization in patients with cancer: a mediation model. Psychooncology. 2014;23(3):283–90.

    Article  PubMed  Google Scholar 

  102. Rullán M, Arantzamendi M, Carvajal A, Martínez M, Saenz de Ormijana A, Centeno C. The patient dignity inventory: just another evaluation tool? Experiences with advanced cancer patients. Palliat Support Care. 2018;16(1):73–9. https://doi.org/10.1017/S1478951517000517.

    Article  PubMed  Google Scholar 

  103. Mowll J, Lobb EA, Lane L, Lacey J, Chochinov HM, Kelly B, Agar M, Links M, Kearsley JH. A preliminary study to develop an intervention to facilitate communication between couples in advanced cancer. Palliat Support Care. 2015;13(5):1381–90.

    Article  PubMed  Google Scholar 

  104. Zahran Z, Tauber M, Watson HH, Coghlan P, White S, Procter S, Addis G, Norton C. Systematic review: what interventions improve dignity for older patients in hospital? J Clin Nurs. 2016;25(3–4):311–21.

    Article  PubMed  Google Scholar 

  105. Chochinov HM, Johnston W, McClement SE, et al. Dignity and distress towards the end of life across four noncancer populations. PLoS One. 2016;11:e0147607.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  106. Borhani F, Abbaszadeh A, Moosavi S. Status of human dignity of adult patients admitted to hospitals of Tehran. J Med Ethics Hist Med. 2014;7:20. Epub 2014 Dec 1.

    PubMed  PubMed Central  Google Scholar 

  107. Mehdipour-Rabori R, Abbaszadeh A, Borhani F. Human dignity of patients with cardiovascular disease admitted to hospitals of Kerman, Iran, in 2015. J Med Ethics Hist Med. 2016;9:8. eCollection 2016.

    PubMed  PubMed Central  Google Scholar 

  108. Di Lorenzo R, Cabri G, Carretti E, Galli G, Giambalvo N, Rioli G, Saraceni S, Spiga G, Del Giovane C, Ferri P. A preliminary study of Patient Dignity Inventory validation among patients hospitalized in an acute psychiatric ward. Neuropsychiatr Dis Treat. 2017;13:177–90.

    Article  PubMed  PubMed Central  Google Scholar 

  109. Grassi L, Nanni MG, Pavanati M, Caruso R. Dignity and spiritual issues among patients with severe mental illness. Submitted.

    Google Scholar 

  110. Laine C, Davidoff F. Patient-centered medicine. A professional evolution. JAMA. 1996;275:152–6.

    Article  CAS  PubMed  Google Scholar 

  111. Charon R. The patient-physician relationship. Narrative medicine: a model for empathy, reflection, profession, and trust. JAMA. 2001;286:1897–902.

    Article  CAS  PubMed  Google Scholar 

  112. Grassi L. Quam bene vivas referre: curing and caring in psycho-oncology. Psychooncology. 2013;22(8):1679–87.

    Article  PubMed  Google Scholar 

  113. Webb C. Caring, curing, coping: towards an integrated model. J Adv Nurs. 1996;23:960–8.

    Article  CAS  PubMed  Google Scholar 

  114. Aho JA, Aho K. Body matters: a phenomenology of sickness, disease, and illness. Lanham, MD: Lexington Books; 2008.

    Google Scholar 

  115. Bullington J. The expression of the psychosomatic body from a phenomenological perspective, SpringerBriefs in philosophy. New York: Springer. p. 19–37.

    Chapter  Google Scholar 

  116. de Valck C, Bensing J, Bruynooghe R, Batenburg V. Cure-oriented versus care-oriented attitudes in medicine. Pat Edu Counsel. 2001;45:119–26.

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Luigi Grassi .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2019 Springer International Publishing AG, part of Springer Nature

About this chapter

Check for updates. Verify currency and authenticity via CrossMark

Cite this chapter

Grassi, L., Chochinov, H., Moretto, G., Nanni, M.G. (2019). Dignity-Conserving Care in Medicine. In: Grassi, L., Riba, M., Wise, T. (eds) Person Centered Approach to Recovery in Medicine. Integrating Psychiatry and Primary Care. Springer, Cham. https://doi.org/10.1007/978-3-319-74736-1_6

Download citation

  • DOI: https://doi.org/10.1007/978-3-319-74736-1_6

  • Published:

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-74735-4

  • Online ISBN: 978-3-319-74736-1

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics